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Lady Frog
Regular Member

Date Joined Feb 2008
Total Posts : 139
   Posted 8/5/2010 6:46 PM (GMT -6)   
Hello. I used to post over on the IBS forum. I was diagnosed in 2003 with IBS. I switched primary docs 2 years later and she wasn't convinced. Tried a new GI guy and he basically said yep it's IBS can't do anything for you. I admit that after that I gave up. Didn't go to the doctor at all for my symptoms because after all I knew what was wrong so I didn't see the point. I finally decided to go to my third GI guy because it's affecting my son. Barely leave the house because I've had pretty much constant symptoms since 2003. With a brief bit of peace my second and third trimester. Less then a week after my son was born my guts were back in their full glory. My first appointment he didn't want to do anything "too drastic" because he was going off of me having IBS and being 28. My second appointment he poke me once and went "You know, your symptoms are consistent with Crohn's. I'm doing the test prep for the colonoscopy as is I type this. Hasn't really kicked in yet.

I'll look to see if there is already a thread of websites but right now I'm looking for the non-scare stories. I've been having symptoms for 8 years now. I'm scared that I'm going to need surgery.

Regular Member

Date Joined Jul 2010
Total Posts : 23
   Posted 8/5/2010 7:08 PM (GMT -6)   
Don't worry about the scope. The hardest part of it is the prep, the sedatives you get during the procedure are great :)
Once they get you on a medication that works for you it will be way better, you'll feel better then you ever have. That was my experience anyway. Made me regret all the years of not going to the doctor for the symptoms.
You've had some bad experiences with doctors but it seems like this new doc knows what he's doing.
Good Luck!
- t

Diagnosed with Crohn's in April 2010.
Currently on 3 grams of Pentasa 2x a day, trying to find diet and stress relief that works for me.

Lady Frog
Regular Member

Date Joined Feb 2008
Total Posts : 139
   Posted 8/5/2010 7:19 PM (GMT -6)   
I'm not worried about the scope. I've done the prep before because the first doc did a flex scope. I'm more worried about what they find. Believe me I'm kicking myself for not getting a new doc earlier. At one point I lost 70 pounds in about a year because my stomach hurt all the time and I was forcing myself to eat.I think this is the first time I've been hungry since I was pregnant. Kid's almost a year now.

Regular Member

Date Joined Sep 2008
Total Posts : 457
   Posted 8/6/2010 9:16 AM (GMT -6)   
This site is a great resourse and will help you with any questions you have after your scope. Keep us updated on your test results and don't worry about surgery. There are many other options to consider if you have Crohns.
Dx'd with Crohns 1984
Polycystic kidney disease in 1996
Bowel Resection surgery 2006, Now on Asacol,  Imuran, Folic acid, and Enalapril.

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 8/6/2010 9:21 AM (GMT -6)   
I agree with Elizabeth don't even worry about surgery at this point. Just get the scope done, and make sure you tell the doc to take biopsies as sometimes Crohns won't be seen with the naked eye but show up in the biopsies. I think if you can get a clear diagnosis they will then be able to work on which meds will work best for you. Also, if the cscope is inconclusive, you might ask for a pill cam. That test sees more of the small intestine where the scopes can't reach. Good luck and keep us posted on your tests. Hugs!
Gail*Nanners* Co-Moderator for Crohns Disease 
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Veteran Member

Date Joined Apr 2005
Total Posts : 3763
   Posted 8/6/2010 3:57 PM (GMT -6)   
You sound just like me. I self diagnosed as a teen, but was told I was lactose intolerant. So I suffered in silence for the next 10 years and didn't drink milk. When my daughter was 1, all heck broke loose and I couldn't deny that something was terribly wrong. In my case, I had a family history of CD so once I saw the right doctor, diagnosis was easy. It took some time to undue the damage that had been done from the years of me ignoring my disease. But once I was on the right medications and things were under control I was able to be a full participating mother to my daughters. Even if you do need surgery, the recovery time is minimal in the grand scheme of your life. And your life is what you will get back by taking care of yourself now.

I hope you are feeling better soon.

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!

Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....

Lady Frog
Regular Member

Date Joined Feb 2008
Total Posts : 139
   Posted 8/6/2010 6:35 PM (GMT -6)   
He said that I have a visually very healthy looking colon. He was showing me pictures in recovering but I was still out of it. Loopy but awake. I did the Miralax in Gatorade prep and at first I was freaking myself out. I told my husband that I thought something was wrong because it kept getting darker, not the clear yellow that was desired. Then I was worried because it was green. That's when he started laughing. And asked if I remembered the color wheel. Yeah if I have to do that again I'm not mixing it was blue sports drink. Save me the worry. But the Miralax part didn't stop till 1am. And the Ducolax kicked in at 4am. And my son woke me up at 6:30. So I practically had to be carried out to the car because I was so tired I just didn't really want to wake up. Slept all the way home. We get home and Hubby tells me that I was hilarious in recovery. The nurse said that I wasn't allowed to leave till I passed some of the air they pumped in me. I said OK and did it pretty much on demand. I don't remember that part. I do remember them giving me the sedative and not being able to breath properly though. It was like someone just sat on my chest.

But for now I still have IBS alone. But I'm at peace with that because I feel like this doctor at least attempted to look at all the angles. Not just do enough to prove what he wanted to see.
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