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Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 8/7/2010 8:27 AM (GMT -7)   
Ever since I had my kidney surgery on July 6th, I have had an issue with feeling like air is trapped in my upper left side.  It almost feels like blockage type symptoms, but I am moving stool thru me no problem.  Its just that dang air is just stuck in there.  I will burp or fart, but its always so little that it doesn't even ease that pain.
 
Also, I had finally found what I could and could not eat, and I stuck with those foods.  Now my diet is all messed up, and I am having to try to figure out what I can and cannot eat.  Some of my previous safe foods, now just add to the gas pains.
 
Anyone, ever experience anything like this or have any answers to what could possibly be going on?  This is getting so miserable.  I try to walk around as much as possible to try to move the air out, but thats not working very well either.
 
I am kinda scared of food again, and I hate that.  I am very sensitive to supplements, and one thing I had heard that helped is Charcoal caps, but those make me really constipated and make the problem actually worse.  Taking GAS-X like crazy which helps a little.  Any ideas appreciated. 
 
I do have a appt with the family doc on Tues, and a post op appt with the surgeon on Friday.  I have been worrying that maybe all that puking I did after the surgery may have damaged something in there.
 
Hugs
Gail*Nanners*
Gail*Nanners* Co-Moderator for Crohns Disease 
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 8/7/2010 12:23 PM (GMT -7)   
I am sorry you are still having so many issues. It just seems like you can't catch a break. I have a couple of ideas. After one of my surgerys, I had a spot that caused a lot of pain. It was constant like yours seems to be though. It would last for a few days, then taper off and gradually subside. All of the doctors best guesses were that I was getting a kink, sort of like a garden hose and it would be sore after the kink would un-kink for several days to a week or so. It felt very much like a blockage, but didn't act like a blockage for some reason. This went on for almost a year, but the frequency was much less over time.

The other idea is that since you have been on a lot of different medications since your surgery, maybe your bacteria flora has changed and your probiotic isn't working as well. My GI told me that you sometimes need to switch it up if your body gets used to what you are taking, or if it stops working for you. Then you can go back to your original one once things calm down again. So maybe try a different brand or even just increase the dose for a few days.

Just my ideas, maybe others have more input.
Suzanne

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 8/8/2010 6:22 AM (GMT -7)   
Thanks Zanne, I knew I could count on my CD twin:) Good thought about a possible kink, I think that may be a good possibility. Because although I am having bm's okay, why would the air not come out too.

I was thinking about this post lastnight and was thinking someone might say "oh maybe its bacterial overgrowth". But I have experienced that before and this is not like that. When I have SIBO the gas/pain etc appears after I have eaten, this is actually before I have even eaten. I wake up with it. I know it somehow has something to do with me sleeping on my sides, but no matter how I try, I can't stay on my back. I did add another probiotic yesterday though, just in case I did have a bacterial buildup.

I have an appt with my Internal Med (family doc) Tuesday, so I am going to ask for at least an abdominal xray to see if anything shows. But thanks again Zanne, I do bet some of my flora is messed up and more than likely something like a kink going on too.
Gail*Nanners* Co-Moderator for Crohns Disease 
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

ATHENSGIRL2
Regular Member


Date Joined Apr 2010
Total Posts : 81
   Posted 8/9/2010 1:56 AM (GMT -7)   

Nanners, I have the exact same symptom in the last few days, and I was also wondering what's wrong!  I have this feeling of trapped air in my upper left side which is very uncomfortable, I'm so bloated, and I too thought it was a partial obstruction, but then again, when I do have an obstruction the pain is always in my right side near my belly button, and the pain is unbearable.  This time, it's on the left side, not much pain, just gurgling and bloating/discomfort.  Then after many hours, it seems to unblock, but not too much, I too burp and fart but just a little.  Then the next day... same again.  I envy my husband, he just farts (sorry to be graphic) and it sounds like a train!!!  Mine are always like small amount of air is coming out, and you can never hear a thing!  I just attributed it to the narrowing I have in the TI, but then again, if it's so narrow, how come the stool passes w/o any problems?

Anyway, I'm interested to know what the doctor tells you, I hope it's not something to be worried about, because I'm leaving for holidays in 5 days, and only the idea of hospital makes my symptoms worse.

Christina

 


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 8/9/2010 7:01 AM (GMT -7)   
I will let you know what the doc says. Yesterday hubby and I went to our nieces house and she has alot of digestive issues too, so we had a very safe dinner for both of us, that I have eaten lots of times no problem. We ended up having to leave a little early as I was in SOOOOOO much pain. I just feel there is something wrong in the area they did surgery. I don't think the surgeons did anything wrong, but I think when I was so sick after the surgery and violently dry heaving that some damage of some kind occurred. I am supposed to go back to work a week from this Thursday, and right now I can 100% tell you thats not gonna happen at this point.

I just woke an hour ago, and I am sitting here waiting for my meds to kick in as I am miserable with this trapped air feeling. I am walking everyday, using a binder around my middle at night, taking GAS-X as I can, using my heating pad, and still I am miserable. I worried about my appointment tomorrow, that they wont see anything, or I will leave with no answers. I am miserable and just want to feel better.

Anyone else suffer with the trapped air feeling, what did you find out? Please I really need some help.

Hugs

Gail*Nanners*
Gail*Nanners* Co-Moderator for Crohns Disease 
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 8/9/2010 9:33 AM (GMT -7)   
Gail, did they put air into during surgery, because I'm wondering if indeed this is that gas, still trapped where it shouldn't be!!
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis and lupus.
B12 Shots bi-weekly

Laughter is the brush that sweeps the cobwebs from our hearts...

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 8/9/2010 10:15 AM (GMT -7)   
Yes Vicky they did, but the surgeon said I should have completely cleared that by now. Its been 5 weeks tomorrow since my surgery. Most folks go back to work after 2-3 weeks and I was supposed to have gone back last Thursday, but am so miserable I can't. I am hoping that a regular abdominal xray will show either some air or fluid there that might be causing the problem. Where it hurts, is exactly where they did the surgery. I am not bloated at all either, my stomach is more flat than it has been in a long time. So that part confuses me too.

They did do a CTScan when I had to go back to the hospital a couple of weeks ago and said there was fluid around the area they did surgery, but that was supposedly normal after my surgery and your body would absorb it. This does not feel like a Crohns flare either, so who knows whats going on???
Gail*Nanners* Co-Moderator for Crohns Disease 
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 8/9/2010 10:27 AM (GMT -7)   
Mmmm that is confusing! When are they doing the regular xray? I sure hope you get some answers soon (((hugs)))
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis and lupus.
B12 Shots bi-weekly

Laughter is the brush that sweeps the cobwebs from our hearts...

artist guy
Veteran Member


Date Joined Jan 2010
Total Posts : 1373
   Posted 8/9/2010 11:58 AM (GMT -7)   

nanners I trying to rack my brain and I can't for the life of me figure that out, you havebm's but can't get rid of gas, I will say I've taken bean-o before and when i try to stop gas it felt like my head was going to blow off, I know when I have big gas and i cut one (loud) I'm a small guy but it sounds like someone is 6' 5" cutting loose not some guy that is 5'4" the stonger and harder the gas comes out of me the better I feel. when I was on pred. thats what kept happening big gas pain an very little gas would come out, i felt like crap when that would happen.


artist guy

Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 8/9/2010 12:08 PM (GMT -7)   
Since it is right where they did the surgery, could they have "bruised" something with the poking around. I've never had lap surgery so I don't really know how it all works. I would think if they caused some serious damage to your intestines, like a nick or something, that you would be having more serious symptoms, like fever and signs of infection. Just a thought.
Suzanne

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 8/10/2010 7:24 AM (GMT -7)   
When I went back to the hospital with all the nausea and vomiting and pain, they did find infection as well as inflammation on the CT Scan. Supposedly, the infection cleared with 1 1/2 days of Flagyl and Cipro, which by the way was stopped because it made me more nauseous and vomit more. I just know something isn't right! I feel so rotten, but the appt is today. Yeah for that, at least!
Gail*Nanners* Co-Moderator for Crohns Disease 
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 8/10/2010 8:34 AM (GMT -7)   
I'll be watching for your post. I hope they find something and it doesn't require you to be back in the hospital for the fix!!! Keeping everything crossed for you.
Suzanne

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....

Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 8/11/2010 5:37 AM (GMT -7)   
Any one heard? I'm getting worried!
Suzanne

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 8/11/2010 8:48 AM (GMT -7)   
Well I went to the doc yesterday. He unfortunately was unable to give me any answers. He did give me Lidoderm patches to try to see if they will help. I really doubt it, but I will give it a try. As I told him, it feels like its something more digestive but not Crohns, than muscle or nerve. I know that sounds wierd, but it feels like anytime I eat it all starts. He did do an abdominal xray and some bloods. Don't know the results of the xray yet. The bloods show my WBC slightly elevated, but barely. For example, the high number is 11 on the scale, and my results were 11.3. I wonder if the Pred I used lastweek may have lowered it some, and maybe it would have been higher?? Who knows?? He was very sympathetic though, he knows me well, and knows when I cry like I did that I feel pretty bad. I told him I was concerned that the Urology dept was just going to dismiss me, and make me go back to work as the surgery is complete and healedl. He said if they did that, and I still needed more time off, he would approve it for me. He is a good doctor, and couldn't apologize more because he didn't have the magic answer.

I am forcing myself to get outside and walk daily and go to the store etc, but still feel pretty rough everyday. Sometimes I wonder, if maybe I do need to try to force myself to go back to work next week. Maybe getting back into my routine, I will be able to work thru this. Maybe being at home I have more time to think about how bad I feel, then other times I tell myself why lie, I feel like crap! You should have seen me by the time I got home from the doc yesterday. I was asleep on the couch within about 20 min of being home, I was totally exhausted. So there you go, still no answers, but still feeling a little rough. See the Urologist/surgeon on Friday, maybe he might have some answers.

Hugs
Gail*Nanners*
Gail*Nanners* Co-Moderator for Crohns Disease 
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 8/11/2010 8:55 AM (GMT -7)   
Trust your instincts. You have been a chronically ill person long enough to know your body and what it is telling you. Last year when I had pain that was "off", every doctor I saw couldn't explain it, except one. I was sure it wasn't the problem, but I did 8 weeks of physical therapy anyway. The one doctor who found something else wrong, swore it couldn't be the cause of the pain, but I should have surgery to fix it anyway. I knew that was the cause of the pain. I had the surgery and wouldn't you know it, the pain was magically gone. Once again, I was right and the medical people were wrong. We know our bodies, they don't. Plain and simple.

If you know something is off, its off!
Suzanne

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....
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