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ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 8/8/2010 2:37 PM (GMT -7)   
Basics:

* shower and dress
* prep for appointment
* ring and double check that appointment is on, and when, because I don't want to be messed around the way I was last week *glares at the medical fraternity* nono
* go to appointment
* make bed
* exercise
* stretch
* drink water
* spirituality stuff
* tape All Saints
* pick up med (v important!)


Seeing as I have to go out, try to do at least some of these:

* make a list of cleaning materials needed
* """""""""""""""" any other things I need
* try to drop into shop and grab cleaning materials and other necessary groceries
* drop note to church?
* write note to P?
* drop note to P?
* return library books
* post office - pay bill
* fruit to fruit devotees?
* get cat food?


And try to do some of these:

* do some / all dishes
* give the kitchen some tlc
* make adminish phone call/s
* start looking at paperwork
* fun stuff - read, needlework, craft, whatever
* throw flat things in the dryer so at least I can put *some* of the damp washing away shocked
* tidy the lounge room

Have a good Monday, everyone.

Ivy.
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~

ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 8/8/2010 6:24 PM (GMT -7)   
11.25 am

* shower and dress - yes
* prep for appointment - yes
* ring and double check that appointment is on- yes
* write note to P? - yes
* throw flat things in the dryer - yes. Folded them; put them away.
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~

ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 8/8/2010 10:03 PM (GMT -7)   
3pm

* go to appointment - yes
* make bed - yes
* tape All Saints - yes
* pick up med - yes
* drop into shop and grab some groceries - yes. Not cleaning supplies though.
* drop note to church - yes
* drop note to P - yes
* return library books - yes
* post office - pay bill - yes
* get cat food - yes
* fruit - no. Forgot to put it in the car.

Onwards and upwards!!!

Ivy.
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~

chocholic
Veteran Member


Date Joined Apr 2006
Total Posts : 634
   Posted 8/9/2010 2:01 AM (GMT -7)   
Monday TLC

* get showered, wash hair and dressed
* try to keep eating
* keep drinking
* mop floors
* prepare for appt
* go to appt
* do some dishes

Me and mum talked abit last night. She's adament that she wants to move in with her fella in the next year. She wants me to be with her since i'm so sick all the time. I'm nervy about it all, cos this is really hard to go through and to watch every single day. My and mum just get on with it, but everyone else in our lives had pretty much walked away.
I tried to explain that it was enormous moving everything for me, hospitals, GP's the lot. I cant just move, and if he decides its too much and he wants out then me and mum are stuck.
Mum says he's a good bloke and if anyone can deal with it, he can.
Dx - Crohn's (2006), Depression (2010)
Currently - Humira fornightly, iron infusion weekly, B12 3 monthly, prenatal vits+minerals, 15mg prednisolone, calcium supplement, mirtazapine
Tried - aza, pentasa, questran, infliximab
No crohns' surgeries to date, Episcleritis for 3 weeks x 2, pains in hands, wrists, hips, lower back, knees and ankles

Allergic to Infliximab
Was at uni, but have paused the course to try to figure out my health!

ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 8/9/2010 3:18 AM (GMT -7)   
(((Choc)))

What do you think of him? Have you had a chance to get to know him yet?
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~

chocholic
Veteran Member


Date Joined Apr 2006
Total Posts : 634
   Posted 8/9/2010 5:15 AM (GMT -7)   
he seems like a nice bloke. He does buy me stuff when mum's down there so i kinda feel like i'm being bought. Mum wants us to spend more time together which is fine. I guess i'm just worried cos mum is asking me to trust in her relationship when she has previously made humdinger mistakes. before i was a minor and didnt have a choice.
He says all the right things, like 'we're a family' and 'we'll make sure that i have a good quaility of life' but i'm just not sure.
Dx - Crohn's (2006), Depression (2010)
Currently - Humira fornightly, iron infusion weekly, B12 3 monthly, prenatal vits+minerals, 15mg prednisolone, calcium supplement, mirtazapine
Tried - aza, pentasa, questran, infliximab
No crohns' surgeries to date, Episcleritis for 3 weeks x 2, pains in hands, wrists, hips, lower back, knees and ankles

Allergic to Infliximab
Was at uni, but have paused the course to try to figure out my health!

chocholic
Veteran Member


Date Joined Apr 2006
Total Posts : 634
   Posted 8/9/2010 8:15 AM (GMT -7)   
* shower, wash hair and get dressed - done even used my super expensive moisturising creme
* try to keep eating - done and doing. its really hard work
* try to keep drinking - doing, which reminds me to get another drink!
* check appt time - done its 5.30pm another hour and 15 minutes to go
* do some sewing on the viking trousers - done, both legs are done and the seams down the front and back are done. only things left to do are the cuffs and the waistband
* mop the floors - done

i seem to be doing well today, its crazy!
Dx - Crohn's (2006), Depression (2010)
Currently - Humira fornightly, iron infusion weekly, B12 3 monthly, prenatal vits+minerals, 15mg prednisolone, calcium supplement, mirtazapine
Tried - aza, pentasa, questran, infliximab
No crohns' surgeries to date, Episcleritis for 3 weeks x 2, pains in hands, wrists, hips, lower back, knees and ankles

Allergic to Infliximab
Was at uni, but have paused the course to try to figure out my health!

ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 8/9/2010 2:35 PM (GMT -7)   
I don't blame you for feeling cautious, Choc.

Is there a reason why he can't move in with you?

Glad you are feeling healthier today.

Ivy.
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~

NiceCupOfTea
Veteran Member


Date Joined Jan 2010
Total Posts : 8561
   Posted 8/9/2010 6:49 PM (GMT -7)   
I don't blame you for being cautious either, tbh. He's fairly new, isn't he? If so, it's too soon to be saying stuff like "we're a family". At least that's my opinion. I could easily be wrong and hope that I am. But I do wish that your mum would wait for longer before deciding to move in with him, considering the upheaval involved.

Erm... since there isn't a Tuesday TLC yet, I'll make tomorrow's TLC in this thread instead <_<.

*Finish the thread I have started. That's all!

ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 8/9/2010 7:00 PM (GMT -7)   
I'm glad I'm not the only person who thought that, NCOT. It sounds possessive to me, but I'll admit I'm cynical.
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~

Tara28
Regular Member


Date Joined Apr 2005
Total Posts : 362
   Posted 8/9/2010 8:12 PM (GMT -7)   
well you know how guys are. Some are not the best at articulating; maybe he was just trying to let you know that he accepts you with open arms? MAybe he's afraid if he doesn't say something like that like you'll feel edged out by him?

and in terms of the being bought thing, again perhaps he is just trying hard to get you to like him? I don't know the truth and honestly if I were you I'm sure I'd be thinking what you're thinking :) but just wanted to throw another perspective out there.

If moving seems too stressful and you think you can manage alone (and want to) then I don't see why you have to go? But if you live with mom you will have less financial obligations so if you get sick and can't work then you don't have to stress. Plus, less responsibility in general, like housework etc. everything's exhausting when you're flaring.
33 years old, dx with Crohn's in 1998. Currently on :
Clofazimine 100mg daily,
Rifampin 600mg daily, and Clarithromycin 2 tabs daily
and Cipralex 10mg/day for anxiety.
Hydroxyzine, percocet, Ativan as needed.
5g pharmaceutical grade Omega 3's, 1000IU's Vitamin D3 daily
2 Perianal fistulas, and 1 more suspected. Crohn's only at end of colon, cecum. Remi, Asacol, Salofalk, Imuran, Humira did nada. Built immunity to long-term Cipro use, which also induced panic attacks.

ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 8/9/2010 8:23 PM (GMT -7)   
Tara, Choc was living away at university and had to come home because she was sick, so I don't know if living independently will be an option for her just now :-(.

Good advice, though - I'm sure she'll appreciate it.
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~

Tara28
Regular Member


Date Joined Apr 2005
Total Posts : 362
   Posted 8/9/2010 8:40 PM (GMT -7)   
Oh, sorry :(
I wasn't aware of Choc's situation..
In that case, get him to move to you guys :)
33 years old, dx with Crohn's in 1998. Currently on :
Clofazimine 100mg daily,
Rifampin 600mg daily, and Clarithromycin 2 tabs daily
and Cipralex 10mg/day for anxiety.
Hydroxyzine, percocet, Ativan as needed.
5g pharmaceutical grade Omega 3's, 1000IU's Vitamin D3 daily
2 Perianal fistulas, and 1 more suspected. Crohn's only at end of colon, cecum. Remi, Asacol, Salofalk, Imuran, Humira did nada. Built immunity to long-term Cipro use, which also induced panic attacks.

ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 8/9/2010 8:47 PM (GMT -7)   
Hi, Tara.

I just reread my post and thought it sounded a bit snotty. Sorry. I didn't mean it that way: fatigue is making me sound grumpier / snottier than I am :-).
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~

Tara28
Regular Member


Date Joined Apr 2005
Total Posts : 362
   Posted 8/9/2010 9:43 PM (GMT -7)   
Ivy, no no offense taken at all :)
I actually was hesitant to post to the thread at all as I felt I didn't understand it completely but wanted to give a second perspective of the boyfriend.
33 years old, dx with Crohn's in 1998. Currently on :
Clofazimine 100mg daily,
Rifampin 600mg daily, and Clarithromycin 2 tabs daily
and Cipralex 10mg/day for anxiety.
Hydroxyzine, percocet, Ativan as needed.
5g pharmaceutical grade Omega 3's, 1000IU's Vitamin D3 daily
2 Perianal fistulas, and 1 more suspected. Crohn's only at end of colon, cecum. Remi, Asacol, Salofalk, Imuran, Humira did nada. Built immunity to long-term Cipro use, which also induced panic attacks.

chocholic
Veteran Member


Date Joined Apr 2006
Total Posts : 634
   Posted 8/10/2010 2:26 AM (GMT -7)   
He cant move up to us cos he has a pretty well paid job where he's living. Plus i think mum wants to get away from our area. I do think its all very fast, but she's an adult and i cant really stop her from deciding anything.
I'm more worried that he doesnt really get what he is taking on. I dont fit the normal mould of kids, ie they grow up go to uni then move out and live independantly. I know he has been researching crohn's which is nice but we all know its one thing to read about it, its totally another to actually live it!
Hopefully in the next year, we'll get it all figured out. I mean i have scouted out hospitals in his area so thats one thing 'decided' on.

I dont know, its all messed up in my head. I dont really know what i want. Sometimes i think its a great idea. I'll end with up my own bathroom, cos he's a plumber, but other times i get really freaked out by it all.
Dx - Crohn's (2006), Depression (2010)
Currently - Humira fornightly, iron infusion weekly, B12 3 monthly, prenatal vits+minerals, 15mg prednisolone, calcium supplement, mirtazapine
Tried - aza, pentasa, questran, infliximab
No crohns' surgeries to date, Episcleritis for 3 weeks x 2, pains in hands, wrists, hips, lower back, knees and ankles

Allergic to Infliximab
Was at uni, but have paused the course to try to figure out my health!

ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 8/10/2010 2:43 AM (GMT -7)   
(((Chocholic)))

Most change is unsettling, and I think this is a more unsettling type than most. It's only reasonable that you're feeling conflicted about it.
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~

NiceCupOfTea
Veteran Member


Date Joined Jan 2010
Total Posts : 8561
   Posted 8/10/2010 5:28 AM (GMT -7)   
*hugs* to Chocholic as well. Difficult situation. It's uncertain, and uncertainty is always stress-inducing. Eventually it will all pan itself out, one way or another, but in the meantime knowing that doesn't help at all. I feel for you.

In the meantime, I gotta go :-/ I have written up about 3/4s of my thread now, but my brother and mother are hanging around, obviously waiting for me, and it's too distracting. We're going on a trip into Watford, not something I much feel like doing. But it passes an afternoon, I suppose. I just hope I don't get lost again and end up driving around half of north west London again, like I did a few days ago... >_>.

I'll have to finish my thread when I get back. But finish it I will. And hope that it isn't too long, unreadable and rambling. Take care, folks :p

chocholic
Veteran Member


Date Joined Apr 2006
Total Posts : 634
   Posted 8/10/2010 8:21 AM (GMT -7)   
Thanks guys, it helps to write everything out. Its all gets abit muddled in my head.

(((((((((((((((((((((((((((((((((((((((((((((((((((((((((HUGS TO YOU ALL)))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))
Dx - Crohn's (2006), Depression (2010)
Currently - Humira fornightly, iron infusion weekly, B12 3 monthly, prenatal vits+minerals, 15mg prednisolone, calcium supplement, mirtazapine
Tried - aza, pentasa, questran, infliximab
No crohns' surgeries to date, Episcleritis for 3 weeks x 2, pains in hands, wrists, hips, lower back, knees and ankles

Allergic to Infliximab
Was at uni, but have paused the course to try to figure out my health!

ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 8/10/2010 3:19 PM (GMT -7)   
And (((((((((((((((((((((((((((((((hugs))))))))))))))))))))))))))))))))) back to you, Chocholic :-).

I hope you have a good time in Watford, NCOT.
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~

NiceCupOfTea
Veteran Member


Date Joined Jan 2010
Total Posts : 8561
   Posted 8/10/2010 6:26 PM (GMT -7)   
It wasn't bad, thanks, Ivy. Didn't really get a lot done; I just can't shop in the presence of the impatient. When it takes me half an hour to decide what to have for lunch, it is an agonising decision of the highest order deciding what new table I am going to buy. But at least I got us in and out of there alive! I genuinely think I had a bit of a survivor's "high" this evening after negotiating the Watford ring road system in appalling weather conditions. I am learning to be a real driver at long last, although I cannot help feeling as though it is an act of faith any time I venture southwards. As mentioned, I got lost the other day deep in the "bowels" of the outskirts of London. I have never been so glad for the existence of road signs, as otherwise I think I would still be driving around north west London, wasting away at the wheel. Sat nav? I refuse to give in!

By the way, Choc, your last sentence sums up exactly how I have been feeling. Every time I try to think over things, I end up feeling muddled. I keep starting to write stuff down, then scrapping it because how I feel seems to keep on changing. Over the last couple of days I have emerged from my depression, but I don't trust to that. Nothing has changed, and I know it's there waiting in the wings. In some ways I'd rather feel an honest depression than a false sense of happiness or even euphoria.

Looking back at that, that makes me sound manic depressive but I'm not :-/
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