I want options, but I feel stuck

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

MichaelR
Regular Member


Date Joined Aug 2009
Total Posts : 34
   Posted 8/9/2010 12:40 PM (GMT -7)   
Hi all,

I'll try to make a long story short.

I was on Imuran for approximately 7 years, but am no longer on it. I had some medical issues that forced me off of it. I do not want to go back on it.

Due to the fact that I am no longer on it, and most of it is out of my blood stream, my doctor wants to put me on remicade. I rather not go on any meds where cancer is side effect.

I feel like I have no options, and do not know where to turn. I am currently on entocort, which is working great, but my doctor tells me that entocort is NOT a long term solution. I am at a crossroads, and stuck.

Any advice would be very much appreciated.

Mike

Rider Fan
Veteran Member


Date Joined May 2008
Total Posts : 1445
   Posted 8/9/2010 1:03 PM (GMT -7)   
I think your doctor is right, entocort isn't a long term solution. Actually cancer is a listed side effect of Imuran, so by taking Remicade you aren't taking anything much riskier than Imuran in my opinion. I would go for it and enjoy your wellness.
33 y/o male. Dx'ed in 1999. No surgeries.

Current meds: Humira 2/27/09. Proferrin iron pills.

Reduced gluten and dairy.


Go Saskatchewan Roughriders!

FunGuy
Veteran Member


Date Joined Oct 2009
Total Posts : 1070
   Posted 8/9/2010 7:08 PM (GMT -7)   
The side effects of the Remicade would seem to be overstated.  Many have already been on this drug for a decade.  I had to quit imuran when it overwhelmed my pancreas.  I also was afraid of the remicade.  Right now though, after 6 months, remicade has given me most of my life back.  If things start going wrong for the pioneers ahead of us then folks like you and I can stop taking Remicade.  In any event they will surely improve treatments in the years to come......I hope.
 
Luck to you

Rider Fan
Veteran Member


Date Joined May 2008
Total Posts : 1445
   Posted 8/9/2010 7:14 PM (GMT -7)   
I remember that presentation. It's outstanding and I really recommend it to everybody, even the veterans.

In fact it's so good I'd nominate the link to it to be a sticky at the top.
33 y/o male. Dx'ed in 1999. No surgeries.

Current meds: Humira 2/27/09. Proferrin iron pills.

Reduced gluten and dairy.


Go Saskatchewan Roughriders!

Post Edited (Rider Fan) : 8/9/2010 8:18:14 PM (GMT-6)


FunGuy
Veteran Member


Date Joined Oct 2009
Total Posts : 1070
   Posted 8/9/2010 7:37 PM (GMT -7)   
I second that nomination
 

ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 8/9/2010 7:48 PM (GMT -7)   
I don't think Peter will want it to be a sticky, but you can try emailing him and asking if it can be included in the Crohn's Resources.
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~

ZenaWP
Veteran Member


Date Joined Aug 2007
Total Posts : 884
   Posted 8/10/2010 8:54 AM (GMT -7)   
Mike, you won't have a lot of options if you don't want to try the biologics or anything with a risk of cancer.  Unfortunately, the meds out there for us have a long list of possible side effects and some are pretty scary.  There are others who refuse to do the biologics and some of them are in remission through other drugs.  I am one of those who can't get in remission without the biologics and I am willing to take the risk to have a better quality of life.  It's just something that everyone has to decide for themself...what amount of risk are you willing to take for feeling better?  You can always try the Remicade and, if you don't think it's helping enough to be worth the risk, tell the doctor you don't want to continue it.    

Crohn's Disease with Arthritis, Non-Erosive Reflux Disease, Gastritis, Hashimoto's Thyroiditis, Endometriosis, Depression/Anxiety 

gumby44
Veteran Member


Date Joined Nov 2007
Total Posts : 4097
   Posted 8/10/2010 9:02 AM (GMT -7)   
Why isn't Entocort a good long term solution if it is working great for you?
51 yr. old female, diagnosed with Crohn's in small intestine and terminal ileum Sept-Oct. 2007. Also have IBS, and had Salmonella Dec. '07
currently taking Pentasa- 4 500mg pills per day, Metamucil and colace for constipation, probiotics

MichaelR
Regular Member


Date Joined Aug 2009
Total Posts : 34
   Posted 8/10/2010 9:39 AM (GMT -7)   
gumby44 said...
Why isn't Entocort a good long term solution if it is working great for you?


He says that it may lead to bone demineralization and since it's a steroid, not good to be on.

Roni
Veteran Member


Date Joined May 2003
Total Posts : 2480
   Posted 8/10/2010 6:54 PM (GMT -7)   
If you're desperate, try natural remedies and diet. Some people go on the Maker's Diet or Specific Carbohydrate Diet. Do a google or search our board for more info.
New Topic Post Reply Printable Version
Forum Information
Currently it is Tuesday, December 06, 2016 10:59 AM (GMT -7)
There are a total of 2,733,555 posts in 301,133 threads.
View Active Threads


Who's Online
This forum has 151270 registered members. Please welcome our newest member, marciac12.
342 Guest(s), 14 Registered Member(s) are currently online.  Details
marciac12, Scaredy Cat, mpost, Mad Martha, jabele, KatieBwithUC, pmm73, WORLD HEALING, Bobby Mac, ks1905, NCOBJIM, peanut307, Blu's Mama, straydog


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer