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ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 8/9/2010 7:57 PM (GMT -7)   
Just a small number of tlcs today, because I have bad fatigue.

* shower, wash hair, dress - done
* find card
* write card
* give card
* appointment
* put bins out
* drink water
* do a bit of exercise or stretching
* eat as well as I can
* get lounge room presentable, even if it means throwing things in another room, LOL
* tape All Saints


Try to:

* make bed
* do some / all dishes
* do some tidying


And to do at least some of these:

* decluttering
* mending
* filing
* open a paperwork letter
* put on a small load of washing???
* keep trying to get clothes dry - doign
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~

ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 8/9/2010 10:00 PM (GMT -7)   
3pm.

* find card - done
* write card - done
* give card - done
* appointment
* get lounge room presentable, even if it means throwing things in another room, LOL - done
* tape All Saints - done
* decluttering - done
* mending - done
* keep trying to get clothes dry - still doing
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~

ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 8/10/2010 2:04 AM (GMT -7)   
7pm.

* put bins out - yes
* drink water - yes
* do a bit of exercise - yes
* eat as well as I can - yes
* watched All Saints
* make bed - yes
* open a paperwork letter - yes. Started to respond to it, too. That's something big off the stress-list, so go me.
* still more mending - yes
* keep trying to dry clothes - yes

Exhausted. Will head to bed shortly, and leave most of the dishes undone.

'night all.

Ivy.
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~

chocholic
Veteran Member


Date Joined Apr 2006
Total Posts : 634
   Posted 8/10/2010 2:32 AM (GMT -7)   
whoop, go ivy!! look at you getting down on the paperwork!!! I'm paperwork free at the moment. No doubt that the benefit office will soon bury me with half an amazonian rainforest of paperwork to fill in. bleurgh!

Tuesday TLC

* get dressed
* try not to get nervous about the dentist tomorrow
* eat breakfast - done
* eat lunch
* eat dinner
* keep drinking
* do dishes
* polish in living room
Dx - Crohn's (2006), Depression (2010)
Currently - Humira fornightly, iron infusion weekly, B12 3 monthly, prenatal vits+minerals, 15mg prednisolone, calcium supplement, mirtazapine
Tried - aza, pentasa, questran, infliximab
No crohns' surgeries to date, Episcleritis for 3 weeks x 2, pains in hands, wrists, hips, lower back, knees and ankles

Allergic to Infliximab
Was at uni, but have paused the course to try to figure out my health!

ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 8/10/2010 2:34 AM (GMT -7)   
Dentist = Humira soon. Yay!

Good luck at the appointment, Choc.

Babysteps with the paperwork, that's all. I get very (even clinically?) anxious about it, though, so sometimes just opening it is a huge step for me. Thanks, Choc.

I'm still here. You know that state when you're too tired to move...? :-/

Have a nice day. Hope you have some company.
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~

chocholic
Veteran Member


Date Joined Apr 2006
Total Posts : 634
   Posted 8/10/2010 4:08 AM (GMT -7)   
i think i'm just anticipating the lecture on how bad my teeth are for a 24 yr old! Plus i know i have a huge amount of work to be done so its abit scary!!!! I like baby steps!! baby steps are cool. I'm doing baby steps with the housework. Mum has mucked out the downstairs and i'm now able to pretty much keep up to it. The upstairs is still a working process.

Grrrrr, we just had our electricity metre changed which is fine, but they forgot to bother to tell us when they were coming. So i just had a random trademan in with me dressed in my pj's and dressing gown. Flipping electricity companies!! still, at least its done now!
Dx - Crohn's (2006), Depression (2010)
Currently - Humira fornightly, iron infusion weekly, B12 3 monthly, prenatal vits+minerals, 15mg prednisolone, calcium supplement, mirtazapine
Tried - aza, pentasa, questran, infliximab
No crohns' surgeries to date, Episcleritis for 3 weeks x 2, pains in hands, wrists, hips, lower back, knees and ankles

Allergic to Infliximab
Was at uni, but have paused the course to try to figure out my health!

Glori
Regular Member


Date Joined Jul 2010
Total Posts : 42
   Posted 8/10/2010 7:05 AM (GMT -7)   
This is my first TLC post, and since I just had surgery on the 29th I am going to keep the list pretty short:

Shower and dress
Phone calls to lawyer and insurance companies
Unload and reload the dishwasher
Water!
Feed and water dog
Take an afternoon nap, or at least lie down for an hour

Ivy, thanks for helping me think of these things as being tender loving care for myself, rather than just drudgery!

Glori

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 8/10/2010 7:06 AM (GMT -7)   
Today I finally have my appt with my family doc to see if he can help to get me feeling better. Woke up today really nauseous, which I haven't in a awhile. Attempt run to Walmart, pick up refills, and attempt brief stop at grocery store. Wish me luck, I am feeling pretty rough today. One good thing is that although feeling rough, I DO have a doctor appt. Hugs to all!
Gail*Nanners* Co-Moderator for Crohns Disease 
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

chocholic
Veteran Member


Date Joined Apr 2006
Total Posts : 634
   Posted 8/10/2010 9:43 AM (GMT -7)   
* get dressed - done
* eat lunch - didnt eat, slept instead
* do dishes - done
* keep drinking - done
* eat dinner - about to, not sure what i will eat though!
Dx - Crohn's (2006), Depression (2010)
Currently - Humira fornightly, iron infusion weekly, B12 3 monthly, prenatal vits+minerals, 15mg prednisolone, calcium supplement, mirtazapine
Tried - aza, pentasa, questran, infliximab
No crohns' surgeries to date, Episcleritis for 3 weeks x 2, pains in hands, wrists, hips, lower back, knees and ankles

Allergic to Infliximab
Was at uni, but have paused the course to try to figure out my health!

ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 8/10/2010 3:17 PM (GMT -7)   
Welcome, Glori! I'm really glad you've joined in :-).

Good luck at the doctor's, Nanners. I hope s/he can help you.

Choc, I'll keep my fingers crossed for you and hope that the dentist's appointment goes better than you expected.
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~

Glori
Regular Member


Date Joined Jul 2010
Total Posts : 42
   Posted 8/10/2010 4:59 PM (GMT -7)   
Shower and dress - done
Phone calls to lawyer and insurance companies - called lawyer, putting off insurance calls til tomorrow
Unload and reload the dishwasher - done
Water! - done
Feed and water dog - done
Take an afternoon nap, or at least lie down for an hour - done

I also managed to put on some makeup, and go out for lunch with my son and his fiance. This was my first outing with the colostomy, and I was soooo scared that it would "talk". Everything went just fine, though. Whew!

ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 8/10/2010 5:01 PM (GMT -7)   
Congrats, Glori!!!!!

How long have you had the ostomy, out of interest? I may be getting one too some day, and like to hear about people getting out and about afterwards, and how quickly they can do it after surgery etc.
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~

Glori
Regular Member


Date Joined Jul 2010
Total Posts : 42
   Posted 8/10/2010 5:20 PM (GMT -7)   
Thanks, Ivy -

I had surgery on 7/29, and got home from the hospital a week ago today. The trip home from the hospital was four hours in a car, so that set me back a little on the recuperation schedule. I also have been dealing with a urinary tract infection this past week, and that has also set me back. I am feeling so much better the past three days, and am going to keep on with slow and steady progress. Friday night, I have plans with friends and am going to try to drive for the first time. I have a backup plan in place in the event that it proves to be too much for me. Cross your fingers for me!

ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 8/11/2010 12:47 AM (GMT -7)   
Fantastic!! Wow! I'm so impressed.

Forget fingers - *everything* is crossed for you.

How bad were you before your surgery? Is it a blessed relief to have the ostomy, or are you & body still adjusting to it?
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~
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