Seeing surgeon - what should I be asking ?

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missnuts
Regular Member


Date Joined Apr 2010
Total Posts : 76
   Posted 8/10/2010 4:19 PM (GMT -7)   
Have tried Methotrexate, Remicade, still on steriods and not much better due to strictures.  Seeing surgeon in a couple of days and need to know what I should be asking.  Part of me is worried about the failure of resection and the Crohns returning fast but part  of me is scared he will not want to operate and where will I go from there.  I could have strictureplasty but that would leave the diseased bowel to carry on doing its worst.  Any advise would be welcome. confused   

pimfram
Veteran Member


Date Joined May 2009
Total Posts : 506
   Posted 8/10/2010 4:39 PM (GMT -7)   
The only question I had for my surgeon was whether it would be open or lap. He covered every other question I had.
Diagnosed with CD July 2007
Currently on Remicade, acidophilus, multivitamin.
Resection December 2009

Amor fati - Nietzsche

artist guy
Veteran Member


Date Joined Jan 2010
Total Posts : 1373
   Posted 8/10/2010 4:40 PM (GMT -7)   
just to let you know I had surgically induced remission, twice, ea time lasted about 12 years ea. time. depends on your individual situation, mine was small bowel up high in my small b. so no lap. surgery only super invasive type for me. now i don't want any surgery I only have 20feet of small bowel left, my dr is hopeing that we can use just med's, so I'm ofk with that because I've had 4 surgeries, and like i said mine are (surgeries) really invasive, and physically very demanding when you have those type of surgeries. mine was obstruction that could have been deadly,i had no choice.

artist guy

missnuts
Regular Member


Date Joined Apr 2010
Total Posts : 76
   Posted 8/10/2010 11:04 PM (GMT -7)   
Thanks for replies. My disease is in the small bowel and GI thinks it is strictures causing the main problems (often experiencing obstruction symptoms which fortunately clears itself, unlike a couple last year). He thought it would probably be open surgery, but he isn't the guy doing it (or not as the case may be). I believe I have had Crohns for many years but it was only diagnosed just over a year ago and seriously want some life back, but it is so hard to know what to do for the best.
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