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ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 8/12/2010 6:38 AM (GMT -7)   
Sorry to post this late. I'm feeling totally yuck today and ended up going to bed for a while.

Things to try to do today:

* appointment at home - done (got caught asleep in pjs!! tongue )
* wash towels - done
* hang towels
* spend a tiny bit of time outside, seeing as it's not raining - trying to do, but it's hard because it's still cold out there.
* ring Council and complain about unhygienic home help - done, and they were surprisingly nice (and appalled) about it too yeah
* start cleaning up after storm. Again. eyes - yes
* do some mending - done / doing
* wash a few dishes
* do a bit of tidying
* try to wash myself
* check to see if today's a Humira day, and, if it is,
* inject

A totally drained Ivy.
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~

chocholic
Veteran Member


Date Joined Apr 2006
Total Posts : 634
   Posted 8/12/2010 1:59 AM (GMT -7)   
At least the council have listened and get where your coming from. Nothing worse than some-one not understanding what your complaining about!
I'll be injecting humira today as well, not looking forward to it.

Thursday TLC

* put bin out - done
* eat breakfast - done
* try to figure out what i should wear to mum's boyfriends step daughters engagement party
* do some dishes
* take a nap at some point
Dx - Crohn's (2006), Depression (2010)
Currently - Humira fornightly, iron infusion weekly, B12 3 monthly, prenatal vits+minerals, 15mg prednisolone, calcium supplement, mirtazapine
Tried - aza, pentasa, questran, infliximab
No crohns' surgeries to date, Episcleritis for 3 weeks x 2, pains in hands, wrists, hips, lower back, knees and ankles

Allergic to Infliximab
Was at uni, but have paused the course to try to figure out my health!

ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 8/12/2010 2:04 AM (GMT -7)   
Gosh. The relationship really is serious if you've been invited to the party. Have you met the step-daughter yet? (Is your Mum his third serious relationship?)

I'm seriously considering leaving Humira for tomorrow. I'm starting to wonder if I'm developing something. I feel really wrong.

How's your mouth today, Choc? And have you recovered from the distress?
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~

chocholic
Veteran Member


Date Joined Apr 2006
Total Posts : 634
   Posted 8/12/2010 2:25 AM (GMT -7)   
i'm ok, i'm still really tired from yesterday plus the 4 trips to the loo during the night. Think an extra long nap is in order! I did meet her once, but not for long. I think he has been married twice, but has had other serious relationships. Mum keeps telling me that everyone at the party wont bite, but i dont think she fully gets it. I'm anxious cos i dont do social situations, and theres only one bathroom. I guess i'm just worried that i'm going to make a fool of myself again in public. Plus its all the questions, like what do you do? Well i'm living on benefits cos i'm too sick to work.
It just seems to be alot of pressure.
Dx - Crohn's (2006), Depression (2010)
Currently - Humira fornightly, iron infusion weekly, B12 3 monthly, prenatal vits+minerals, 15mg prednisolone, calcium supplement, mirtazapine
Tried - aza, pentasa, questran, infliximab
No crohns' surgeries to date, Episcleritis for 3 weeks x 2, pains in hands, wrists, hips, lower back, knees and ankles

Allergic to Infliximab
Was at uni, but have paused the course to try to figure out my health!

ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 8/12/2010 2:36 AM (GMT -7)   
"Plus its all the questions, like what do you do? Well i'm living on benefits cos i'm too sick to work."

My answer to that is "Used to be ____, got very sick and had to come home, and am now trying to rehabilitate, and explore new options for the future".

That signals to them that you're not going to be a total downer or grizzly guts, because you're sounding positive about the future (even if you're really not). They can ask you about what you used to do, or what you'd like to do, or whatever, instead of just shuffling their feet and looking embarrassed because they're dying to ask about your illness and:
a) know they shouldn't and
b) are scared that if they do, they'll be stuck with you for hours as you boringly detail everything that's wrong with you :-)

You could talk about those outfits you're sewing: that'd intrigue them :-).

I do understand, though, Choc. I avoided my school reunion for exactly that reason. What do you *say*, when everyone else is married / working / going overseas / fulfilling their life-long ambitions (and, darn it! they were slackers in school and didn't work hard and don't *deserve* the level of success some of them have now, and that causes angst in and of itself. But that's another post, and it's about me rather than you :-) ).

Social situations are scary. I don't blame you for feeling daunted.

I read another good tip today: go, but tell them in advance that you can only stay for a short period of time. I don't know if you could get away with it in this situation, but it's worth considering.



I feel the need to go and lie down for a bit, Chocholic. I might be back later, seeing as I rarely sleep :-/.

I hope you enjoy your nap.

Ivy.
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~

Glori
Regular Member


Date Joined Jul 2010
Total Posts : 42
   Posted 8/12/2010 5:51 AM (GMT -7)   
Hello Ivy and Choc. Ivy - I'm so glad the council listened to you. Choc - I remember when I was on disability, I used to tell people that I was "between jobs". Not exactly a lie, as I fully intended to go back to work. Maybe you are "between educational programs" right now.

Here's my TLC list for today:

Shower/dress
Unload/reload dishwasher
Humira - how odd that we all have Humira on the same day!
Schedule follow-up appt with surgeon
Call insurance companies
Laundry
Help son finish editing thesis
The home health care nurse visits today, so I need to tidy up a little around the house.

Here goes nothing,

Glori

chocholic
Veteran Member


Date Joined Apr 2006
Total Posts : 634
   Posted 8/12/2010 6:40 AM (GMT -7)   
Its cool, i like knowing i wont be the only one enduring the shot!!! Glori - thats a good point. I mean they all know already that i'm ill. I just dont think they realise just how ill i can get.
The one thing that really bothers me is um's fella's other step daughter has three kids and is only 23. She lives on benefits as well. she's never had a full time job, EVER. i'm nervous in case parallels are drawn between us by her (which is unlikely as she hasnt bothered herself to speak to either me or mum before now). I know mum's fella would go mad at her for it, but as you've guessed she's not exactly a nice person to be around. Unlike her sister who's engagement party it is.

What do i wear??? i'm only just starting to shift the pred weight, so alot of my clothes dont fit. I dont want to wear a skirt cos a) it means i have to do my legs and b) the weather is starting to turn again. Maybe just jeans and a some what decent top. With a spare outfit just in case i have an accident. Maybe i can get mom to stock up on immodium.

* Take a nap - done, was really good up until next door's brats started having what sounded like a screaming contest.
* do humira shot - psyching myself up for it!
Dx - Crohn's (2006), Depression (2010)
Currently - Humira fornightly, iron infusion weekly, B12 3 monthly, prenatal vits+minerals, 15mg prednisolone, calcium supplement, mirtazapine
Tried - aza, pentasa, questran, infliximab
No crohns' surgeries to date, Episcleritis for 3 weeks x 2, pains in hands, wrists, hips, lower back, knees and ankles

Allergic to Infliximab
Was at uni, but have paused the course to try to figure out my health!

inflamed
Veteran Member


Date Joined Nov 2005
Total Posts : 1340
   Posted 8/12/2010 12:41 PM (GMT -7)   
Choc -- I vote jeans. I hear you on social situations. I can't stand when they involve people I dong know and a meal. *shudder* Good Luck.
Ivy -- are you feeling any better? Glad they were appalled when you called.
Glori -- how's the thesis? He's lucky to have you edit.

AFM --
breakfast & dishes -- done
kids' appointments -- done
babybook -- some done
mail preschool form
lunch dishes
make dinner
nap
clean bathroom
continue sorting handmedowns
pick up guest room
laundry

I'm cuddling my little guy and starving, but don't want to put him down. I think I might skip some items on my list. They're only little once and the cleaning is in preparation for unwanted house guests. I'd rather focus on my sweetie.
Mom to two healthy Pentasa babies. 6+ years remission, woo hoo!

Glori
Regular Member


Date Joined Jul 2010
Total Posts : 42
   Posted 8/12/2010 7:23 PM (GMT -7)   
Shower/dress - done
Unload/reload dishwasher - done
Humira - how odd that we all have Humira on the same day! - done
Schedule follow-up appt with surgeon - done
Call insurance companies - stalled on this one (again)
Laundry - too hot for laundry by the time I got to it - will start a load before bed
Help son finish editing thesis - done - hopefully this is the LAST time and the LAST paper I have to edit for a kid of mine!
The home health care nurse visits today, so I need to tidy up a little around the house - done

Choc - Make that two votes for jeans
Inflamed - Snuggling with a little one is probably the most important thing to do right now. It is even more important than editing a thesis.
Ivy - I hope you are feeling better by now
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