Prednisone not working ??

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daisyrambler
Regular Member


Date Joined Jan 2009
Total Posts : 126
   Posted 8/12/2010 3:45 PM (GMT -6)   
I have been on pred before and I dont remember it taking so long to work. I have been on it for 6 days and I still feel just as bad as I did before I started it. Am I wrong in thinking that I should be feeling better by now ? I have a dr apt on monday but I just wanted to ask you guys.
> 29 year old wife to a awesome husband and momma to a beautiful little girl <

> Diagonsed with Crohns disease in 2000, Crohn's Colitis in 2009 <

> Medication - Pentasa, Imuran, Iron, Prednisone, <

> I thank the Lord every day for my amazing husband and wonderful family <

Lori M
Regular Member


Date Joined Aug 2010
Total Posts : 65
   Posted 8/12/2010 3:59 PM (GMT -6)   
I'm pretty new to pred (only been on it for a week & a half), but for me it kicked in about 4 hours after I took the very first pill.  Good luck - hopefully it will begin helping you soon!
46 years old. Diagnosed with Crohn's August 3, 2010
Started predinose on 8/4/10 for 4 weeks (40 mg 1st week, 30 mg 2nd week, 20 mg 3rd week and 10 mg final week)
Asacol 1200 mg 3 times a day

junerainbow
Regular Member


Date Joined Feb 2010
Total Posts : 403
   Posted 8/12/2010 6:00 PM (GMT -6)   
I am with you... its not working for me and it has always worked...I have been on and off it about 6x now in the last 8 months...this time its been a joke.

sorry to hear you are having a difficult time... hope you feel better.
40 yo...mom to three wonderful kids, and wife to an amazing , supportive husband of 18 years..
-----------------------------------------------------------------------------------------------------------------
Diagnosed with gluten intolerance April 2009

Diagnosed with Crohn's March 2010- Mayo Confirmed May 2010
Back on Prednisone, Colestipol.Nexium, Propranolol, Vivelle patch
No longer on Imuran due to pancreatitis
Have taken Entocort, Bentyl, Flagyl, Lomidil, Pentasa
Have had myriad of health problems attributed to many different things over the past ten years. Our family has a history of Crohn's, Ulcerative Colitis and Bowel Cancer.

jpnutritionfirst
Regular Member


Date Joined Apr 2009
Total Posts : 362
   Posted 8/12/2010 6:28 PM (GMT -6)   
Sometimes it takes a while to kick in, but if you see no results in a few weeks I'd bet it isn't going to do much for you. In that case, you're probably steroid refractory now and will likely have to move on to biologics like remicade/humira +/- Imuran
Crohn's diagnosed 6/08
Organic SCD since 4/09
Remicade from 6/09 to 4/10
Low-dose naltrexone since 7/5/10
Boswellia + Natren's Healthy Trinity probiotic + Cinnamon + Wild Oregano Oil + vitamin D

daisyrambler
Regular Member


Date Joined Jan 2009
Total Posts : 126
   Posted 8/12/2010 7:53 PM (GMT -6)   
Well I really hope that is not the case : ( I am on imuran now and it helps a little but not enough. Plus I have been on remicade and humira and they didnt work that great. I hope it will start working soon.

junerainbow ~ I am sorry you are not feeling well either .. Hope your pred starts to work soon too !!!
> 29 year old wife to a awesome husband and momma to a beautiful little girl <

> Diagonsed with Crohns disease in 2000, Crohn's Colitis in 2009 <

> Medication - Pentasa, Imuran, Iron, Prednisone, <

> I thank the Lord every day for my amazing husband and wonderful family <

WriterMum
Regular Member


Date Joined Apr 2009
Total Posts : 166
   Posted 8/12/2010 9:40 PM (GMT -6)   
The first time I took prednisone it started working almost right away. This last time I took it I was on it for several weeks and it wasn't working. I was taking a dose of 30 or 40, but I ended up needing a couple of days on IV steroids to get it going. It might be that your dose is too low, or perhaps you need to add something else. I would tell your doctor on Monday at least, but if your symptoms are really a problem try calling his/her office tomorrow and ask what to do.
45 years old. Diagnosed with moderate to severe Crohn's in April 2005. Hiatus hernia diagnosed in 2008. Had Crohn's under control until March last year when I had a major flare up and ended up in hospital. Diagnosis is now CD and IBS. Getting it under control again.
Currently taking: Salofalk 2000 mg, Calcium and Vitamin D, Matamucil, Yogurt for probiotics, Pregnancy Vitamins for iron etc., Salofalk suppositories as needed.

dorri
Veteran Member


Date Joined Feb 2003
Total Posts : 1636
   Posted 8/13/2010 1:13 AM (GMT -6)   
Prednisone usually works for me soon after increasing it, but when my bowel problems became strictures (scar tissue) which caused bowel narrowing, prednisone no longer worked even though I thought the pain was caused by inflammation, but it wasn't.
Has your doctor determined if you have any strictures?

daisyrambler
Regular Member


Date Joined Jan 2009
Total Posts : 126
   Posted 8/13/2010 4:01 AM (GMT -6)   
No he hasn't .. but that is a thought ... I have lots to talk to him about on Monday ... I almost dont know where to start.
It's kind of like I am having to start all over again because, I had a baby 6 months ago and right before I got pregnant my dr and I thought it would be best to try to stop all my meds except pentasa. Everything was great, I was in remission untill I stopped nursing my baby. Now same old same old.
I wonder if my main problem is that I am stressing myself out over being sick and having to take care of my baby.
O well it is what it is and lots of us are having a tough time right now : (
> 29 year old wife to a awesome husband and momma to a beautiful little girl <

> Diagonsed with Crohns disease in 2000, Crohn's Colitis in 2009 <

> Medication - Pentasa, Imuran, Iron, Prednisone, <

> I thank the Lord every day for my amazing husband and wonderful family <

Joie1
Regular Member


Date Joined Oct 2008
Total Posts : 350
   Posted 8/13/2010 2:39 PM (GMT -6)   
I haven't really experienced any real relief from the predinisone for the roundabout 3 months of repeated tapers. I've got to talk it out with the GI when I get to see him next month.

Good luck and feel better soon.
29/f
Allergies and Asthma my whole life: Benadryl
Depression and PTSD after surgeries and illness of 2003 (turned out to be Crohns)
Crohns Dx'd: February 2008: Pentasa, Hyoscyamine
Fibromyalgia Dx'd: July 21, 2009: Lyrica, Cymbalta, Hydrocodone, Prenatal Vitamin

sjkly
Veteran Member


Date Joined Dec 2007
Total Posts : 2113
   Posted 8/13/2010 7:30 PM (GMT -6)   
I always feel signigicantly better in 4 hours and then realize the next day that even significantly better is a long way from normal.
It takes a while for normal. Oh, and dose matters-a lot.
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