Pain Management-Any suggestions

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Lost in Translation
New Member


Date Joined Aug 2010
Total Posts : 6
   Posted 8/12/2010 6:02 PM (GMT -7)   
I'm currently in a flair up. Sunday spent the day in the ER with Rectal Bleeding- spent the night because blood level were low. Today I'm so doubled over I can't move. I went to work- but it is hard to hide this disease when your in this much pain.
 
Anyone out there have any ideas on how to manage the pain in the moment? I've taken two Bentel and nothing yet. This is so painful, sitting with a heating pad on my stomach. No relief.
 
Let message with Dr's service- no response.  I'm willing to do anything at this time. I plan on calling in sick tomorrow, however I can't function tonight. confused smhair

Stef17
Veteran Member


Date Joined Feb 2003
Total Posts : 1811
   Posted 8/12/2010 7:44 PM (GMT -7)   
So sorry you're in so much pain and I hope the doc can call you back soon. Will it help if you get a bath? Sometimes when I submerge myself in warm water it eases the pain. I hope you find some relief soon!

Steff

Glori
Regular Member


Date Joined Jul 2010
Total Posts : 42
   Posted 8/12/2010 7:51 PM (GMT -7)   
I agree with the suggestion of a bath. Sometimes, the only way to escape the pain is to sleep. The problem is that the pain is so bad that you often can not get to sleep. Try the bath, then try to get warm in bed. If reading helps you sleep, try that as a distraction. I hope the doc calls back soon. If not, you need to try again. If all else fails, you might have to go back to the ER.

Good luck,

Glori

mtgman
Veteran Member


Date Joined Mar 2005
Total Posts : 1289
   Posted 8/12/2010 9:21 PM (GMT -7)   
hi there- i was in so much pain that i was puking every time i went to the bathroom. finally went and saw a doc at a pain mgmt clinic...now i'm on percocets and have gotten 2 celiac plexus blocks -- shots in my back that block the pain nerves in the belly. seems to be working...still in pain but to a much messer degree. good luck- hope you feel better!
36 year old male living in AZ.  Diagnosed with Crohns at age of 15.
Currently on 30 mg prednisone.  still taking Asacol.  Just had 3rd Remicade infusion 3 weeks ago
In the middle of a bad flare now for over a year...lost almost 30 lbs. -- gained most of it back now.

Tara28
Regular Member


Date Joined Apr 2005
Total Posts : 362
   Posted 8/12/2010 10:12 PM (GMT -7)   
When I am really hurting bad, I run a bath, put in some epsom salts, and drug up. Take what'll make you feel better; if you don't have anything strong try just a couple of tylenol arthritis. You can also use different OTC pain meds and stack them as they work on different receptors. I know that normally we are not to get in the habit of using ibuprofen (advil) but for emergency use the doctors in the ER have told me to take the max dose of advil and tylenol if need be.

I usually don't do Advil except when I have Crohn's related joint pain as advd by my doctor, but if you don't have anything strong it can get you thru a crunch. The bath really does soothe, too. It's the only time I don't hurt.

In other news, you know how they call Lomotil a narcotic? I can take 4 and still have no pain relief BUT I have recently discovered (by accident) it seems to be a great potentiator for other painkillers. 1 perc doesn't do a lot for me anymore and I loathe using more because I hate asking doc for them. I try to make em last as long as possible..well I was going out and my tummy/colon are wouldn't stop cramping/spasming so I took 2 lomotil and then a perc for the pain, and it worked far better. I have never seen lomotil as a potentiator for other painkillers online before so I wanted to post this in case it helps someone out.

Hope you are feeling well soon :)
33 years old, dx with Crohn's in 1998. Currently on :
Clofazimine 100mg daily,
Rifampin 600mg daily, and Clarithromycin 2 tabs daily
and Cipralex 10mg/day for anxiety.
Hydroxyzine, percocet, Ativan as needed.
5g pharmaceutical grade Omega 3's, 1000IU's Vitamin D3 daily
2 Perianal fistulas, and 1 more suspected. Crohn's only at end of colon, cecum. Remi, Asacol, Salofalk, Imuran, Humira did nada. Built immunity to long-term Cipro use, which also induced panic attacks.

tsitodawg
Veteran Member


Date Joined Sep 2006
Total Posts : 845
   Posted 8/12/2010 11:15 PM (GMT -7)   
The last thing that you want to take right now is anything with asprin or NSAIDS in it. PLEASE DO NOT TAKE ADVIL!!! (Please no offense tara28) You already have rectal bleeding and the NSAIDs like ibuprofen or advil will make it worse if not deadly. If your doctor does not call you soon and you are in extreme pain then you need to go back to the E.R. or an Urgent care center for pain management. Most G.I.s will not prescribe pain medication because they do not like the responsibility that comes with it and you will need to see your primary care physician for pain control meds. You can also get referred to a pain management clinic for long term help. I have a monthly prescription for lortab 10's 3 times daily and it is from my primary care. To make sure that I am not abusing the medication I voluteered to sign a paper saying that I will not accept narcotics from any other doctor, hospital, or clinics unless pre-authorized by my primary care first. He was very happy about the idea and now employs it with all of his chronic pain patients to keep a level of trust and make it easier for him to manage our meds. My G.I. did not want to be the one to prescribe the pain meds but he is very supportive of my being on them. He still prescribes my anti-spasmotics like librax and levsin but lets my P.C.P. take over the big guns.
There is no need for you to sit and suffer and you may have something occuring that is causing the pain. If you are still having bleeding then you need to be seen. If it is black blood then you need to go to the E.R. now.

Lost in Translation
New Member


Date Joined Aug 2010
Total Posts : 6
   Posted 8/13/2010 6:39 AM (GMT -7)   
thank you everyone for offering help. I did go to sleep last night, but tossed and turned. Today feeling unreseted, but stomach not in as much pain. Clear liquids for the day. I have desire for food(theres a first). I will call Dr again today. My husband wanted to call an ambulance- I fought him all the way. I know going to the ER is a 2-3 hour wait, if you go by ambulence- you get right in. I jsut felt foolish.

I will take everyones advice and take a bath, meds (no Advil) and try to make it through the day. Thank you. This group is really helpful

Joie1
Regular Member


Date Joined Oct 2008
Total Posts : 376
   Posted 8/13/2010 12:37 PM (GMT -7)   
Hehe, if you're vomiting, that's also a quick motivator in the ER. It freaks out the other patients if you keep vomiting in those bags or bowls. Plus, they fear infection/transfers.

Take care of yourself and hey, anyone else noticing a sudden spike in similar pain issues? I'm wondering if the heat/humidity/whatever is also a motivator combined with nasal drainage from high mold/pollen/whatever counts. I just really noticed that it seems like there's been a surge of quite a few of us experiencing intensity of pain and massive flare issues.

Gotta agree with twistodog about NSAIDs. They are blood thinners. If there's any kind of bleeding occurring (even if its just hemrrhoids) its been fatal with Crohns folk. We never know if it doesn't cause a massive kind of hemmoridge if there's ulcerations that are on the edge of fistulating (my fun lil word for it) or abscesses forming and/or bursting internally.

I stay away from all NSAIDs myself. Not worth the fear of internal bleeding. I'm not meaning to be scary...just read some things about Crohns and NSAIDs that scare me from even keeping them in the house.

Feel better and get well soon.
29/f
Allergies and Asthma my whole life: Benadryl
Depression and PTSD after surgeries and illness of 2003 (turned out to be Crohns)
Crohns Dx'd: February 2008: Pentasa, Hyoscyamine
Fibromyalgia Dx'd: July 21, 2009: Lyrica, Cymbalta, Hydrocodone, Prenatal Vitamin

Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 8/13/2010 1:32 PM (GMT -7)   
Just another tip, when I have really bad tummy pain, if I lay absolutely still, it will sometimes settle down a bit. Just enough so that I can get to sleep. This is after the pain meds that don't really help much. But as soon as I move the pain comes back. I try to get as comfy as possible, with pillows tucked in all around for support and then just stay there. After a while the pain lessens a bit.

I hope today has been a better day for you and that your doctor finally called you back with some relief!
Suzanne

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....

Tara28
Regular Member


Date Joined Apr 2005
Total Posts : 362
   Posted 8/13/2010 9:48 PM (GMT -7)   
hmm, well when I get severe arthritis in my ankles and hips (the kind that comes on real fast and I cannot walk or put any pressure on it) they told me at the ER I had 2 choices, only 2 things would cure the flare
1. max dose of advil for 7 days
2. prednisone for a month or longer

when I expressed mucho concern over the advil, he said in the end it was my choice but that risk/side effect of pred in his opinion was far worse..? should I have taken the steroids instead..idk?

Maybe I'm jaded but after seeing rectal bleeding every day, several times a day for 13 years it becomes less alarming and I don't fear major hemmorage ..in that vein I wonder if omega 3's would be bad too because they also thin the blood. I take 5g a day, anyone know?
PS sorry for the hijack
33 years old, dx with Crohn's in 1998. Currently on :
Clofazimine 100mg daily,
Rifampin 600mg daily, and Clarithromycin 2 tabs daily
and Cipralex 10mg/day for anxiety.
Hydroxyzine, percocet, Ativan as needed.
5g pharmaceutical grade Omega 3's, 1000IU's Vitamin D3 daily
2 Perianal fistulas, and 1 more suspected. Crohn's only at end of colon, cecum. Remi, Asacol, Salofalk, Imuran, Humira did nada. Built immunity to long-term Cipro use, which also induced panic attacks.

tsitodawg
Veteran Member


Date Joined Sep 2006
Total Posts : 845
   Posted 8/13/2010 11:57 PM (GMT -7)   
I am still laughing about the twistodog, but don't worry tsitodawg is tagalog slang and spelling. As for the NSAIDS, it is something that is pretty much part of the Crohn's bible because of the stomach erosions and blooding thinning. Too many nsaids for anyone is bad but for Crohnies it is especially harmful. To make matters worse if there is rectal bleeding it could be a flare and the nsaids could cause severe damage on top of what is already there. If you are in remission you can probably get away with it for a couple of days but bleeding is not remission. Bleeding is also a sign of active disease and depending on the color and consistency, you can tell what part of the G.I. tract it is coming from. If it is bright red and a few drops or small amount it is probably the colon, rectum, or internal hemmroids. If it is darker then that typically means it is higher up and you have bleeding in the T.I. area or higher. Take it from a guy who has also had bleeding for years and had a full out G.I. bleed, you do not want to make the bleeding worse. There are other tools to combat the arthritis like 6mp, remicade, or methotrexate. Remember that while E.R. doctors are good at getting things under control, many do not know a lot about the long term care of Crohn's disease. I know from my many years on this board that I am not the only one with bad E.R. experiences and looking like a hypocondriac because I know how to treat the disease and what the symptoms I am having typically mean. They treat you like you are crazy until the test results come in and realize you know your stuff. Greys Anatomy did a great job of showing a Crohn's patient a couple years ago when she came in for a G.I. bleed and was not at all thrown back by the fact she was vomiting blood.
Now as for Lost in Translation, please do not needlessly suffer out of pride or the fear of what the medical staff may think of you. You do deserve to be treated just like anyone else that goes to the E.R. and your pain is a legitimate excuse for being there. I have been in the same mind frame that you are and it is so hard. Please know that you are not alone in this and that you have to stop worrying about putting others out by helping you or what they may think of you. A good friend of mine who is wheel chair bound gave me some great advice the other day when we was being honored for my Crohn's fight at a local university. He told me to never be too proud to accept help from others. The blessings that come from serving others are the greatest blessings God has to offer. Who am I to deny them the opportunity to receive those blessings?

Post Edited (tsitodawg) : 8/14/2010 1:00:55 AM (GMT-6)

New Topic Post Reply Printable Version
Forum Information
Currently it is Saturday, December 10, 2016 12:01 AM (GMT -7)
There are a total of 2,735,767 posts in 301,329 threads.
View Active Threads


Who's Online
This forum has 151433 registered members. Please welcome our newest member, teenujohn.
195 Guest(s), 5 Registered Member(s) are currently online.  Details
Georgia Hunter, msOuchie, holo100, joavila92, julymorning


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer