My boy is not in any pain, but every once in a while has a day of puking and Diarrhea. only once in a while though.
We found a Dr. in Edmonton that is willing to prescribe off label LDN. He wants to start slowly(.5mg to start, increasing by .5 every two weeks up to 3 mg) anyone know why the ramp up?
13 year old son diagnosed at 9,
one month of pred at beginning
2 years of immuran ineffective
SCD seemed to help(less pain gained 8 pounds in three months)