New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 8/13/2010 7:14 PM (GMT -7)   
Please accept my condolences on your mother's passing. cry

It sounds as if your loss has been fairly recent: how are you holding up emotionally?

Ivy.
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~

Lori M
Regular Member


Date Joined Aug 2010
Total Posts : 65
   Posted 8/13/2010 7:33 PM (GMT -7)   
Wow, Ivy, thanks so much for your concern! She passed last Thanksgiving day after a long battle with many strange Autoimmune problems (schleroderma being the biggest culprit). I thought I was pretty okay about it until my CD dx, and then all the fears started. Am I on the same road that she was? I don't obsess about it or anything, but the thoughts are there. My Rheumy did many many tests and so far everything looks good so I'm hopeful!
46 years old. Diagnosed with Crohn's August 3, 2010
Started prednisone on 8/4/10 for 4 weeks (40 mg 1st week, 30 mg 2nd week, 20 mg 3rd week and 10 mg final week)
Asacol 1200 mg 3 times a day

ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 8/13/2010 7:43 PM (GMT -7)   
Oh, my goodness. Scleroderma is a frightening illness. I'm so sorry she (and you) had to go through that.

Yes, I can understand why the fears are there. It probably doesn't help that one of the symptoms of grief is the mimicking of the illnesses that killed the loved one, so I'm guessing you were / are probably displaying some symptoms that have scared you a lot, but might not actually be autoimmune and, rather, stem from grief?

Do you have people to talk to about your loss? Do you feel well supported?
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~

Lori M
Regular Member


Date Joined Aug 2010
Total Posts : 65
   Posted 8/13/2010 8:13 PM (GMT -7)   
Oh yes, I have a lot of support. I'm really lucky that way and I wish everyone had the same. I have an awesome husband and I have two sisters and a brother and I'm lucky that we are so close. I am also extremely lucky to be in a very supportive work environment with people that genuinely care about me.

It's not really that I feel like I have any of the symptoms that my mom had - it's more that I think about how much a like we were, both physically and mentally and it's kind of been in the back of my head that well, if my Mom got it, I wouldn't be suprised if I did too. The difference is that my Mom ignored her symptoms for many years and just carried on until her lungs and heart just couldn't do it any more. By then it was too late. She was in her late 60's when all hell broke loose. Had she gotten treatment earlier, who knows? One thing she insisted on before she passed was that I start the process of getting tested for all the abnormalities that she had, which I have done. So I'm at peace with that.

My goodness, you seem like such a caring person - are you in the support field?
46 years old. Diagnosed with Crohn's August 3, 2010
Started prednisone on 8/4/10 for 4 weeks (40 mg 1st week, 30 mg 2nd week, 20 mg 3rd week and 10 mg final week)
Asacol 1200 mg 3 times a day

ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 8/13/2010 9:23 PM (GMT -7)   
No, Lori; I'm just a normal person / patient. But my Mum died fairly recently (well, just a few years ago) so am aware of how devastating loss can be, especially when a person is ill already. And I went to a fantastic grief group where we discussed physical & emotional ways of responding to grief (e.g. mimicking symptoms) and that's why I know (a bit) about this stuff.

Please know that you are surrounded with care and support on this forum. In fact, most of the Crohn's moderators lost their mothers in the last 1-3 years, and many of the regular members have experienced recent loss too.

That's sad about your mother. From what I've read, there wasn't a good understanding of AI issues a few decades ago, and things like lupus were considered to be automatic death sentences, so maybe that's why she just plugged on: maybe she felt as if she had no alternative? Either that, or she was incredibly gutsy: I'm not sure if I could ignore my symptoms and just keep going for decades; could you?

I'm really pleased to know you have a loving family and lots of support from your husband and siblings. That must make a tremendous difference.

Ivy.
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 8/14/2010 8:51 AM (GMT -7)   
Hey Lori,

I too am sorry to hear about the loss of your Mom. I just lost my Mom 19 months ago myself. She didn't have the illnesses your Mom did, but died after a series of strokes. I, like I am sure you do, miss her terribly. I always want to talk to her about something then remember she is gone.

I am glad that you have gone forward and done the testing to at least give yourself some peace. And I too am glad to hear that you have a supportive husband. I have the most loving and supportive husband and he makes life worthwhile. Just wanted to welcome you to the forum.

Hugs
Gail*Nanners*
Gail*Nanners* Co-Moderator for Crohns Disease 
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Lori M
Regular Member


Date Joined Aug 2010
Total Posts : 65
   Posted 8/14/2010 4:17 PM (GMT -7)   
Thanks Gail and Ivy. What a couple of great Mods this board has!
46 years old. Diagnosed with Crohn's August 3, 2010
Started prednisone on 8/4/10 for 4 weeks (40 mg 1st week, 30 mg 2nd week, 20 mg 3rd week and 10 mg final week)
Asacol 1200 mg 3 times a day
New Topic Post Reply Printable Version
Forum Information
Currently it is Sunday, December 11, 2016 2:58 AM (GMT -7)
There are a total of 2,736,256 posts in 301,364 threads.
View Active Threads


Who's Online
This forum has 151454 registered members. Please welcome our newest member, rmk1990.
160 Guest(s), 4 Registered Member(s) are currently online.  Details
Heatheranne87, rockyfords, rmk1990, gilly2


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer