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mlatida
Regular Member


Date Joined Aug 2010
Total Posts : 129
   Posted 8/13/2010 11:39 PM (GMT -7)   
Does anyone else suffer from periodic pain during sex? It gets so frustrating because sometimes I'm not even having stomach pains until we are "in the process". Is there a way of elevating the pain? I feel so guilty when we have to stop or not even try because it's an important bonding experience in a relationship. What can I do so I don't feel inadequate?

Ashworthml
Regular Member


Date Joined Jan 2010
Total Posts : 222
   Posted 8/14/2010 1:59 AM (GMT -7)   
If I know we are going to have sex sometimes I take pain tablets first, it does help some times.
Michelle 40 years old
Diagnosed with CD 2004 (undiagnosed correctly +- 3 years, wrongly diagnosed with IBS)
Bowel resection 2005
medication: pentasa 500mg , Co-codomol 500mg/32mg codeine
loperamide 2mg (prn - take as many as 10-20 a day)
calcium tablets, multivitamin tablets, Omega 3
Ferrous sulphate(anaemia)
levothyroxine (thyroid)
questran light (3 sachets/day), 3 monthly B12 Injections

mlatida
Regular Member


Date Joined Aug 2010
Total Posts : 129
   Posted 8/14/2010 9:17 AM (GMT -7)   
I've seen my gynecologist about the pain, and she said there's nothing that she can see going wrong down there. I've asked my GI doc about the pain, and she didn't have any answers either. It's a really big problem, and being on prednisone right now, it really makes me paranoid that the relationship is going to come crashing down because of me and my inadequacies. What to do!?!?

nawlinscate
Veteran Member


Date Joined Jan 2007
Total Posts : 656
   Posted 8/14/2010 9:29 AM (GMT -7)   
Like Ashworthml, I have to plan for lovemaking by taking my pain meds a couple of hours beforehand. With a permanent fissure, lower left quadrant discomfort, painful joints, overwhelming fatigue, and plenty of stress, pain meds are the only way I can relax enough to have anything resembling a good time.

Ashworthml
Regular Member


Date Joined Jan 2010
Total Posts : 222
   Posted 8/14/2010 9:32 AM (GMT -7)   
I had the same fears but am sure your partner will be understanding, explain to him that it is some times painful and also with being on steroids that also suppresses your sex drive as well. Your not the only one that has these thoughts, I feel the same a lot of times but I am very lucky to have a partner that will 'wait' til the time is right for me and is very patient.
Good luck and wish we had all the answers!
Michelle 40 years old
Diagnosed with CD 2004 (undiagnosed correctly +- 3 years, wrongly diagnosed with IBS)
Bowel resection 2005
medication: pentasa 500mg , Co-codomol 500mg/32mg codeine
loperamide 2mg (prn - take as many as 10-20 a day)
calcium tablets, multivitamin tablets, Omega 3
Ferrous sulphate(anaemia)
levothyroxine (thyroid)
questran light (3 sachets/day), 3 monthly B12 Injections

FunGuy
Veteran Member


Date Joined Oct 2009
Total Posts : 1070
   Posted 8/14/2010 7:51 PM (GMT -7)   
I have had similar experience from the other side of this, male that is.  I can be feeling kind of OK when relaxing but when it gets down to business my gut will hurt and make me unable to "enjoy" the sexperience smilewinkgrin .
 
I think this shouldn't happen if your CD is under control.  I am not having that problem now with the Remicade.  In any event make sure you have used the throne before you begin.  Use positions that are relaxing and not athletic for you.  If that doesn't work and it is the bonding you are concerned with there are other ways to satisfy your partner.......
 
One other thought: Lots of foreplay so that when the time comes for the actual sex it will be over faster.  I hope this makes sense and helps because I hate having to discuss this so openly.  blush   
 
Oh and as others have said your partner should be understanding. 

mlatida
Regular Member


Date Joined Aug 2010
Total Posts : 129
   Posted 8/14/2010 8:58 PM (GMT -7)   
Thanks for the advice. So the pain should go away as my Crohn's gets under control? Anyone experience this as a permanent problem?

tsitodawg
Veteran Member


Date Joined Sep 2006
Total Posts : 845
   Posted 8/15/2010 12:29 PM (GMT -7)   
mlatida, listen to what funguy said because his advice was right on.It is a bonding moment for you and a chance to take your time with foreplay before the actual sex. Most guys are all about that and exploring so this could be really fun and adventurous for both of you. Try not eating too much before so that you do have more room and less pressure. Also there are different positions that let you decide and control the situation. My wife does not have Crohn's but she has similar issues because she is a smaller woman. We have learned to take it slow and to let her take the lead. Remember that guys are not that hard to please and we enjoy intimacy differently than most women. We are less emotionally involved and more physically involved so Funguy's advice makes complete sense.
Also don't feel bad about turning him down once in a while if you are too sick or in pain. As guys we are built for rejection. I don't know a husband in the world that has not heard his wife has a headache. Infact I had a neighbor tell me once that he is really concerned about his wife because she has had the same nightly headache for 45 years. Funguy, I can totally sympathize with you about it from a guys standpoint. My wife used to take it personal when I would turn her down and thought that it was because she was not beautiful. Then she started learning more about the disease and had a bad case of the flu where she had to take bentyl for stomach spasms and D. She now completely understands and it has made things a lot better. Even as a guy, if I know that we are having a special night, I try to eat light or not eat at all until afterwards because of similar pain.

misspriss82
Regular Member


Date Joined Mar 2008
Total Posts : 221
   Posted 8/15/2010 3:25 PM (GMT -7)   
I have had the same problems!! I used to be able to enjoy sex with my husband, but since I got diagnosed with Crohn's, I have had so much pain that I have a hard time now.  I too asked my ob/gyn about this and she didn't say anything was wrong, but that sometimes with Crohn's things in the body can be "inflamed", therefore potentially causing intercourse to be somewhat discomfortable. 
    I am on 6mp now and have no "drive" at all, I feel horrible about it, but what can you do?  I feel better knowing I'm not the only one, but that doesn't change my feeling guilty for not being able to be the person I was before I got this horrible disease!
  
28y/o F, diagnosed with Crohn's Disease at 25 y/o , 2000 units of Vitamin D , 1500 Units of Calcium
60mg of 6-MP once daily since Feb. 2010
 
 

MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 8/15/2010 4:56 PM (GMT -7)   
My goodness yes it is so darn painful. In a way I have given up.
Forum Co-moderator - Crohn's Disease/Thyroid Disorders: All comments have the caveat contact your local health care provider.
I will find a way or make one. –Phillip Sidney 1554-1586
All that I am and all that I shall ever be, I owe to my Angel Mother.
The Bucket List- Have you found joy in your life? Has your life brought joy to others?
Make sure your suffering has meaning…

onthecan
Regular Member


Date Joined Mar 2009
Total Posts : 318
   Posted 8/15/2010 8:03 PM (GMT -7)   
Sure this could be coming from your crohnes disease however I had the same pain and worries wondering if I will have an accident than u stress about and its bound to happen I to take my pain meds before hand but my husband is from Italy and loves to make love on the spur of the moment,,and I do cause I love him but he always stops cause he knows I'm in pain and not enjoying it what so ever and sex is a very part of our relationship just like many others,,so I thought instead of going to my regular doc or my GI doc I called my ladies doc that is what I call her and she is great and always makes me feel like this is normal,but she still wants to run some tests and we all know how much fun those tests r like well I'm happy I did cause it turns out I have endrometreotis (CHECK MY SPELLING ON THAT I WISH THEY USED SMALL SHORT WORDS LIKE CAT OR PIG LOL),,,so in a nutshell u have really bad pain while making love in the lower belly and the pelvisI also had some bleeding durning sex,,with heavy periods one of the first signs and the pelvic pain and some lower back pain,,what it is is scare tissue stranging the tubes and ovaries,,,shortly after I had it removed and had a period 4 what seemed like a decade lol more like a few short weeks and started on the depo neddle sex is fun again and it don't hurt anymore and the other bonus is I never had a period since 5 years and no I don't miss it at all lol...Just another direction u should look into it worked 4 me I hope u get help soon...~Jen~ AKA~onthecan~
Had Crohns 17 years had numerous bowel resections,fistulas,fissures,hemmies,kidney problems,fibro,arthritis,dignosed at 13 had GI feeding tube,nasal feeding tube,cental lines,ports,4 ruptured bowel emergency surgeries,TMJ,depression,current meds are Hydromorphone,30 ,Hydromophome,8 ,Ketoprofen,100 ,Trazadone,50 ,Lorazepam,10 ,Zopliclone,5 ,atriplyine,75 ,Losac,50 Tylenol Athritis ,B-12 injections ,Iron injections ,Gravol,75 Predisone,5mg ,Humira,40mg once a week.Still looking for the doctor with all the answers if you find him forward him to me please.P.S my bathroom is the nicest room in my house cause i spend so much time there,i am thinking about installing the computer and maybe a hot-dog stand.

jeanneac
Veteran Member


Date Joined Feb 2009
Total Posts : 1812
   Posted 8/16/2010 8:41 AM (GMT -7)   
Have you tried astroglide or lubricants to see if that helps? This has affected my sex life too, I am sorry to say. We are older and my husband is very understanding, but still, I miss having a more active sex life. Menopause doesn't help much either. lol... People have offered great advice here. I hope something will work for you. Don't give up on this issue and trust your instincts.
d 1/09 with colitis sigmoid colon with some diverticular disease as well
IBS, high BP, fibromyalgia, Mixed Connective Tissue Disease
claritin, diovan, progesterone, VSL#3 probiotic, Vit. D, colazal, omeprazole for reflux.
Blood test positive for Crohn's via prometheus ibd serology panel ASCA
Positive ANA.
Currently on flagyl and it is helping. Have apt with surgeon soon

FunGuy
Veteran Member


Date Joined Oct 2009
Total Posts : 1070
   Posted 8/16/2010 9:05 PM (GMT -7)   
Dawg and others: It helps me to know that we are not alone in these problems. Trying to have sex while gremlins keep punching you in the stomach etc etc. Common theme seems to be 1-Love means understanding as well as 2-creative acts or positions that don't hurt and much foreplay so that the act itself is shorter in duration and hopefully over before it hurts 3- Doing what you can to minimize the disease by not eating, using bathroom first, being intimate at the best time of day for you or taking a pain pill.

So why does it hurt? I would think that the bouncing and muscle strain and pressure from close contact. I know that I can't run when I flare, the bouncing of my gut hurts. When I had an acute flare just the act of rolling over was nearly unbearable. Make sense then?

I sure hope this helps some of us. I'm done with this topic for a while. Shy Guy

I wish you all better health and whatever Dr. Ruth would have said.

SaraOnThisSite
Regular Member


Date Joined Feb 2006
Total Posts : 211
   Posted 8/18/2010 8:24 PM (GMT -7)   
I would definitely agree with the others who have mentioned the painkillers, theyve definitely helped in the area.  I mean, it's hard to be into sex if you're in pain right?
 
25 year old female, diagnosed with Crohn's in 2002 after being misdiagnosed with Lyme Disease for a year.  Have been on Prednisone, Asacol, Entocort, Remicade, random antibiotics (cipro, flagyl, avalox, etc), and Mercaptopurine,  (even the lowest dosage was messing up my liver, argh) in the past.
 
Currently on Predisone and (finally!) just started Humira.

Sniper
Veteran Member


Date Joined Feb 2004
Total Posts : 6518
   Posted 8/18/2010 9:35 PM (GMT -7)   
SEX ???? not painful for me ...What is it again ? I forget ...
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.

MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 8/19/2010 2:46 PM (GMT -7)   
The last time I hemmoraged (after being sexually active for quite some time) so darn bad I ended up in the hospital, and the doctor said it is because the vaginal canal and the poop chute are so close together that when crohns is bad it can inflame the entire area (the swelling from crohns had litterly moved an ovary 3 inches and the vagina down 2 inches in the process of less then a year). Sure as heck did not think I signed up to become a Nun, but looking that way for several years now...so not cool in your twenties and thirties. :(  Needless to say that is one of the reasons why I am not married right now.
Forum Co-moderator - Crohn's Disease/Thyroid Disorders: All comments have the caveat contact your local health care provider.
I will find a way or make one. –Phillip Sidney 1554-1586
All that I am and all that I shall ever be, I owe to my Angel Mother.
The Bucket List- Have you found joy in your life? Has your life brought joy to others?
Make sure your suffering has meaning…

Post Edited (MMMNAVY) : 8/19/2010 9:12:27 AM (GMT-6)


onthecan
Regular Member


Date Joined Mar 2009
Total Posts : 318
   Posted 8/19/2010 3:57 PM (GMT -7)   
MMMNAVY said...
The last time I hemmoraged (after being sexually active for quite some time) so darn bad I ended up in the hospital, and the doctor said it is because the vaginal canal and the poop chute are so close together that when crohns is bad it can inflame the entire area (the swelling from crohns had litterly moved an ovary 3 inches and the vagina down 2 inches in the process of less then a year). Sure as heck did not think I signed up to become a Nun, but looking that way for several years now...so not cool in your twenties and thirties. :(  Needless to say that is one of the reasons why I am not married right now.
turn   turn turn I'm so sorry 2 hear this Navy omg that must have been so painful,,and u r right about the 2 parts its a good job we all can talk about this stuff so openly,,r parts again that r 2 close when ever me and my husband make love which would b ever momet of the day if he had his way lol I get so much pressure on my bum u know that I tense up and get scared and push him away cause I'm scared I'm going 2 have an accident,,which I did 2 many times 2 mention but he don't seem 2 mind we always make a joke out of it but it still hurts me when he goes 2 sleep I get up and sleep on the couch and cry silly I know but if anyone does u guys will,,,Like I have mentioned in many of posts I have been very sick now for 6 and a half months and had a double bowel resection and a triple hernias repair done and don't have much control over my bowel since and I'm young 2 I guess I think I am I'm 35 but still get ID @ the liquor store BONUS and to top things of I now have short bowel syndrome and I'm getting another TPN put in very soon once the infection clears up so there is always that 2 throw into SEX,,,I have found that everyone had some really great advise on this post,,,One thing that I did find that helped me was apin meds before and a hot bath,,also the postion in which we choose I tried sitting on the end of the bed with my bum fully on the bed and u can figure out the rest but it takes the pressure of the BUM I tell ya I hope this helps someone...Navy u will find someone someday who will sweep u of your feet and he won't give a poop no pun intended if u have 2 stop in the middle of it or not and like guy said men r more into foreplay and touching carressing fondling we all know what they want in the end,,,but Navy u will find your guy I feel it and when U do I want u 2 get a web cam and prove 2 all these single women and men on here there is good people out there that will love u 4 u and what ever comes with it...))))HUGS((((     tongue tongue tongue ~Jenn~

Had Crohns 17 years had numerous bowel resections,fistulas,fissures,hemmies,kidney problems,fibro,arthritis,dignosed at 13 had GI feeding tube,nasal feeding tube,cental lines,ports,4 ruptured bowel emergency surgeries,TMJ,depression,current meds are Hydromorphone,30 ,Hydromophome,8 ,Ketoprofen,100 ,Trazadone,50 ,Lorazepam,10 ,Zopliclone,5 ,atriplyine,75 ,Losac,50 Tylenol Athritis ,B-12 injections ,Iron injections ,Gravol,75 Predisone,5mg ,Humira,40mg once a week.Still looking for the doctor with all the answers if you find him forward him to me please.P.S my bathroom is the nicest room in my house cause i spend so much time there,i am thinking about installing the computer and maybe a hot-dog stand.
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