CD,constipation,joint pain and fatige

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drake232
New Member


Date Joined Aug 2010
Total Posts : 2
   Posted 8/14/2010 10:13 AM (GMT -7)   
Hi- new mwmber here. 30+ years with CD, resection 25 yrs ago. Don't have D anymore but have been bothered with constipation, joint pain  and fatigue for many years. Was hospitilized a few times in the last 10 years for blockages. Had remicade 5 years ago- worked for a little then got side effects. Switched GI's who ran every test he could and claimed I didn't have crohns or not active. Took me off all meds and the severe pain decreased but began to get worse. I took some blood test which indicated crohns and now GI put me on humera. I am tired of being tired. Mentally- this is just getting hard. If humera doesn't work then what. My reg Dr has run tests for other thing and ruled out everything else. It use to be I would feel OK for 3 months and run down for 1. Now its the other way around. Thanks- just wanted to vent a little.

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 8/14/2010 10:25 AM (GMT -7)   
Hi Drake232 and welcome to the Healingwell forum. I think fatigue has to be one of the biggest issues with this disease. If you look thru the first pages of posts you will see a post by Ivy6 that is an excellent brochure on chronic illnesses and fatigue. I will try to bump up the post for you to read. I think if you have pretty good luck with Remicade you should do well with the Humira.

But even in remission, I can tell you fatigue will be a big issue for you.

Hugs
Gail*Nanners*
Gail*Nanners* Co-Moderator for Crohns Disease 
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

mlatida
Regular Member


Date Joined Aug 2010
Total Posts : 129
   Posted 8/14/2010 9:11 PM (GMT -7)   
Man, you have been through a lot! I never had surgery and just dealing with my first major flare up since I was diagnosed in 2008, and I still understand the 'tired of being tired'. I wish they had a manual for this! Everyone says, "Just take it one day at a time," but they don't know how long a day of pain and fatigue feels like. How are your vitamin B levels? The best thing I've found for tired and painful muscles and joints is a bath with Epsom salt. You can get it at any pharmacy.

You are tough, and it sucks that you have to deal with this.

mlatida
Regular Member


Date Joined Aug 2010
Total Posts : 129
   Posted 8/14/2010 9:16 PM (GMT -7)   
Here's some reading material that might help explain a bit more about fatigue and ways to combat it:

http://www.rdns.org.au/assets/research/Chronic_illness_docs/Booklet_Fatigue.pdf


You are NOT alone!
 
*activated your link*

Post Edited By Moderator (Nanners) : 8/15/2010 8:36:40 AM (GMT-6)


drake232
New Member


Date Joined Aug 2010
Total Posts : 2
   Posted 8/15/2010 1:17 PM (GMT -7)   
Thanks for the words and advice. I have a 9 year old boy and its hard for him to understand the fatigue so its sometimes hard to keep up with him. I also use to run a lot- in fact I've ran marathons but now the joint pain and fatigue hold me back. its only been 1 week on humera so I'll hope for the best and deal with whatever.

ZenaWP
Veteran Member


Date Joined Aug 2007
Total Posts : 884
   Posted 8/16/2010 9:08 AM (GMT -7)   
drake, welcome.  You asked what you could do if the Humira doesn't work...Cimzia is another option and is similar to Humira.  It is used for both Crohn's and RA, so it may help with the joint pain as well.  It worked for me for a while and then stopped helping much with the arthritis.  I would suggest seeing a rheumaotologist for the joint pain...there are several other options of meds out there for arthritis, but you will need to consult with your GI on these as well, as some of them can make the Crohn's flare.  It has proven difficult to treat my arthritis without making the Crohn's worse or elevating my liver enzymes, so I sure hope the Humira works for you!

Crohn's Disease with Arthritis, Non-Erosive Reflux Disease, Gastritis, Hashimoto's Thyroiditis, Endometriosis, Depression/Anxiety 

fongers06
Regular Member


Date Joined Jul 2008
Total Posts : 82
   Posted 8/17/2010 8:54 AM (GMT -7)   
drake I can sympathize with you.  I have four kids 13, 9, 6 and 4.  The other day they were wanting to do something before they headed back to school and I told them I was tired and my oldest muttered , "what else is new".  It broke my heart, but how can I get kids to understand when other adults can't even understand how tired you are.  Hang in there and I hope things start looking up for you.
Diagnosed with Crohns in May 08
Resection in November 08
Currently on Humira, Entocort, Zoloft, Ritilan SR, B12 injections, Cytomel, Calcium and Vitamin D
Married, mother of 4 that works part time
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