Hey minou, I hope your infusion goes well this week. Keep me updated. What was your first surgery? What meds have you been?
mlatida: For me I haven't had any short term side effects of Remicade at all, neither on the infusion days themselves and neither on any days after the infusion. My situation was that even before my first Remicade infusion I was pretty symptom free except for a lot of fatigue but I had a 2nd CT scan done about 3 months after the CT scan that initially diagnosed me and it showed that my inflammation had gotten extensive and my GI said that my pred and pentasa were not working and that my 2 options left would be a biologic or a resection which he didn't want because the CT scan showed too much of my small intestine was affected. He gave me the choice between Remicade and Humira. I told him hes the expert and whatever he thinks is best, he said Remicade because he has gotten better results with it. It was really difficult to convince myself to get Remicade in the beginning after reading the endless list of side effects even though most of them were rare, especially because I wasn't even having a lot of symptoms and the days leading up to my first infusion were very difficult because of the dilemma but I didn't really see an option since I didn't want a resection so I had to do it. It seems to be working well for me, no short term side effects at all and just hoping and praying that I wont develop any of the rarer serious long term side effects. Even my fatigue has subsided now and i eat whatever I want although I eat generally healthy. I am also taking 125 MG of Imuran daily btw since April. Im getting an ultrasound done after my 4th infusion to see what the situation is with the inflammation. GI says he doesnt want to give me a CT scan because I have already had 2 and it has a lot of radiation.
21 year old male, Diagnosed with Crohn's in Feb 2010.
Previous Meds: Prednisone, Pentasa. Meds did not work apparently and inflammation became more extensive so I had to start on the current meds.
Current Meds: Remicade (done 1 infusion) and Azathioprine 125 mg. Have been symptom free for 2 months even before the Remicade and Azathioprine.
Trying to eat natural foods, avoiding red meat, dairy, spicy, fried foods and refined sugar. Interested in trying to figure out if there is a way to get off medicines and achieve/maintain remission with diet.