Tell me your experiences with TNF-alpha inhibitors.

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Regular Member

Date Joined Aug 2010
Total Posts : 129
   Posted 8/16/2010 7:03 PM (GMT -6)   
I need to make up a decision about which inhibitor to go on after having a severe Crohn's flare after having mild, break-thru symptoms on methotrexate. I'm a grad student so time and money are important to me. I tend to be sensitive to meds- I always get the lovely side effects... (Yeah, let me tell you about how great it is being on Prednisone right now!)

Tell me your experiences with TNF-alpha inhibitors. Cost? Risks? Side effects? How did you make your decision?
Diagnosed with Crohn's disease March 2008. Battled a C. diff infection from Summer 2009-Spring 2010. Have been dealing with a severe flare for the past several weeks.

Veteran Member

Date Joined Aug 2007
Total Posts : 1202
   Posted 8/16/2010 8:31 PM (GMT -6)   
Cimzia has a program - The Cimplicity Program - which has covered my copay for the entire year and a half that I've been on it. I also perfer it for the ease of the shots. It's two shots every 4 weeks. You have to be able to poke yourself (or have someone else do it, like a friend/family/nurse) but the shot itself doesn't hurt.

There are a few other threads where the Remicade-Humira-Cimzia choices were discussed.
1 fistula with two tracts, crohn's colitis, limited to large intestine
Compounded budesonide 3mg/daily, Cimzia. Dx Osteoporosis 10/08 started Forteo 1/27/09

Regular Member

Date Joined Apr 2009
Total Posts : 382
   Posted 8/17/2010 8:48 AM (GMT -6)   
they usually start you on remicade because they have the most safety data on it (about 10-15 years). some GIs start people on humira first because you can do it from home and it's overall cheaper. i've only been on remicade and i can say it's a hassle as a student to take 2 hours out of your day to go to the hospital and get it done. the place i went to didn't offer it on the weekends either. i'd do humira.
Crohn's diagnosed 6/08
Organic SCD since 4/09
Remicade from 6/09 to 4/10
Low-dose naltrexone since 7/5/10
Boswellia + Natren's Healthy Trinity probiotic + Cinnamon + Wild Oregano Oil + vitamin D

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 8/17/2010 8:56 AM (GMT -6)   
Please see Ivy's med post. I think you will find all the answers you need there. Thanks! (And its on the front page of the forum)
Gail*Nanners* Co-Moderator for Crohns Disease 
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Veteran Member

Date Joined Mar 2008
Total Posts : 1766
   Posted 8/17/2010 10:30 AM (GMT -6)   
Do you have any type of health insurance? I know Remicade has a rebate program. But infusions typically take a few hours. My professors in undergrad never had a problem with me skipping class for medical reasons. I registered with my grad school's disability services as well, so hopefully my grad professors won't have a problem.

Everyone reacts differently to all the Remicade side effects: chest tightness, joint pain (in the wrists), migraines. I have to take Zyrtec a week before and after, slower infusion rate, and extra tylenol for the migraines. I keep taking it b/c there's no way I could function without it!
Female, Age 21
Remicade, Asacol, VSL #3 DS, Vitamin D, Calcium, Prozac, Turmeric, Biotin, Zyrtec
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