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fitefire
New Member


Date Joined Aug 2010
Total Posts : 2
   Posted 8/16/2010 6:16 PM (GMT -7)   
hey everybody i have had crohns since 8/08 i have taken ever pill out there but with some relief i have been on humira for 5 months it works but 3-5 day before the next injection it stops working. my doctor wants me to start rimicade any one have any stories or side affects about rimicade thanks

dawinner
Regular Member


Date Joined Apr 2010
Total Posts : 29
   Posted 8/16/2010 8:23 PM (GMT -7)   
I am gona take my 4th infusion of Remicade in a couple of days, I have had no side effects from it and it seems to be working for me symptom wise, I will have a scan in a couple of days to see if it has improved my inflammation or not. I hope it works for you.
21 year old male, Diagnosed with Crohn's in Feb 2010.
Previous Meds: Prednisone, Pentasa. Meds did not work apparently and inflammation became more extensive so I had to start on the current meds. 
 
Current Meds: Remicade (done 1 infusion) and Azathioprine 125 mg. Have been symptom free for 2 months even before the Remicade and Azathioprine.
 
Trying to eat natural foods, avoiding red meat, dairy, spicy, fried foods and refined sugar. Interested in trying to figure out if there is a way to get off medicines and achieve/maintain remission with diet.

FunGuy
Veteran Member


Date Joined Oct 2009
Total Posts : 1070
   Posted 8/16/2010 9:11 PM (GMT -7)   
Keep in mind that on a forum like this you are much more likely to hear negative stories and experiences.  Folks who are Hunky doorie (how the heck do you spell THAT!) don't log in to the forum to say how dandy everything is.  They log in when the stuff hits the fan and they need help or comraderie.
 
Very good video here about Remicade risks etc.
 

Becky77
Veteran Member


Date Joined Dec 2005
Total Posts : 1768
   Posted 8/16/2010 11:25 PM (GMT -7)   
I was on Remicade and had no problems with it. It lessened the frequency of my obstructions while I was on it. The reasons I switched to Humira were mostly financial. My copays for infusions were much higher than the prescription cost for Humira. Also the drive (gas money too!) and time associated entered into the equasion. I would get stuck in traffic either getting to or getting home from infusions and sit on the interstate for 1 1/2 hours. It took a minimum of 5 hours per infusion, and I traded all that for injecting myself.

Compared to any meds I was on before Remicade, it did wonders. I was having obstructions every 2-3 months prior to remicade. Being on it decreased the stricturing enough that I had them only twice a year while on it.

I did end up having to take meds before the infusion (I think benadryl, but it's been a long time, so I don't remember) because I had a slight reaction to the infusion, but taking a pill just before the infusion wasn't an issue for me, and I have to take benadryl before Humira shots now.
Becky

32 yr old female-dx with Crohn's in '97 after emergency resection and appendectomy, 2nd resection '05, Bilateral pulmonary emboli 10/09
Currently on Humira, Omeprazole, Effexor, Seroquel, Calcium, Vit D
Coumadin stopped 3/15/10!!!!

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 8/17/2010 7:07 AM (GMT -7)   
Please see Ivy6's medication post. I think you will find your answers there. Thanks.
Gail*Nanners* Co-Moderator for Crohns Disease 
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*
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