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bishbash
New Member


Date Joined Jun 2010
Total Posts : 2
   Posted 8/18/2010 5:56 AM (GMT -7)   
Hi everyone. I am new to this forum so I will tell you a bit about myself. A few years ago I enjoyed relatively good health (except for a mild stroke in 2003 and hypertension). In 2005 I ate at a restuarant that turned out to be one of the worst rated in the U.K. ( but I was unaware of this at the time). I contracted c.diff from contaminated food and then this morphed into crohn's disease. Before my diagnosis, I had another stroke, which was quite major due to dehydration caused by the crohn's. I am currently taking mesalazine, azathioprine and an elemental diet. At the moment I am so unwell that I am unable to eat (I haven't had a solid meal since June). My gastroenterologist is completely blase about my condition. She wants me to start taking infliximab eventhough there is a risk of me having another stroke. I am currently under a private doctor who is supposed to be an expert in Low Dose Naltrexone. I am currently weaning myself of the mesalazine and the azathioprine. I am on a very low dose of LDN (1 mg, since Saturday). Everything was okay until this morning when I started to bleed a bit.My private doctor is very gloomy about my chances of success in terms of weaning myself of the conventional drugs. I am thinking of giving the LDN a rest for a couple of days as I don't want to go back into hospital. The only thing that has helped in the past few months is the elemental feeds. I really don't want any more prednisalone. Does anyone have any advice please?

kazbern
Veteran Member


Date Joined May 2010
Total Posts : 8375
   Posted 8/18/2010 9:06 AM (GMT -7)   
Sorry for your illness, bishbash. I don't have any advice - I use the 5-ASA meds and sulfasalazine, nothing as advanced as LDN or the biologics (yet).

I wish you a return to good health soon.

bishbash
New Member


Date Joined Jun 2010
Total Posts : 2
   Posted 8/18/2010 9:38 AM (GMT -7)   
Thanks.LDN isn't really advanced and has been around alot longer than Infliximab (humira). It is an immune booster, I believe, originally used to treat alcohol addiction. It is more commonly used to treat MS but in the US and other countries, it is also used to treat crohn's and other auto-immune diseases. It is more difficult to get it prescribed in the UK.
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