This is my current status.
I went for my Neurologist appointment. He thinks the root cause is viral. He also said that many of his patients have CD and although these symptoms cannot be blamed directly on CD, that the compromised immune system of CD folks is most likely why this is happening. He said he has seen this mostly in CD folks feet and wrists.
He put me on Metanx, and I am going to have a conductive test then he expects to put me on more steroids. He does not expect this to be permanent and I should get 90% back within 6 months and more over the following 3 years. Two points on the meds. I looked at the generic for Metanx and it seemed from everything I could find that the generic does not contain the active ingredient that I am taking the med for, so from what I could read, this is one where the generic is not an option. Second point, I told him I am not going on Prednisone again. I just cannot stand it. He said he will come up with another option in consult with my GI and then we might add Low Dose Lithium (LDL) to offset the steroids. Can anyone give me insight into LDL?
After the Neurologist I went to the GI. She pushed on my gut (lower bowel) where my issues are. Guess what NO PAIN!!! Although the prednisone is kicking the heck out of me, and the SCD is a bit of a pain and the Pentassa is way too expensive…. I really really think I am making big progress. I now am experiencing very little daily pain and little to no D. YEA.
Thanks to all
Was on Kapidex, and Pentasa, multi Vit, Vit D. Started on Predisone and my legs started paining with loss of control. Doc stopped all meds until I can figure out what is happening with my legs. Off meds for 4 weeks. Back on 20 MGs of Pred. Starting to see Neurologist for legs as GI does not really know what is happening.