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ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 8/18/2010 2:03 PM (GMT -7)   
Just a short one at this point because I have an early start this morning redface .

* stop mentally moaning about early start, and think instead about why this is part of my long-term goals yeah
* shower and dress. Bonus points if I put on makeup.
* try to get the kitchen looking tidier before I go. Failing all else, fill sink with soapy water and throw plates in there to soak, so that the HORRIBLE ants are less likely to crawl on them (there must be more rain coming: they still haven't decamped)
* try to air bed before I go. Bonus if I make it.
* put shredder in car so I can take it back to the shop and complain about how pathetic it is

After meeting:

* crawl into bed and read?
* try to eat vegetables


Will try to add more later.

Choc, I'm glad your hands are feeling better. So sorry about the surgery, but I suppose this helps explain why you've been feeling so horrid lately, despite the Humira. Have you done Infliximab yet?

Ivy.
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~

vixen
Veteran Member


Date Joined Jan 2010
Total Posts : 794
   Posted 8/18/2010 2:24 PM (GMT -7)   
Couple of hours to go until Thursday-it's gonna be a busy one!
First off, take son in to school to pick up his exam results
Take him to hospital(approx 30 miles in opposite direction to school) for consultants appointment, followed shortly after by a dieticians appointment.
Act as his taxi in the evening as he will he either celebrating or commiserating with friends.
In between this will attempt to get house straight after husband's departure this evening
Don't you just hate it when you have days like that!

ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 8/18/2010 2:33 PM (GMT -7)   
Fingers crossed for your son, Vixen.

I am seriously thinking about not going to this meeting this morning. It's a volunteer thing, and I haven't missed anything yet, but this has been an incredibly long week with incredibly long (for me) hours, and I'm going to get sick if I keep on...
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~

Becky77
Veteran Member


Date Joined Dec 2005
Total Posts : 1768
   Posted 8/18/2010 5:37 PM (GMT -7)   
Ivy-don't overdo it! You need to put your health first so you don't get sick!!
Becky

32 yr old female-dx with Crohn's in '97 after emergency resection and appendectomy, 2nd resection '05, Bilateral pulmonary emboli 10/09
Currently on Humira, Omeprazole, Effexor, Seroquel, Calcium, Vit D
Coumadin stopped 3/15/10!!!!

ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 8/18/2010 7:08 PM (GMT -7)   
Thanks, Becky. You'll be pleased to know that common sense prevailed, though I do feel guilty. I got part-way through the dishes and realised I wouldn't be able to get showered and dressed, let alone to a 9 am meeting and home again intact, so tucked myself back into bed with the electric blanket and two *very* happy cats, and have been there for most of the morning, reading.

I managed to declutter a few unwanted books in the process, so that's progress on several fronts.

And you know what? It's cold, and I'm tired, and I'm seriously considering going back there shortly :-).

Thanks for the positive reinforcement, Becky. I needed that.

Ivy.
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~

Becky77
Veteran Member


Date Joined Dec 2005
Total Posts : 1768
   Posted 8/18/2010 8:54 PM (GMT -7)   
Finally...got to Walmart and cleaned the stove!!! How many days in a row did I have them on the to do list?

For Thursday:
*get up at a reasonable hour...before noon
*finish vacuuming house
*clean bathroom (I'll be happy to see it clean again)
*work a little in the yard, get some of the grass cut
*start a new book
*reschedule dentist appt
*call dr and give new cell number and check on results

Glad to hear you relaxed Ivy! You probably needed it. Sometimes we need to pamper ourselves and read in bed...so relaxing!!
Becky

32 yr old female-dx with Crohn's in '97 after emergency resection and appendectomy, 2nd resection '05, Bilateral pulmonary emboli 10/09
Currently on Humira, Omeprazole, Effexor, Seroquel, Calcium, Vit D
Coumadin stopped 3/15/10!!!!

chocholic
Veteran Member


Date Joined Apr 2006
Total Posts : 634
   Posted 8/19/2010 3:56 AM (GMT -7)   
Hey guys,

Ivy - yep have been on infliximab, was on it for a year but had a massive reaction to it. Not pretty!!
My quality of life isnt really really bad right now, but i am still eating. Normally i get bad and i stop eating. I think i'm still eating cos i'm on the mirtazapine. I do get 'background' pain which isnt bad enough to take anything for, but can last for hours. On the other hand, surgery could help me get back into work. even if its only part time.

Whatever i decide to do, i'm going to meet with the surgeon anyway. He can give me a better idea of whats involved, it seems that not every person has an N.G tube or a catheter ect. Plus i can see if the surgeon will cope with some of my quirks.

Thursday TLC

* shower and wash hair
* dishes
* call GI secretary to ask to be refered to surgeon
* remember to have lunch
* keep drinking
* call benefit office to see whats happening
* REST, been so very tired lately
Dx - Crohn's (2006), Depression (2010)
Currently - Humira fornightly, iron infusion weekly, B12 3 monthly, prenatal vits+minerals, 15mg prednisolone, calcium supplement, mirtazapine
Tried - aza, pentasa, questran, infliximab
No crohns' surgeries to date, Episcleritis for 3 weeks x 2, pains in hands, wrists, hips, lower back, knees and ankles

Allergic to Infliximab
Was at uni, but have paused the course to try to figure out my health!

ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 8/19/2010 4:06 AM (GMT -7)   
What happened with your reaction, Choc? Was it a delayed one, or did you react while infusing?

Mine was a delayed one: bad reactions are scary, aren't they?

I've read a lot, done a bit of reading, done a bit of work on a long-term project. Have done a tiny bit of cleaning, but no more than about two minutes of exercise, which is pretty dreadful really. Still, a rest day is supposed to be for rest, innit?

Chocholic, I hope you get to rest too, and that you can feel a little better by evening.

Going to bed now - 'night.

Ivy.
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~

chocholic
Veteran Member


Date Joined Apr 2006
Total Posts : 634
   Posted 8/19/2010 4:53 AM (GMT -7)   
I reacted during the infusion. i only got 20 mls of the stuff and it was a double dose. They had to throw it away. I felt so guilty cos its all paid for by the NHS and they are broke! Couldnt be helped though.

Have a good nights sleep Ivy.
Dx - Crohn's (2006), Depression (2010)
Currently - Humira fornightly, iron infusion weekly, B12 3 monthly, prenatal vits+minerals, 15mg prednisolone, calcium supplement, mirtazapine
Tried - aza, pentasa, questran, infliximab
No crohns' surgeries to date, Episcleritis for 3 weeks x 2, pains in hands, wrists, hips, lower back, knees and ankles

Allergic to Infliximab
Was at uni, but have paused the course to try to figure out my health!

vixen
Veteran Member


Date Joined Jan 2010
Total Posts : 794
   Posted 8/19/2010 11:00 AM (GMT -7)   
Go easy on yourself Ivy, sometimes we just have to let things go! You will not be doing yourself any favours. Health must come first.
Exam results were better than expected what with the year that he has had-if he keeps it up Uni will still be an option next year!
Don't have to act as a taxi this evening as he not feeling 100%(stress of opening his exam results has made his stomach play up)
House still isn't straight and hospital appointments went ok so now still thinking about where to start tomorrow.

Becky77
Veteran Member


Date Joined Dec 2005
Total Posts : 1768
   Posted 8/19/2010 11:21 AM (GMT -7)   
It's 2pm now, and I'm mourning the loss of my beloved Dyson. The on/off button isn't working and you have to hold it down the entire time you want it to be on. Luckily I didn't pay the full cost when I bought the thing. I'll probably take it to Dad and see if he can fix it. Needless to say, I didn't get all my vacuuming done...most, but not all :(

Got up around noon, so I just about met that goal! Getting back to a normal schedule a little bit at a time!

Relax and feel well all!
Becky

32 yr old female-dx with Crohn's in '97 after emergency resection and appendectomy, 2nd resection '05, Bilateral pulmonary emboli 10/09
Currently on Humira, Omeprazole, Effexor, Seroquel, Calcium, Vit D
Coumadin stopped 3/15/10!!!!
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