MayOk, he did definitely ask me several times if I thought it was all in my head, since he couldn't find anything. IBS was mentioned as well. He did every test he knew to do, twice. Finally, he told me it may be better to have another set of eyes look at things. I thought I was just getting a second opinion and went to another GI. For my first few visits with the new GI, I would call the old one to consult and they finally told me to stop consulting with him and to just go with my new GI. That new GI turned out to be a horrible doctor, but he did at least find something before I switched again. I don't remember getting another referral...I don't think I had to either for insurance purposes (since I had already been referred to a GI) or for the doctor's office purposes. It will depend on your insurance and the individual doctor.
If you think something is wrong and they are not willing to do more tests, etc., then try another doctor. Most of us go through a few before finding the right one.
jeanneac, yes, they are definitely related. When they first sent me to a rheumy about 8 years ago, they couldn't figure out if the inflammation showing up was RA, was from my thyroid disease or from something else. All of those are auto-immune and auto-immune diseases run in my family...guess I couldn't help but get all kinds of stuff.
I'm amazed that a Mayo surgeon would tell you that he doesn't think you have IBD but that he'll do surgery if you want, especially without consulting with your GI. Aren't they supposed to be the top docs, but they are willing to do surgery they think is unnecessary and won't help?
MayOk, I would mention it to your OBGYN. Most good GYNs will be able to tell you if your pain sounds like endometriosis. Mine who did surgery "just to see what's going on" is not one I would consider to be good. He needed to retire. My current GYN was able to tell me that my pain sounded like endometriosis and that, combined with the fact that I had it previously, convinced her it was worth doing another surgery. Even if you do have surgery, it's laparoscopic and I only have 3 tiny incision scars. Only bad part was they had to cut through muscle on two of them, so I was sore for a while.
BTW, my GI now wants to do more tests to make sure I really have Crohns. This after 5 years of calling it Crohns and treating me with biologics! So, I'm waiting for them to schedule the enterography, colonscopy and upper GI. So, maybe my capsule endoscopy and promethius test were both wrong...doesn't seem very likely to me.