Bleeding Question for People with Perianal Crohn's

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

WriterMum
Regular Member


Date Joined Apr 2009
Total Posts : 166
   Posted 8/22/2010 4:47 PM (GMT -7)   
I get on and off rectal bleeding for which I am currently adding Salofalk suppositories to the oral Salofalk to try to keep it under control. This has been going on for a while, but it is mostly minor bleeding. If you have perianal Crohn's like me, how long do you let the bleeding go before moving on to prednisone or something more that the 5-ASA? The bleeding is mostly under control, but I have to use a suppository every day to keep it that way.

My other question is about what the bleeding looks like. Usually the bleeding is red because the inflammation I have is in the last couple inches of my rectum. Some mornings however it appears to me that there is the "coffee grounds" sort of blood in the poo. I am assuming that it is actually blood that has darkened because I am sleeping and not going to the bathroom for a while. Does this make sense to you, or have you heard this from your doctor? My GI says that my ileum is fine right now, so there shouldn't be blood coming from anywhere else in my intestines.

Thanks.
45 years old. Diagnosed with moderate to severe Crohn's in April 2005. Hiatus hernia diagnosed in 2008. Had Crohn's under control until March last year when I had a major flare up and ended up in hospital. Diagnosis is now CD and IBS. Getting it under control again.
Currently taking: Salofalk 2000 mg, Calcium and Vitamin D, Matamucil, Yogurt for probiotics, Pregnancy Vitamins for iron etc., Salofalk suppositories as needed.

*Phoebe*
Veteran Member


Date Joined Sep 2005
Total Posts : 769
   Posted 8/23/2010 5:09 PM (GMT -7)   

Hi Writermum, I can only really talk about my experience, and I am unaware of precisely where my crohn’s is located, but have been told I have crohn’s colitis and I have peri-anal crohn’s, involving skin tags, abscesses and fistula. I have a scope this Friday to find out what’s going on higher up but I think its pretty much everywhere for me, including small and large bowel.

When I have had bleeding, it’s been all sorts. I would usually have bright red blood, sometimes coming out following a BM in a stream, sometimes coming out mixed with the bowel movement. I don’t think I have had coffee grounds-type blood, but I have had large clots pass before, jelly-like masses (very scary) which I think have clotted whilst sitting ‘higher up’ in my digestive tract. These clots came through in the first year of my crohn’s, when things were particularly bad.

I would think it would be a good thing to raise your concerns with your GI when you see him next… sorry I cant offer any better advice!

 


Tara28
Regular Member


Date Joined Apr 2005
Total Posts : 362
   Posted 8/25/2010 10:27 PM (GMT -7)   
yep, I have crohn's colitis /perianal crohn's as well and never had coffee grounds poop. You need to be careful because I've been on a few drugs in the past (though I don't think they were IBD drugs) which said basically with that symptom to see a doc pronto.

it sound like with darker blood just means it's coming from hgher up (ileum?) my bleeding is all at the end of my colon so its always bright red.I have a colostomy now but before, with every bm there was "some" blood, sometimes what seemed like a disturbing amount. but it always looks worse/more when it's in the toilet.
33 years old, dx with Crohn's in 1998. Currently on :
Clofazimine 100mg daily,
Rifampin 600mg daily, and Clarithromycin 2 tabs daily
and Cipralex 10mg/day for anxiety.
Hydroxyzine, percocet, Ativan as needed.
5g pharmaceutical grade Omega 3's, 1000IU's Vitamin D3 daily
2 Perianal fistulas, and 1 more suspected. Crohn's only at end of colon, cecum. Remi, Asacol, Salofalk, Imuran, Humira did nada. Built immunity to long-term Cipro use, which also induced panic attacks.

Dizzybee03
Regular Member


Date Joined Aug 2010
Total Posts : 35
   Posted 8/26/2010 12:18 PM (GMT -7)   
I have that once in a while, mine reminds me of more like dark tissue paper. I'm not sure if what I'm seeing is mucus or blood. but I feel your pain!!!! Good luck with everything

Kiwi12
Regular Member


Date Joined Aug 2010
Total Posts : 486
   Posted 8/26/2010 3:24 PM (GMT -7)   
I do get something similar and my GI says it is from anal fissures and/or piles (hemorrhoids).

Really think you should follow up with your Dr though in case if is a drug related side effect that needs attention and more importantly to give you peace of mind! Good Luck :-)
New Topic Post Reply Printable Version
Forum Information
Currently it is Wednesday, December 07, 2016 3:54 AM (GMT -7)
There are a total of 2,733,991 posts in 301,165 threads.
View Active Threads


Who's Online
This forum has 151299 registered members. Please welcome our newest member, ABBear.
219 Guest(s), 1 Registered Member(s) are currently online.  Details
kodaska


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer