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jesse's_girl
Regular Member


Date Joined Dec 2009
Total Posts : 70
   Posted 8/23/2010 6:57 PM (GMT -7)   
I have been dealing with D for 5 years with symptoms ranging in severity, at times really very bad. I have been through all of the "normal" testing (colonoscopy with down parascope action, barium swaollows, blood work, stool samples...ect) and was dx with crohn's 2.5 yrs ago. I was on Pentassa continuely and a stint on entocort durring that time. I never really had a "flare" just reduction of sypmtoms. I have seen a GI at cleveland clinic and he felt that the testing and symptoms were NOT crohn's. I am now only currently on on the B12, I have stopped all other meds.

I feel that I might have SIBO, but I am not sure. I have been trying to find out more info, but I am interested in knowing of anyone who has been through this or knows anything more about treatments.

I have relayed all of this to my drs that the only time I do not have symptoms is after I have been on antibiotics for a few days and then for a few weeks after I stop taking them. I have been on a few different antibiotics and they all seem to take care of the symptoms for varying lengths of time. I am going to have my second Hydrogen breath test next week (the first one was done in 2006 or 07 and has been the only test that was possitive including all biopsies, although I had many ulcers found during the first pill cam in 2008 but only 4 ulcers in the second pill cam taken this spring.)

If anyone has any info I would really be greatfull.
Thank you.
Diagnosed Endometriosis 1998
Crohns 2008?
Drugs:B-12 inj

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 8/24/2010 7:39 AM (GMT -7)   
I have had SIBO a few times. The first time I got it I took a 10 day course of Cipro and was good to go for about 6-8 mos after that. Make sure you are also taking a good probiotic at least 2 hours after your antibiotic. You should be taking a good probiotic with at least 10 billion cfu's in it. I personally have gotten alot of help with the probiotics. You can find them at your local health food store. Hugs!
Gail*Nanners* Co-Moderator for Crohns Disease 
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Sniper
Veteran Member


Date Joined Feb 2004
Total Posts : 6518
   Posted 8/24/2010 8:01 AM (GMT -7)   
My Gi says some of us guys need to have an antibiotic like cipro from time to time to knock down over active growth of bacteria . I seem to need it from time to time and it helps a lot. Some crohns patients need to be on it almost constantly and you may be one of them. Hope you get some good results soon....
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.

jesse's_girl
Regular Member


Date Joined Dec 2009
Total Posts : 70
   Posted 8/24/2010 5:15 PM (GMT -7)   
Thank you both for responding!

I have been looking into the probiotics as well, but they have not really helped in the past so I stopped using them.

Given that all of the other test and biopsies have been negative does anyone out there know if SIBO left untreated for a long time can mimic the symptoms of crohn's with the ulcers and such? I have not been able to find info on the net about ulcers in corillation with SIBO. I am open for any suggestions of other test that I might benefit from having done.

Thank you again.
Diagnosed Endometriosis 1998
Crohns 2008?
Drugs:B-12 inj
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