Hope you all have been well! Been missing you guys... Well my current situation is in limbo. I'm waiting for the insurance company to approve the Cimzia (they won't approve the initial 3 doses at once) So I'm fighting with the insurance company and working with the cimplicity program. All of this is overwhelming as I am noticing my crohns symptoms maybe calming down and I'm not sure I even want to try the Cimzia. I still have the horrible leg pain, I honestly think its from the Remicade, but no Dr. will agree with me. I've seen 5 different drs and no one can help me with this. I'm now trying Cymbalta to see if this will help, but I've now been on it for 3 weeks with no results. The pain is unbearable worse than my stomach pain. I get electric bolts throughout my legs constantly. So I'm literally sitting there and then screaming the next minute. I've tried lyrica, neurontin, pain meds, etc. Nothing seems to help. Anyway, sorry I haven't been hangin around but my main problem seems to be the leg thing now. My last infusion was June23. And I use to get them every 6 wks. I've been tested for everything and just don't know where else to turn.
Current meds: Remicade
Tried: Prednisone, sulfasalzine, lialda, antibiotics, imuran
29 yr old female w/ crohn's colitis and SEVERE leg pain