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missnuts
Regular Member


Date Joined Apr 2010
Total Posts : 76
   Posted 8/25/2010 1:04 AM (GMT -7)   
This will probably seem very silly but I am due for a resection in a couple of weeks due to strictures and am fine with the surgery thing but am worried I may wake up with a nasal gastric tube.  The whole thing of having something down my throat freaks me out.  I sobbed before my gastroscopy and was given a fair bit of sedation so that was ok, but the thought of this (very fine tube) being pulled out whilst I am awake is worrying me more than being cut open.  I am a bit vomit phobic (anyone elses is fine I can hold hair out of the way and clean up after) but mine is a different matter.  What is everyones experiences, would they give me enough light sedation  to get it out, am I worrying about nothing or isthere a good chance I won't have the darn thing anyway. Thanks

mirowpl
Regular Member


Date Joined Nov 2009
Total Posts : 380
   Posted 8/25/2010 2:46 AM (GMT -7)   
i would not worry. first you may not even need the tube. I did not when i had my resection surgery. My surgeon told me that they do not use them anymore unless there is a complication from the surgery.  In past they always used them, but found it added no value.  So not sure what your surgeon/s practice is, but i would ask about it.
 
hope this helps.
48 yrs old male married 2 teenage boys. 
  • Dianosed with CD 14 yrs ago-probably had it for a lot longer 
  • tried Asacol, Pentasa, Cimzia, Remicade, Predisone
  • Had blockage in 2009-hospitalized for 6 days. 
  • Had surgery in Jan, 2010 to remove terminal illium-13 inches total of small and large. found 3 strictures.
  • Tried 6MP after surgery lost more weight. 
  • Crohn's is back already
  • Now restarting Remicade.

Are we having fun yet?


lamb61
Veteran Member


Date Joined Jan 2005
Total Posts : 1718
   Posted 8/25/2010 3:16 AM (GMT -7)   
Unfortunately I ended up with one because I get uncontrollable nausea post surgery. They even gave me IV anti nausea meds and I still got it! Did you ask the surgeon if he/she routinely places an NG tube?

missnuts
Regular Member


Date Joined Apr 2010
Total Posts : 76
   Posted 8/25/2010 3:20 AM (GMT -7)   
Thanks, thats a relief. I will ask at pre op check (not sure when that is yet). Sorry you are not having much luck with meds, I know the feeling currently on Pred, Metho, Pentasa and have come off Remi. Was hoping surgery will put me in a good starting place to control this rotten disease - had 2 good days this week and today can't leave the house cos stomach too unstable. are we having fun yet ? Of course we are, we just haven't been told how much we can enjoy it !!

missnuts
Regular Member


Date Joined Apr 2010
Total Posts : 76
   Posted 8/25/2010 3:24 AM (GMT -7)   
lamb61, thanks for reply. Not what I wanted to hear !! Hopefully I will be ok, I had anti sickness meds after hysterectomy which worked ok. What was it like when they took it out? I need to know, am I making a lot out of nothing. i would rather have another colonoscopy than a tube down my throat !

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 8/25/2010 7:24 AM (GMT -7)   
I have had a NG tube a few times. It does not hurt at all to get it taken out. Actually its a relief when it is out. But as mentioned above, they really aren't using them much anymore. Good luck!
Gail*Nanners* Co-Moderator for Crohns Disease 
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Bammer
Regular Member


Date Joined Mar 2008
Total Posts : 381
   Posted 8/25/2010 8:25 AM (GMT -7)   
Never had a NG tube with my resection.

Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 8/25/2010 8:31 AM (GMT -7)   
My fear is the putting them in, which is done, if at all, while you are out for the surgery. I had all 3 resections by the same surgeon. the first 2 I had an N/G tube last one no tube. Getting it out is a piece of cake. Really easy compared to all the other stuff we go through. Most likely you won't have one, but if you do, you will be happy to have it out and will only feel relief. It is annoying to have it in, more than painful. Getting it out is just a few seconds of a quick pull and that's it. Nothing to be worried about at all.

lamb61
Veteran Member


Date Joined Jan 2005
Total Posts : 1718
   Posted 8/25/2010 8:36 AM (GMT -7)   
You really don't know it's there -- at least I don't have any problems. They put it in while I was still out so it was there when I woke up. The pulling it out part is just gross feeling -- sorry it's my best description! It takes a couple of seconds and is over before you know it. Are you have open incision or laproscopic? That might make a difference, I had an open incision again this time and they were worried about be pulling on things if I vomited. ( which I always due post op)

grayeyedblonde
Regular Member


Date Joined Jul 2008
Total Posts : 383
   Posted 8/25/2010 10:10 AM (GMT -7)   
I have had this DD a long time. Back when I was first Dx'd, in the early 80's, I had to have an NG tube a couple times. Usually they will try to put it in when you are knocked out. Getting it past the gag reflex is as frustrating for them as it is for you. The 2nd time I had it, they put it in while I was awake and they had me drinking water through a straw while they slipped it down.

Taking it out is a piece of cake. Dr literally grabs and pulls and it is out in less than a second. It feels kinda wierd sliding out but it doesn't hurt and because it is going opposite the gag reflex and it's out so fast, you don't even notice it.

Not telling you this to make you worry. I always like to know what I can expect, it's SO much better than the not knowing. I do know that the NG tube is not used that often any more, so unless you have an old school Dr., chances are you won't even have one. Good luck!
Dx'd w/ Crohn's in 1979 at age 13. Bad flare 2008 but no health insurance so I dealt with it. Colonoscopy in July 2009 caused a perforated colon, emergency bowel resection. 2 fistula's, perianal and perivaginal.

Humira, probiotic, a multivitamin, Glucosamine, D3, calcium, potassium, magnesium, zinc, and fish oil. I also take Tramadol 50 mg and Klonopin (for anxiety) as needed.

Life may not be the party we hoped for, but while we are here we might as well dance!

missnuts
Regular Member


Date Joined Apr 2010
Total Posts : 76
   Posted 8/25/2010 10:24 AM (GMT -7)   
Thanks to all for replies, I do feel better now. Not sure if I am having open surgery or not (think it will be) will find out for definate at pre op check. Counting the days now and after the 'loo' day I have had today it can't come quick enough, just hope it helps.

mastersmom
Regular Member


Date Joined Dec 2009
Total Posts : 93
   Posted 8/25/2010 10:51 AM (GMT -7)   
My daughter had the tube when she woke up from her 'open' resection in 2008. She is easily nauseated and I think she may have needed it. She has a deviated septum and they did make a bloody mess trying to send it down that side first--so if you have a deviated septum, tell them before hand.

I had surgery myself recently and they did not use a tube at first. Soon after, I began to vomit which they didn't want, so they had to put the tube down while I was awake. I apparently also have a problem with one side of my nose so after trying that several times, they switched to the the other side. They gave me no water--I was not allowed anything at that point. They just told me to keep swallowing. It was very uncomfortable and I really felt like I couldn't even talk with it in there but the worse was getting it in place. After about 24 hours, they pulled it out--quickly--and I was never so thankful--no problem with that. I am telling you all this because if I had the option I would rather wake up with one already in than getting it later when you are awake.

Becky77
Veteran Member


Date Joined Dec 2005
Total Posts : 1768
   Posted 8/25/2010 12:46 PM (GMT -7)   
I've had them put in numerous times when awake. It makes a big difference if the person doing it knows what they're doing....some were easy, some were painful. Either way, it's a HUGE releif to have them taken out. My dr puts a towel across my chest and a washcloth kinda under my nose, then says blow out, and he pulls it really quick. It doesn't hurt at all coming out. Like others have said, it's so much of a relief, you don't care. Also, after surgery you'll have pain medicine, so it's not like you'll be completely with it.
Becky

32 yr old female-dx with Crohn's in '97 after emergency resection and appendectomy, 2nd resection '05, Bilateral pulmonary emboli 10/09
Currently on Humira, Omeprazole, Effexor, Seroquel, Calcium, Vit D
Coumadin stopped 3/15/10!!!!
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