I don't get why I'm sooo obstructed.

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Roni
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Date Joined May 2003
Total Posts : 2480
   Posted 8/25/2010 12:59 PM (GMT -7)   
I don't understand why all of a sudden, I'm suffering soooo much worse than usual!!!
I'm a big advocate for healthy diet, taking meds regularly, trying natural remedies, and living as healthy as possible.

I have been doing the same meds/diet/natural remedies for two years and was "tolerable" most days (was even having good days for the first time in years), now for a week, I'm obstructing everyday.

What gives?

I'm pretty upset about this. shakehead

Roni
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Date Joined May 2003
Total Posts : 2480
   Posted 8/25/2010 2:52 PM (GMT -7)   
I realize this is kind of stupid a topic since crohn's is unpredictable, but it still takes me by surprise after having this disease for nearly 15 years.
I don't want another surgery, and yet I may have to.

NiceCupOfTea
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Date Joined Jan 2010
Total Posts : 8561
   Posted 8/25/2010 5:33 PM (GMT -7)   
Most wouldn't agree with me on here, but I personally doubt that diet and alternative therapies do much, if anything at all, to alter the natural course of Crohn's. (I know; there are exceptions to the rule.) Its severity and behaviour is determined from the beginning by genetics and not a lot you can do to alter a genetic crapshoot.

So... it's not much comfort, but I doubt it's anything you did wrong which caused the current worsening of symptoms. I hope it doesn't end in surgery, but it's obviously something you need to get checked out.

Roni
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Date Joined May 2003
Total Posts : 2480
   Posted 8/25/2010 7:06 PM (GMT -7)   
Going back on pred and possibly imuran. We'll see how this horrible flare responds tomorrow.
This illness is so tricky when it comes to treatment, whether naturally, diet-wise, or medically.

I agree there are exceptions about treatment and diet and natural remedies. I'm convinced, though, that if I didn't watch what I eat, I'd have been where I am today a lot sooner.

Obviously diet doesn't cure crohn's disease, because the cure should be that no food would exasperate the illness and symptoms.

Still, I'm considering going 100% wheat free or 100% Maker's Diet. I know it won't cure me, but I sure hope it will help with this constant inflammation and daily obstructions. My GI and I are talking surgery.

Roni
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Date Joined May 2003
Total Posts : 2480
   Posted 8/25/2010 7:11 PM (GMT -7)   
Thanks for sharing your thoughts NiceCupOfTea, it was comforting.

Becky77
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Date Joined Dec 2005
Total Posts : 1768
   Posted 8/25/2010 7:50 PM (GMT -7)   
I agree with NCOT, I don't think food=disease...at least in my case. I'm in a similar (yet due to different reasons) situation, facing surgery if/when I obstruct again. I was in the hospital a few weeks back and was obstructed, but mine is not due to active disease, but due to scar tissue. One of the doctors that saw me suggested low residue, but food going through where the disease usually was active isn't the issue, it's scar tissue pushing from the outside of the intestines, so I don't know what difference diet will play. It's inevitable that I'll have surgery, and I wish they could have just gone ahead with it, then I'd be feeling better now.

When do you meet with the surgeon? You'll have to let us know how that visit goes.

missnuts
Regular Member


Date Joined Apr 2010
Total Posts : 76
   Posted 8/26/2010 12:32 AM (GMT -7)   
Sorry you are having a bad time. I agree with the others, its not what you do or eat for most of the time. I am mainly on a low residue diet and symptoms vary from day to day (I have strictures from scar tissue). Have now given in and am having resection in two weeks and looking forward to getting off Pred at last. Good luck

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 8/26/2010 7:24 AM (GMT -7)   
Roni, I could very well have you confused with someone else, but didn't you recently have a baby? Lots of times when give birth, then go on to have bad flares. Could that be a possibility? Hugs!
Gail*Nanners* Co-Moderator for Crohns Disease 
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

yohimbe
Regular Member


Date Joined Aug 2010
Total Posts : 109
   Posted 8/26/2010 9:06 AM (GMT -7)   
Have Crohns for 40 years, in my case there is usually a cause to increasing symptoms:

Diet - If I stray and have a one sip of wine (just one sip) from my wives glass..BANG or if I eat some new food that has a mildly residue of spice in the mouth...BANG. So I am very strict about that and these episodes may be once-twice a year.

Mental State - Problems at the office usually with difficult people. These are more subtle, the problem may occur today, then again with the same person next week, in any of these episodes there is no direct spasms that night, its a slooow build up of resentment. If you have situations that you don't see the light at the end of the tunnel, this has a cumulative effect on my Crohns. So I stayed away from high stress jobs and when possible, people in my personal life that create problems.

You need to look deep within yourself to see subtle things that may be happening that overall "constrict" your body. Then you need to change your Mental State to a "will overcome attitude". Don't lie and mope around as to how bad you feel. Sit up and take deliberate rhythmic breaths that empower you, make a resolution that every hour you will get up and accomplish something around the house, even if it is for five minutes. YOU ARE STRONGER THAN THE DISEASE, the rest of your body is fine, summon every arm, leg, muscle of your body to overcome this, have that attitude 24 hours a day. Everytime you need to discharge at the bathroom, clean yourself with resolve, I have just expelled toxic stuff from my body, I am 1% better for now. If you cramp massage yourself with resolve, take a hot sitz bath twice a day for 15 minutes, feel the warmth healing and sustaining you. YOU ARE STRONGER THAN THE DISEASE. When you are really down have a steady stream of thoughts that you will conquer this episode, one hour at a time.

I am not kidding you with the "YOU ARE STRONGER THAN THE DISEASE", you have a marvelous reserve of power that allows you to reframe each situation, you need to dwell on that power and not let yourself feel hopeless.

Only YOU can do this, and that is the beauty of it.

Roni
Veteran Member


Date Joined May 2003
Total Posts : 2480
   Posted 8/26/2010 9:19 AM (GMT -7)   
Nanners, I had a baby 1.5 yrs ago now. You are probably remembering that because I posted so much about how sick I was then too. lol.
And yeah, I was flaring after the baby pretty badly, but then I got it under control most days so that I hardly had obstructions anymore. Now I'm having them again, all of a sudden, and it truly sucks.

I started pred today. Hate pred, but I gotta stop these obstructions or I'll end up for another resection. I'm having bowel xrays in a few days so I'll know how bad things are getting.

yohimbe, thanks, you have an awesome attitude. I have been doing as you say, trying to keep a strong mental attitude as well. When I'm in constant pain, it can be hard not to sink into those moments of feelings of hopelessness tho. I need a miracle cure.

Starting strict Maker's Diet today in addition to the pred.

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 8/26/2010 9:41 AM (GMT -7)   
Yes Roni thats what I was remembering. I remember now how difficult your pregnancy was because you kept obstructing. Sorry to hear its happening again. I ended up having another resection only 3 years after my first, but mine was because I was not compliant with my maintenance meds.

I hope the Pred works to quiet things down for you soon. Hugs!
Gail*Nanners* Co-Moderator for Crohns Disease 
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*
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