first week of LDN

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comedybob
Regular Member


Date Joined Jan 2010
Total Posts : 241
   Posted 8/26/2010 7:13 AM (GMT -7)   
My boy started on LDN last monday. because of his age and size, the Dr. started him at .5mg, increasing by .5 weekly. we short tracked the .5 to 4 days. he is now moving up to 1.5 tonight. seems to be okay, but hard to say. his crp was at 71, and esr at 34 before we started.  It's wierd, no symptoms. no pain, no D, no weight loss, and lots of energy. he's upset, because at those levels, we restricted his diet.
what's also a bit odd is that his Iron is down, but his hemoglobin is up.(?) his ferriton(S) is also good
We do have the numbers pre LDN, and will have the numbers every couple of months. We will let you know how this goes. fingers crossed

comedybob
Regular Member


Date Joined Jan 2010
Total Posts : 241
   Posted 8/26/2010 7:44 AM (GMT -7)   
Now he's got a bad cold. I know LDN renders pain relievers useless, but does anyone know about cold meds like contac?
bob b
13 year old son diagnosed at 9,

one month of pred at beginning

2 years of immuran ineffective

he has plateaued again at 67 lbs(up from 58 in January)

considering Remicade

EMom
Veteran Member


Date Joined Aug 2007
Total Posts : 990
   Posted 8/26/2010 11:07 AM (GMT -7)   
Hi comedybob! I don't know the answer to your question, but wanted to suggest you join the LDN yahoo group if you haven't. You will find LDN users there of all ages who will quickly answer your questions.

How wonderful that you have found a Dr. willing to try LDN! I hope and pray that it works for your son! Remember, LDN is thought to be rendered ineffective if there is an underlying candida albicans overgrowth (something most people have to some extent). A diet like the SCD would be helpful in eliminating this. It also helps re-introduce the beneficial bacteria (through home made yogurt) into the gut that fight candida.
Mom to 18 year old son diagnosed in June, 2007.
Omega 3s, digestive enzymes, probiotics, vit. C, calcium, vit. D3, a good multivitamin and SCD legal yogurt
Started The Maker's Diet in Sept. '07. Incorporate Specific Carbohydrate Diet (SCD) recipes, too. Med-free.

Threads discussing diet:
http://www.healingwell.com/community/default.aspx?f=17&m=984588
http://www.healingwell.com/community/default.aspx?f=17&m=1533705
http://www.healingwell.com/community/default.aspx?f=17&p=1&m=1262312

janicea
Regular Member


Date Joined Feb 2009
Total Posts : 350
   Posted 8/26/2010 11:47 AM (GMT -7)   
Hey Cbob!
LDN reduces the effectiveness of opiates -- but not tylenol etc. Nor does it interact with cold remedies.
Best,
-j

njmom
Veteran Member


Date Joined Apr 2006
Total Posts : 1884
   Posted 8/26/2010 5:15 PM (GMT -7)   
Good luck! Do you mean the serum iron is down - if so, then it might be OK because it can fluctuate widely thru the day. The hgb and ferritin are the most important indicators, so it looks good.  

comedybob
Regular Member


Date Joined Jan 2010
Total Posts : 241
   Posted 8/27/2010 5:39 AM (GMT -7)   
Thanks all for the replies.
Emom- we have been giving him probiotics for years now. he doesn't even have the dreams that can be a side effect. yeast shouldn't be an issue.
Janicea- thanks good to know
njmom- yup serum iron. and he is quite active so he may have burned some off.
bob b
13 year old son diagnosed at 9,
one month of pred at beginning
2 years of immuran ineffective
he has plateaued again at 67 lbs(up from 58 in January'10)
Started LDN on Aug 16th, hopeful

considering Remicade
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