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Kiwi12
Regular Member


Date Joined Aug 2010
Total Posts : 486
   Posted 8/26/2010 2:44 PM (GMT -7)   
 
Just a wee post to say hi as I have just joined up. 
 
I live in New Zealand and have had crohns since the early 90's.
 
We were living in asia when I got sick and as Crohn's isn't an asian disease (interesting huh?) I was not correctly diagnosed until we came back to NZ by which time a good deal of damage had been done.  
 
History of hospitilisations due to obstructions with side issues of kidney stones. Resection surgery in 2009 now the obstructions are back ;( 
 
I do have an awesome specialist and surgeon so consider myself very lucky in that respect.
We are looking at remicade/humira as the next step in meds. 
 
Interested in your feedback on a couple of things so will post them as seperate new topics.
 
Thanks for all the positive info you guys post :)
 
 
 
 

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 8/26/2010 3:00 PM (GMT -7)   
Hey Kiwi,

And welcome to the best Crohns site out there. You will find alot of love and support from our members.

I was wondering if you went back on maintenance meds after your resection? The reason I ask is because after my first resection my Gi at the time (now fired) said I no longer needed meds. That was a big mistake because I ended up needing another resection only 3 years later. I sure home either the Remicade or Humira do the trick and get your Crohns quieted back down.

Hugs
Gail*Nanners*
Gail*Nanners* Co-Moderator for Crohns Disease 
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Kiwi12
Regular Member


Date Joined Aug 2010
Total Posts : 486
   Posted 8/28/2010 2:52 PM (GMT -7)   
Hey Nanners,

Thanks for that - very interesting esp as you ended up with another resection <hug> which I most certainly would like to avoid!

I was on 6 mp up to the resection, which was not planned i.e. emergency surgery for a rather spectacular obstruction ;P

I didn't recover well, in fact it ended up my lack of recovery was due to a kidney stone completely blocking my right ureter which needed more surgery to zap it. I developed sepsis and was very ill. Then when they took the tube out of the kidney six weeks later got sepsis again (I think this bout was due to poor nursing - how many nurses does it take to put in a catheter? the answer is four and a torch hmmmm).

I often wonder now if it was the kidney stone that was the root of the symptoms/problem but because I have crohns and a history of obstructions they just assumed it was bowel. hmmmm

My GI was reluctant to put me back on 6 mp so I spent 3 months on entocort which gave me 5 months of wonderful remission until last weekend. Have a colonoscopy booked for next week to see whats going on then with a view to going on to humira - have to say I am terrified of the drug's possible side effects as I have recently returned to a job I love that I will no doubt loose if I end up having a lot of time off work.

I am wondering why I can't go back on 6mp as it seemed to work for me - will be asking him that - but I realise (without being a drama queen) how close I came to not making it twice with the sepsis last year so think that could be his worry - however reading up on humira I think there will be the same risk there.

Glad your crohns is in remission and empathise on the joint paint - my restless legs keep me up many a night

hugs
kiwi :)
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