New member! Capsule endoscopy pics!

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nycguy101
New Member


Date Joined Aug 2010
Total Posts : 1
   Posted 8/26/2010 7:27 PM (GMT -7)   
So, I'm 24 and just was diagnosed by capsule endoscopy. This all started basically because I was getting morbid hangovers from drinking. I would feel fine the next day until mid afternoon, only to be hit with a high fever, vomiting everything including water, and extreme fatigue for the next 24-48 hours. One day, the abdominal discomfort didnt go away and I got stuck with chronic constipation that cleared itself up after a month. Fast forward a year later, and suddenly the constipation returns and doesn't go away, and I'm left with constant bloating and general discomfort, so I went to a doctor and started this whole process.


I passed every single test except a capsule endoscopy without a hint of problems:

Total blood test
Crohns anti bodies
Colonoscopy
Upper Endoscopy
Sonogram
Barium x-ray
CT Enterography
P&O, cryptosporidia, giardisis, and hookworm
Thyroid panel

All came up negative. No signs of inflammation, lesions, nothing.

Until the capsule endoscopy came back showing lesions in my jejunum.

I actually managed to take care of about 60% of the symptoms with a daily morning dose of Miralax, citrucel, and a probiotic (align) and I have a DBE coming up. I had been prescribed Pentasa, but it didnt help at all and made the constipation much worse, so I'll wait till after the biopsies to go back on it.

The only thing that worries me is that it took 7 hours for the pillcam to get to my large intestine (and I was told it should take about half the time) and eating vegetables makes things much worse. Maybe this is all a result of slow peristalsis and the lesion is from alcohol/stool sitting in my small intestine for so long? Its so bizarre that I'm getting lesions without pain or bleeding.

Anyway, see for yourself; maybe someone here has seen something like this before.

img576.imageshack.us/img576/7278/img005bc.jpg
img90.imageshack.us/img90/6580/img007v.jpg
img840.imageshack.us/img840/9143/img008r.jpg
img529.imageshack.us/img529/1083/img010bo.jpg


So, for those of you going through hell with getting a diagnosis, don't give up!

Post Edited (nycguy101) : 8/26/2010 8:33:50 PM (GMT-6)


kazbern
Veteran Member


Date Joined May 2010
Total Posts : 8375
   Posted 8/27/2010 7:02 AM (GMT -7)   
Thanks for sharing! I haven't ever swallowed the camera, I'm worried about slow peristalsis also. but you passed it, so that's good!

Lots of people w/Crohn's stay away from raw vegetables, and some from cooked....you might be able to figure out which is bothering you the most and avoid only those.

good luck getting a successful treatment plan, and I hope you feel better soon.
*******************
48 yrs old, IBD diagnosis in spring '01. Proctitis, gastritis, ileitis.
Currently taking Pentasa (6g/day), Sulfazine (1.5 g/day), Prevacid, vit. D (20K iu), flax seed oil (2 tsp/day), mesalamine enema as needed.

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 8/27/2010 7:15 AM (GMT -7)   
Hey nycguy and welcome to Healingwell's Crohns forum. Sorry you have to be a part of our club though. Many of our members have gone thru all the testing as you have only to have finally been diagnosed with the pill cam.

Also, you may really want to think about not drinking anymore, many Crohnies find that it only causes more problems than anything good. Also, as Kazbern stated the majority of us can't eat raw veggies. Generally they must be cooked to mush before most of us can digest them. Also, I also suffer with constipation than diarhea. I take stool softners nightly and that helps to keep things softer and easier to pass. You might want to give them a try. Good luck!
Gail*Nanners* Co-Moderator for Crohns Disease 
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Djin
Regular Member


Date Joined Jan 2010
Total Posts : 265
   Posted 8/27/2010 9:49 AM (GMT -7)   
Hey, my friend from NY.
 
The diagnosis process can bem frustrating indeed. And more frustrating is the fact tha there are no rule gor the simptoms that strike us.
 
Its a good suport group aroud here.
 
Take it ease with alcohool  :), and check your desease before it gets to scary (not the images, but the actual simptoms).
 
Good luck!
 
 
Male, 35 (lovely family of wife and two daughters)
Diagnosed in nov/94 - Started with Prednisone, followed by Pentasa, entocort, flagyl, Imuran, Cipro, etc.
Blockage (popcorn!!) - First Surgery 2001 (no ressection)
Severe bleedind - 2003 - Stopped by 60mg of Prednisone
Stricture leading to a ressection in Dec/2008 - Second Surgery
Now on Remicade + 100 75mg Imuran + Iron (doc said i'm in remission, but I'm not sure at all)
 
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