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Regular Member

Date Joined Apr 2008
Total Posts : 90
   Posted 8/28/2010 2:48 AM (GMT -6)   
hi everyone been having bad flairs 4 2yrs a stricture is the problam anyway allready had 3 surg on sml b coming of pred and on imuran 50m but every month am being sick and in pain its affecting my children as i am a single mum my youngest resents my being sick he never gets to go anywere seeing my surgen on mond as i have a stricture that needs an op 4 but wanting addvice should i just get an iliostomy bag and be done with it cos cant do this anymore help please.

Elite Member

Date Joined Sep 2005
Total Posts : 10404
   Posted 8/28/2010 3:25 AM (GMT -6)   
My advice: be open and honest with your doc about how hard you're finding things, and how you want your life to be, then ask his / her advice on whether an ostomy would be the best option.

Your doc knows your body better than we do: s/he is the best person to ask for advice, imo.

Good luck at the appointment, and sending you best wishes for better health.

Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~

Veteran Member

Date Joined Jan 2003
Total Posts : 6044
   Posted 8/28/2010 3:39 AM (GMT -6)   
having and ileostomy wont cure you.. so hold off on that decision..

Veteran Member

Date Joined Apr 2006
Total Posts : 1884
   Posted 8/28/2010 8:06 AM (GMT -6)   
It can take the Imuran a few months to work...I agree with Ivy, be sure to tell the doc. And like randynoguts said, there are other options before more surgery:
- you could try a higher dose of Imuran (the dose you are on is low)
- you could try biologics
- you could try changing your diet (but don't go off the med)
Daughter (22) Dx'd Crohn's 3/06. Misdiagnosed for two years, including by top pediatric Crohn's specialist as stress. No symptoms for the past three years. March '09 colonoscopy showed stricture gone but two spots of inflammation in TI. Used LDN to taper off Entocort last fall. (Was on Entocort since April 06.) Never had D. 4.5 mg LDN, SCD multivit, homemade yogurt, 2000IU vit D3, 1000 mg calcium, 27-54 mg iron, monthly B12 shots, daily oral B12 twice a day (one B complex, then later one B 500), 10mg zinc. SCD diet. 

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 8/28/2010 9:57 AM (GMT -6)   
Maybe its time to try a different med???? But.. I have heard that many who have even temporary ostomies find they feel much better. You might want to pop over to our ostomy forum and get their take on it. Hugs!
Gail*Nanners* Co-Moderator for Crohns Disease 
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Veteran Member

Date Joined May 2003
Total Posts : 2480
   Posted 8/28/2010 2:28 PM (GMT -6)   

I'm pretty sure I have a stricture right now too. I'll find out in a few days. I also have small kids and I feel terrible that I can't do things like play with them all the time or go out places all the time or even put them in extra curricular activities like other moms.
I know exactly how you feel and it stinks.
Will a bag stop obstructions though? Cause I go through way too many obstructions. A bag won't cure, but does it provide a lot of relief?
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