remicade for crohns

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APW
New Member


Date Joined Aug 2010
Total Posts : 2
   Posted 8/29/2010 5:17 AM (GMT -7)   
Seeking info on remicade and bad side effects in young adult males, and also good results in young adult males with Crohns

Ides
Forum Moderator


Date Joined Nov 2003
Total Posts : 7077
   Posted 8/29/2010 3:55 PM (GMT -7)   
Welcome to Healing Well, APW! You didn't tell us why you wanted info on Remicade but I am guessing that your physician has talked to you about starting it. Were you recently diagnosed with Crohn's?
 
One of our moderators put together a thread that has links to previous threads that discuss Remicade. Your question is one often asked here. Some people were not as adept at searching for previous threads on Remicade so Ivy helped us all by putting together a great list featuring many of the common CD meds. See her list here: http://www.healingwell.com/community/default.aspx?f=17&m=1144027
 
Also, NIH has a good information about the risks associated with Remicade. Their site in very thorough in describing side effects also. Check it out here: http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH0000267
Moderator Crohn's disease and Irritable Bowel Forums

CD, Ankylosing Spondylitis, small fiber peripheral neuropathy, avascular necrosis, peripheral artery disease, pulmonary hypertension, degenerative disc disease, asthma, severe allergy and a host of other medical problems.

APW
New Member


Date Joined Aug 2010
Total Posts : 2
   Posted 8/30/2010 3:05 AM (GMT -7)   
Thanks Ivy for these threads links - really informative -( tho some of the side effects not so hot, am sure hoping they won't surface!!!!!!)
The option to use Remicade has only become available this week, very keen to build up a full context. I wish there was a permanent cure for Crohns!!! I know now Remicade is not a permanent cure either.
So far, nothing else has really got this Crohns under control - since being properly diagnosed a year ago, it has grumbled along getting worse - and though reducing stress and avoiding certain foods and beverages helps, the actual disease needs to be really given a good thump. Prednisolone is good , but not good enough, and Imuran was OK for a bit but did not really take it down.

So, if it can be put in remission using TNF- alphas that would be a very good thing.
Have been on IV hydrocortisone to get it under control for 5 days, and feel good now - was so sick when I came in to hospital last week...Have had vitamin and iron infusions too

Qu: Has anyone ever got rid of an auto immune disease like Crohns for good once they have been diagnosed properly???

APW

NiceCupOfTea
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Date Joined Jan 2010
Total Posts : 8559
   Posted 8/30/2010 5:11 AM (GMT -7)   
Remicade isn't a permanent fix, so unless you can go on it as a long-term maintenance treatment I'm doubtful it's worth starting at all - particularly with the increased risk of an allergic reaction if you stop then start it again later. The hospital I'm at will only pay for up to 3 Remicade doses: I was meant to get them, but then my doctor changed her mind. She said it was because she didn't want to make my bowel narrowings worse, but she did also say that it was pointless as the Crohn's would only come back again afterwards. (She didn't actually say "pointless", but I don't remember the exact words.)

But if you can go on a biologic long-term, I would do it personally. The biologics are currently the most powerful and effective drugs available for Crohn's. Despite the long list of scary side-effects, they actually seem to be well tolerated on the whole. The biggest drawbacks to them are allergic reactions and gradually becoming less effective over time (which is why many folks end up changing biologics).

Qu: Has anyone ever got rid of an auto immune disease like Crohns for good once they have been diagnosed properly???

No, in a word. Crohn's doesn't go away; it goes into remission. If you're lucky it can go into remission for years, occasionally decades. And even if you are in remission, you should still be on a maintenance drug to reduce the likelihood of another relapse.

A few people swear by diet for their Crohn's: look up Specific Carbohydrate Diet (SCD) if interested. It is very strict.

sooper
Veteran Member


Date Joined May 2003
Total Posts : 815
   Posted 8/30/2010 6:36 AM (GMT -7)   
I had to stop remicade. BUT!!! It worked. and worked well. In fact it was the only thing that ever remitted me. Def something worth trying if your guts are ruining your ability to have a normal life. I wont get into my side effects because everyone is so different.
God help us all, please, already.

artist guy
Veteran Member


Date Joined Jan 2010
Total Posts : 1373
   Posted 8/30/2010 9:04 AM (GMT -7)   
I've had cd for 40 years and I have been put into remission surgically, and it did last years, but in my case it has been physical trauma that has reactivated mine cd
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