I have a stricture!

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Roni
Veteran Member


Date Joined May 2003
Total Posts : 2480
   Posted 8/30/2010 9:15 AM (GMT -7)   
So I found out today that I have a stricture as well as inflamed terminal ileum.
I am unable to go on remicade or that class of drugs. Is there any way I can open up the stricture with other meds or diet?
I'm presently taking prednisone.

Help!

Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 8/30/2010 9:23 AM (GMT -7)   
If the stricture is due to inflammation alone, the prednisone may bring it down and then you can go on something to keep it down. But if the stricture is scar tissue then the damage is permanent and nothing will change it other than surgery of some sort, either resection or dilation. You can live with a stricture, but you need to be very careful about your diet so that you don't get obstructed. I'm sorry you are dealing with this.

Roni
Veteran Member


Date Joined May 2003
Total Posts : 2480
   Posted 8/30/2010 10:15 AM (GMT -7)   
I've been on prednisone for 5 days and have little relief. I'm wondering if I should give it a little longer and go through the whole taper process or just stop since it's only day 5.

Anyone think the prednisone could help with the stricture if I give it more time?

blueberrydecaf
Regular Member


Date Joined Jan 2010
Total Posts : 257
   Posted 8/30/2010 12:02 PM (GMT -7)   
You shouldn't ever just stop prednisone without consulting with your doc. Suddenly stopping prednisone without tapering can have dangerous side effects. I have strictures also and prednisone is helping me right now, but I have no idea if it will help the strictures (I'm haven't heard from my doc yet about whether he thinks it is mainly inflamation or scar tissue). If you don't feel prednisone is working then consult with your doc and ask about the safest way to slowly stop it...
diagnosed 2003
vit D, calcium, iron when my tummy can handle it
stopped Pentasa
prednisone 35mg

Roni
Veteran Member


Date Joined May 2003
Total Posts : 2480
   Posted 8/30/2010 12:39 PM (GMT -7)   
So blueberry, are you having obstructions? What are you doing for diet?

My sbft showed a few inches of inflammation with the end being severely narrowed. Radiologist couldn't tell for sure if it was scar tissue or not. She thinks it probably was scar tissue causing the stricture because the bowel wouldn't stretch open when she pushed.

When prednisone is short term (less than a week), it is safe to stop suddenly if you haven't been on it in the past year. I've already discussed it with my GI. I just don't know if staying on the pred long term will do anything for my stricture. My GI is on holidays so I don't know if I should go long term. *sighs*.

gumby44
Veteran Member


Date Joined Nov 2007
Total Posts : 4100
   Posted 8/30/2010 12:53 PM (GMT -7)   
I don't think that 5 days is enough time to tell if Prednisone is working.  Can you give it more time,or are you having terrible side effects?

yohimbe
Regular Member


Date Joined Aug 2010
Total Posts : 109
   Posted 8/30/2010 1:12 PM (GMT -7)   
Prednisone generates steroids instead of the adrenal glands. Once you start for a few weeks on Prednisone the adrenal glands become dormant. It is extremely important that you taper down very, very gradually. I was on 4 pills a day for a month, then 3 pills a day for 2 weeks, then 2 pills a day for 2 weeks, then 1 pill a day for 2 weeks and finally 1 pill every other day for the end two weeks. If you start getting pains into what may seem your kidneys in the back, those are you adrenal glands complaining. Give them a chance to take over again.

As far as the stricture. I have the scar tissue type in three different places. The doctors have suggested that I take care of at least one laparscopally with an incision of about an inch which is minimally invasive. May go that route if I continue feeling the way I do.

See the posts under Intestinal Blockage, many tips on managing your stricture: fundamentally you want to chew everything you ingest into a MUSH, make sure that what is going down is not a chunk of anything with harder texture (e.g. steaks). If you feel it coming drink broth 2-3 times a day, also heat up some Ensure Plus and down the hatch. That liquid heat is heaven to the intestine, coupled with the MUSH and traffic down the stricture should be smooth.

I compare strictures to a freeway down to 1 lane. If you are on 4 lanes and traffic comes to a standstill all hope is not lost yet, it may be that everyone is trying to merge to the one lane, one at a time. Its not time for the tow trucks to remove cars (e.g. surgery) unless all lanes are blocked by a major accident.

So diet is very important. think MUSH !

Roni
Veteran Member


Date Joined May 2003
Total Posts : 2480
   Posted 8/30/2010 1:17 PM (GMT -7)   
Gumby, the only worries I have with pred are about my heart. In the past it increased my tachycardia and I was diagnosed with mild cardiomyopathy. The docs have assured me I'll be okay this time cause I'm on heart meds that block the effect. But I still worry about it.

Thanks yohimbe for your advice. I just picked up some ensures today. I hate having obstructions. It's all bad, but that is soooo bad.

Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 8/30/2010 2:27 PM (GMT -7)   
I don't know how high a dose you are on. I was really bad at one point and in the hospital. I was on IV steroids and TPN trying to give my stricture a chance to heal and to avoid surgery. The doctors gave it 2 weeks at a really high dose. At that point there was no improvement and surgery was my only option because if the steroids had not helped yet the doctors figured it was scar tissue, which it was when they got in there. I was on pretty high doses and it was IV so not sure how that all correlates to oral and how long you should give it, but you should ask your doctor what the plan is.

Glori
Regular Member


Date Joined Jul 2010
Total Posts : 42
   Posted 8/30/2010 3:09 PM (GMT -7)   
Roni, I would continue with the prednisone and give it a chance to resolve the stricture. Hopefully, it is inflammation only. I had a string-like stricture that was 9" long that was thought to be scarring, but it completely resolved with prednisone and remicade. I had to be sooo careful with fiber, but was able to baby it along for several months until things returned to normal. Be sure to drink a lot of fluid each time you eat. If you do progress and are able to eat fiber, try to go with soluble, rather than insoluble fiber.

Good luck!

Glori

njmom
Veteran Member


Date Joined Apr 2006
Total Posts : 1884
   Posted 8/31/2010 10:40 AM (GMT -7)   
Hi Roni, nobody can answer your question without knowing the dose you are on.
 
If you were to say 10 mg, then I'd be able to answer that I think the dose needs to be bumped up.  On the other hand, a really high dose would be another story.

Roni
Veteran Member


Date Joined May 2003
Total Posts : 2480
   Posted 8/31/2010 12:54 PM (GMT -7)   
I'm on 30 mg right now. And I decided to stay on pred long term. So I'll be weaning slowly by 5 mg starting in a few more days.

I am so glad I have my crohnie friends to turn to. What would we do without this place?

I'd like to bump the pred up to about 50 mg for a few days and see if the stricture opens up, but I'll have to wait for my GI to get back from holidays and ask him.
I have never been on a higher dose than 40 mg. Do the really really high doses of more than 40mg make a big difference?

Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 8/31/2010 1:33 PM (GMT -7)   
When I was in the hospital trying to avoid surgery on my stricture I was on a super high dose. The IV steroid doesn't compare directly to oral prednisone but I came home I was on 80mg and they had already started me tapering, so that will give you some idea of how high I was. Also I was on TPN, so nothing by mouth for 2 weeks to give my bowels complete rest. There was no improvement, so surgery was the choice.

At 30mg it will take a while to resolve a stricture. If you are patient and willing to put in the time, you might have success if it is inflammation. I had already spent months at home on liquids and was just DONE.

njmom
Veteran Member


Date Joined Apr 2006
Total Posts : 1884
   Posted 9/1/2010 3:54 PM (GMT -7)   
30 is not that high. My daughter was put on 45 oral pred. And that was after getting 60 mg solumedrol via IV. 
New Topic Post Reply Printable Version
Forum Information
Currently it is Wednesday, December 07, 2016 9:06 PM (GMT -7)
There are a total of 2,734,463 posts in 301,216 threads.
View Active Threads


Who's Online
This forum has 151332 registered members. Please welcome our newest member, Blueswoman.
307 Guest(s), 9 Registered Member(s) are currently online.  Details
DQueen, PeteZa, Charmed3, iho, time2reclaim, Suffering34, Red_34, Yarbo3, Broncofan18


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer