what foods to avoid with strictures

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blueberrydecaf
Regular Member


Date Joined Jan 2010
Total Posts : 257
   Posted 8/30/2010 12:12 PM (GMT -7)   
I have been told I have strictures / narrowing in the illieum and into the cecum. My last flare (which led to this dose of prednisone) was after eating steak, etc. and then rocking back and forth on a ship agitating my guts causing diarrhea, fever, abdominal cramps. I am feeling so much better on prednisone and feel like I could eat anything, but I don't want to be silly about it. I see my doc again in 3 weeks to follow up on what he thinks of the results of the small bowel follow through and my latest flare, etc. So far I have been eating more and more foods again, but I have still avoided raw vegi's and raw fruits or anything really high fibre. I feel like I am not eating "healthy" though and it is frustrating - I am overweight and it feels wrong to be eating so many "white" foods. Any advice? Any "absolutely don't do it" foods? Can I eat whole wheat bread and steamed vegis or should I stay away?

Roni
Veteran Member


Date Joined May 2003
Total Posts : 2480
   Posted 8/30/2010 12:45 PM (GMT -7)   
Sorry, blueberry, I just asked you about this in my other post about my stricture.
So basically, you and I are in the same boat. lol
I don't know exactly what to eat myself. I also want to eat healthy but I guess for fruits and veggies, I'll have to puree them.

Man, I want a burger with lettuce and tomatoes and a big poutine!

How long have you been on pred and when did it start to help? I am on day 5 and still having obstructions!

potty pooper
Regular Member


Date Joined Dec 2006
Total Posts : 375
   Posted 8/30/2010 1:01 PM (GMT -7)   
I have been through more than my share of strictures and surgery. I ate only white foods: bread, rice, potatoes, noodles. No raw fruits or veges, no fiber cereals, nuts, etc. I did find that I actually enjoyed baby food fruits and vegetables. People seem to cringe at that thought, but it's real food, just in a different consistency. As far as eating heathy, my motto was: if it's very healthy, I probably can't eat it.

I tend to be overly careful with my diet when I have a stricture because having an obstruction is one of my biggest nightmares. My advice is stay away from fiber, and chew well.

LauryLu
Regular Member


Date Joined Dec 2008
Total Posts : 75
   Posted 8/30/2010 1:14 PM (GMT -7)   
I too have a BAD stricture and am waiting to have surgery till November. I get so aggrevated as well about how unhealthy I eat - it seems the more white products and processed foods I eat, the better I feel. But seriously, isn't this what causes disease? I want to eat healthy so badly but sometimes I get a stomach ache just looking at the salad bar.

I am in the middle of a very bad flare - my intestine is so severely strictured from so much inflammation that I am living off of fresh pressed veggie juice from my local health food store and my mom's chicken broth (a miracle worker during flare - always brings me out of them) and protein shakes with homemade yogurt. Also popping some anti-inflammatory pills called FYI (For Your Inflammation - by Garden of Life) So far, so good. The pain is now bearable while consuming these foods. I plan to move onto mashed potatoes with garlic tomorrow! If they go through ok then its on to breads again!! Yay!

As for everyone else, because I know we are all different ---my only strong advice is to sneak in at least one veggie juice a day. If we must eat the high carb diet and bland, non-nutritious foods then at least feed your body with tolerable juices - if your body can handle it that is. I know some can't.

The foods that really bother me are any whole veggies of any kind, even if they are cooked to hell; steak. coleslaw, pork.... I'm ok with cheeses and milk but try to avoid it.

blueberrydecaf
Regular Member


Date Joined Jan 2010
Total Posts : 257
   Posted 8/30/2010 4:54 PM (GMT -7)   
Thanks everyone for your thoughts. I guess I won't really know what I can handle until I experiment a bit - but I will try not to go wild! I want caesar salad sooooo bad!

Roni - I have been on prednisone for 10 days now. It started to help after the first does for me because I was quite bad off - I had a high fever, burning ab pain and dia. After an initial dose of 80mg one time, I was on 40mg per day for a week and now I am down to 35mg (going down 5mg per week). The ab pain is almost totally gone (although I haven't tried to eat hardly any fruits and vegis except for some well-cooked zucchini and canned peaches). Down to D. once per day now. I am dizzy all day though from the pred, and more emotional. Today I tried to go to work for a few hours and I could tell I was emotional and a bit "wingy", found it really hard to concentrate so that sucked. Not sure how it will continue to go...

My small bowel follow through showed narrowing in the illieum and cecum, but I just got the results from my GP because my specialist is on holidays - so I have to wait to Sept 24th to really understand what it means. Did your specialist give you any advice? Have you been through this before? I have no idea if my narrowing is inflamation or scar tissue...
diagnosed 2003
vit D, calcium, iron when my tummy can handle it
stopped Pentasa
prednisone 35mg

artist guy
Veteran Member


Date Joined Jan 2010
Total Posts : 1373
   Posted 8/30/2010 5:28 PM (GMT -7)   
I have narrowing as well, 40 years with cd and many surgeries, and obstuctions I've had very dangerous obstuctions, and it is a fear of mine now, once you experience a real obstuction where only surgery can help, you will do anything to avoid that. evan with my cd which is in my throat as well as small bowel, I have alot of issues of having my small bowel altered by so much surgery, that those issues,(malabsorbtion, dehydration, and all the extra perks that so much surgery causes, I'm on sdi because of these issues and have applied for ssdi, denied first time btu have lawyer's now

janicea
Regular Member


Date Joined Feb 2009
Total Posts : 350
   Posted 8/30/2010 9:01 PM (GMT -7)   
I puree a lot of stuff. I can even manage corn cut off the cob if it's pureed. I'm not able to eat rice or bread of any type. that's a total care crash for my small bowel. I guess my best advice is find what works for you -- pureed soups are safe, things with higher water content. Oddly I can eat tender medium rare steak, but not well done. I can eat chicken. I mean, after awhile you can feel stuff get stuck and avoid it. sometimes partial obstructions for me can clear with milk of magnesia. I drink loads of water, and since I'm a C type, sometime coffee rescues me!! My advice? puree puree puree. for me it's a total bonus. too bad I can't puree salad LOL I miss those. Mine's scar tissue, I'll probably get another surgery this year maybe that'll clear it. good luck!
strictures, crohn's, adhesions, endo. Pyoderma Gangrenosum.
LDN 4.5mg caused 100% crohn's remission.

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 8/31/2010 7:41 AM (GMT -7)   
Try to remember easy to chew, easy to digest. I will say red meat has always caused me alot of problems when I have had strictures, so my suggestion is to avoid it at all costs. Hugs!
Gail*Nanners* Co-Moderator for Crohns Disease 
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

njmom
Veteran Member


Date Joined Apr 2006
Total Posts : 1884
   Posted 8/31/2010 10:19 AM (GMT -7)   
Veggies, cooked to death, are OK. Even with a stricture, my daughter didn't have any trouble with meat, but hamburger is easier to digest than steak. 

blueberrydecaf
Regular Member


Date Joined Jan 2010
Total Posts : 257
   Posted 8/31/2010 11:25 AM (GMT -7)   
Another question everyone...how did you know when your stricture wasn't as bad and you could eat more? Was it only resolved by surgery or by drugs? or can they just go down on their own?
diagnosed 2003
vit D, calcium, iron when my tummy can handle it
stopped Pentasa
prednisone 35mg

penelope-marie
Regular Member


Date Joined Sep 2008
Total Posts : 54
   Posted 8/31/2010 12:31 PM (GMT -7)   
The problem is that strictures can be caused by scar tissue from previous inflammation, or by inflammation on its own or both. If its just inflammation then it can go down, but if its totally scar tissue then I believe it cant. Mine is both so when i have no inflammation my stricture is not as obstructive and I can eat things like pineapple that I can't eat at other times.

I can always manage juices you can easily juice celery tomato and carrot or carrot and apple they are very nice and at least you are getting some of the goodness of salad withoout the fibre. Also the liquid food eg modulen is very good when the stricture is bad. Personally I cannot eat wheat, also have problems with chicken , I feel these are inflammatory foods for me. And then there are all the high fibre foods which cause problems by getting stuck.

One thing I think is really important is not to wear tight trousers pants skirts, whatever, anything with a tight waistband. I suppose it is actually compressing your guts and making it harder for food to go through.

My GI doc told me he had a patient of 83 who had managed a stricture most of her life, so it is possible to live with it, unfortunately I don't know her secrets!

janicea
Regular Member


Date Joined Feb 2009
Total Posts : 350
   Posted 8/31/2010 5:08 PM (GMT -7)   
I made it 3 years on yougurt and protein/vitamin powder. You can always start there! or juice and protein powder. To answer your question about how you know - well my only advice is careful testing. We're all different, like Nanners can't do red meat, and I can't do bread, pasta or rice. We're all different. Don't take anyones word. Use your own intuition and careful observation (and small quantities!!) and puree! LOL. Njmom says hamburger is easier, for me steak is easier, seriously we're all very different so it's a shamans journey.

And penelope OMG loose pants wearers UNITE!!

Post Edited (janicea) : 8/31/2010 6:11:44 PM (GMT-6)


Grandpato2
Veteran Member


Date Joined Dec 2009
Total Posts : 681
   Posted 9/1/2010 2:06 AM (GMT -7)   
I'd recommend small amounts of any meat. Definately cut out ANY grisstle as it will be the problem! More volume equals trouble.
Male, 55 years old with Crohn's since 15 years old, diagnosed at age 46. Terminal ileum resected 2002. 5 months of remission. Crohn's has now been active since May, 2003. Had a gall bladder removed Nov. of 2009. Currently on Remicade every 8 weeks, Nexium, Iron, B-12 injection every 4 weeks, Morphine Sulfate as needed for pain. Cymbalta for long term pain control. In the past, 5-asa Salofalk, Asacol, Entocort,  Imuran and Prednisone.

penelope-marie
Regular Member


Date Joined Sep 2008
Total Posts : 54
   Posted 9/1/2010 2:06 AM (GMT -7)   
Janicea I am so glad I'm not the only one, I had to wear braces to hold up one pair of VERY loose trousers and not in a stylish way. We all have to find our own solutions in fashion as well as food!

snowmaiden
New Member


Date Joined Aug 2010
Total Posts : 3
   Posted 9/1/2010 2:17 AM (GMT -7)   
Takes a long time to find a diet which causes no or few symptoms, I used to get frequent bloating and acid reflux which kept me awake most of the night. Recently started started taking a digestive supplement, The Dr best digestive enzymes and not only has my acid reflux gone but they have reduced the frequency of needing the toilet to.

janicea
Regular Member


Date Joined Feb 2009
Total Posts : 350
   Posted 9/1/2010 8:02 AM (GMT -7)   
I was thinking.... with my small bowel stricture the information I put up above was really good. But until last year, I had problems in the illeum and the cecum and for that, fiber killed. I had no illeocecal valve (it was stuck open and hard as a rock)... my best advice is to consider eating only gentle stuff. I should have read more carefully your post about where it was.. you can make yourself feel like you're doing something great by having a smoothie and protein powder along with the white-bread stuff, maybe?

have you had colonoscopy?

Also, you should get b-12 from other sources that food. like shots. I wish someone had told me that earlier when I was having illium probs.
strictures, crohn's, adhesions, endo. Pyoderma Gangrenosum.
LDN 4.5mg caused 100% crohn's remission.

blueberrydecaf
Regular Member


Date Joined Jan 2010
Total Posts : 257
   Posted 9/1/2010 4:48 PM (GMT -7)   
Thanks, Janicea. Smoothies with protein powder sound like a great idea - I'll have to give it a try! Yes, I have an internal sense that I should stay clear of fibre. So far I have only eaten well cooked zucchini for vegis and tonight I am trying well cooked carrots. I seem to manage dairy (too much!), white bread, rice, chicken, fish okay. Icecream has become a little bit too good of an idea :) My pain is mostly gone with the prednisone, but I feel it every morning when the pred wears off, and in bits throughout the day. My appt with my specialist is Sept 24th, and I have a colonoscopy scheduled for October. B12 is a good point - I'll give it some thought - are there any foods that have good B12 that you liked?
How did you resolve your strictures? Did you have surgery?
diagnosed 2003
vit D, calcium, iron when my tummy can handle it
stopped Pentasa
prednisone 35mg

janicea
Regular Member


Date Joined Feb 2009
Total Posts : 350
   Posted 9/2/2010 1:53 PM (GMT -7)   
B-12 is only absorbed in the terminal illeum. If yours is a mess, you're not getting any out of your food, ergo the shots.

Look forward to the colonoscopy because you'll get a lot of clarity and answers from that. Make sure you have a follow up scheduled with whoever gives it to you, because at least with me, I'm too high after the test to remember a thing LOL.

Compounding pharmacies often make a skin cream that will put b-12 in your bloodstream without going thru your intestines -- but put the b-12 issue on your list to talk to our doc about, ok?

I lived on a powder called "Ultimate meal" from the ultimate life co. maybe you can check it out!

Also cooked carrots, potatoes and stuff like that worked good for me once i could do food. White bread/gluten products "gummed up the works" if that's any help.

Also, if you have a health food store nearby, fresh juiced veggies like carrots are great, no fiber or pulp and a sense of really having done something great for yourself.

all the best.
:)

OH! My terminal illium stricture resolved internally by using Low Dose Nalterxone. It rebuilt itself from hard-as-rock, to "normal". Externally it was aided by releasing 2 adhesions and removing my appendix which was also adhered.

It does not work perfectly but it's pretty great now! I have an upper bowel stricture now, which was released in the same surgery, but seems to have re-adhered a bit, so I'm still careful with food but Waaaaaaaaaaaaaay better.

Post Edited (janicea) : 9/2/2010 3:01:10 PM (GMT-6)


blueberrydecaf
Regular Member


Date Joined Jan 2010
Total Posts : 257
   Posted 9/2/2010 9:34 PM (GMT -7)   
thanks for all the great info! I will ask the B12 question. And it is a really good reminder to have someone around at the end of a colonoscopy because those drugs make me loopy and depressed for sure. Hopefully that will give me a clearer picture.
I bought some fruit/vegi smoothies today and some protein powder. I had been living off chicken and potatoes and bread and icecream - definitely stopped the diarrhea, so much so that now I think I'm the other way around! Good to hear there are ways stictures can resolve...!
K.

njmom
Veteran Member


Date Joined Apr 2006
Total Posts : 1884
   Posted 9/3/2010 2:16 PM (GMT -7)   
My daughter's stricture vanished after about a year - due to Entocort and the SCD diet.
 
While she had the stricture I even peeled tomatoes and strawberries.
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