New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

tsitodawg
Veteran Member


Date Joined Sep 2006
Total Posts : 845
   Posted 9/1/2010 1:37 AM (GMT -7)   
.

Post Edited (tsitodawg) : 11/14/2011 2:23:44 AM (GMT-7)


Grandpato2
Veteran Member


Date Joined Dec 2009
Total Posts : 681
   Posted 9/1/2010 1:43 AM (GMT -7)   
(Sigh) Dawg I understand how you feel! Not that I have drug dealing neighbours like you but I have had the feeling you describe. Frequently! It's a fight to maintain an evern keel thats for sure.
Male, 55 years old with Crohn's since 15 years old, diagnosed at age 46. Terminal ileum resected 2002. 5 months of remission. Crohn's has now been active since May, 2003. Had a gall bladder removed Nov. of 2009. Currently on Remicade every 8 weeks, Nexium, Iron, B-12 injection every 4 weeks, Morphine Sulfate as needed for pain. Cymbalta for long term pain control. In the past, 5-asa Salofalk, Asacol, Entocort,  Imuran and Prednisone.

Grandpato2
Veteran Member


Date Joined Dec 2009
Total Posts : 681
   Posted 9/1/2010 1:43 AM (GMT -7)   
I'm posting right away cause I see your online now.
Male, 55 years old with Crohn's since 15 years old, diagnosed at age 46. Terminal ileum resected 2002. 5 months of remission. Crohn's has now been active since May, 2003. Had a gall bladder removed Nov. of 2009. Currently on Remicade every 8 weeks, Nexium, Iron, B-12 injection every 4 weeks, Morphine Sulfate as needed for pain. Cymbalta for long term pain control. In the past, 5-asa Salofalk, Asacol, Entocort,  Imuran and Prednisone.

Grandpato2
Veteran Member


Date Joined Dec 2009
Total Posts : 681
   Posted 9/1/2010 1:47 AM (GMT -7)   
I've been fighting the arthritis these past 2 days. It seems the remicade is only helping for 4 weeks now and my gov't won't allow it more than 8 weeks. I am on an anti-depresant and I'm trying meditation to keep my thoughts and feelings positive. If you aren't treating depression maybe you should be evaluated. If your being treated maybe something else would be more benificial to you?
Male, 55 years old with Crohn's since 15 years old, diagnosed at age 46. Terminal ileum resected 2002. 5 months of remission. Crohn's has now been active since May, 2003. Had a gall bladder removed Nov. of 2009. Currently on Remicade every 8 weeks, Nexium, Iron, B-12 injection every 4 weeks, Morphine Sulfate as needed for pain. Cymbalta for long term pain control. In the past, 5-asa Salofalk, Asacol, Entocort,  Imuran and Prednisone.

Post Edited (Grandpato2) : 9/1/2010 2:52:07 AM (GMT-6)


potty pooper
Regular Member


Date Joined Dec 2006
Total Posts : 375
   Posted 9/1/2010 3:30 AM (GMT -7)   
So sorry you are having to deal with all of this. It's more than enough just to have this horrible disease, but having to deal with the neighbor situation too would have anyone ready to explode. No need to apologize for the rant; we all get to that point at one time or another.

Your post actually brought tears to my eyes. I have a daughter in her late 30's that has dealt with a chronic illness since childhood (not Chrohns). She has been robbed of a "normal" life; unable to work, have a child, often bedridden and in pain a good deal of the time; and now her marriage may be ending because her husband, who has been wonderful to her, is at the end of his rope trying to care for her, hold down a full-time job, and trying to dig out from under a severe financial situation, mostly due to medical bills.

You seem like a wonderful husband and are doing the best you can. Don't beat yourself up for not being able to do more for your wife. You did not ask for the hand you've been dealt. The best you can do is take full advantage of the times you are feeling ok, and take care of yourself during the trying times. Also, if I may offer some advice, if at all possible, don't have your wife be your sole care giver. She needs support too. Chronic illness takes a toll both on the patient and the spouse.

Is there any way you could get yourself removed from the situation with your neighbors? It has taken such a toll on your health. I know that's easier said then done but hope you can find a way to rid this stress from your life.

Wishing you well and sending (((Hugs))) your way. Feel free to rant whenever you need to.

Potty Pooper

NiceCupOfTea
Veteran Member


Date Joined Jan 2010
Total Posts : 8559
   Posted 9/1/2010 6:04 AM (GMT -7)   
I don't know if you are depressed in the true sense of the word or not, but you sound like a man tortured by guilt to me. I personally think the police are wrong to use members of the public in this way, and I think you should refuse to help them any longer and let them do the work they were trained to do. I don't think you are likely to take that course of action, so I just have to hope that for the sake of your health and your family this gets wrapped up sooner rather than later. I'm a bit worried that at this rate you'll end up giving years of your life to an ultimately futile fight which can't be won. I think drug dealers are pure scum making a profit off human misery, but as long as people want drugs it's hard to see how they will ever disappear.

In the meantime, from the sounds of it, I don't think you need to feel guilty about not being able to hold down a paid job. Not if you are genuinely disabled and you sound like it. I hope that things change for you soon.

Grandpato2
Veteran Member


Date Joined Dec 2009
Total Posts : 681
   Posted 9/2/2010 2:11 AM (GMT -7)   
I'm glad your feeling better! Please continue to rant as needed. My personal opinion on what your doing for you and your neighbours is that you deserve a freaking medal! For the night sweats, someone here mentioned trying buscopan,10mg 3 times a day to stop the sweats. I asked my Dr. and darned if it doesn't work quite well. It's not 100% effective but I only soak pillows occasionaly now, nothing else. I do sleep with fans on me full time but I did before the buscopan and regularly soaked sheets nightly. It's a great change. Maybe it would work for you.
Male, 55 years old with Crohn's since 15 years old, diagnosed at age 46. Terminal ileum resected 2002. 5 months of remission. Crohn's has now been active since May, 2003. Had a gall bladder removed Nov. of 2009. Currently on Remicade every 8 weeks, Nexium, Iron, B-12 injection every 4 weeks, Morphine Sulfate as needed for pain. Cymbalta for long term pain control. In the past, 5-asa Salofalk, Asacol, Entocort,  Imuran and Prednisone.

Shellybum
Regular Member


Date Joined Aug 2010
Total Posts : 69
   Posted 9/2/2010 2:38 AM (GMT -7)   
:-)
Hi
I just felt compelled tp reply to your post even though I'm new, I'm sooo sorry to hear about all your issues that you raised, and I'm sorry I can't offer you any kind of advice as I'm based in the uk, I feel that your doing a really remarkable thing in that your standing up for what you believe in, despite the fact that you have a whole load of personal issues as well, bloody good on you !!!!

Just as a thought, you mentioned about a neighbour helping as well, but what about the community as a whole ?? I don't know how you all feel on here but community has been seriously lacking over the years!!! I feel like we' ve all become quite isolatory but thankfully in the uk, things are slowly beginning to change, more monies from local and national government is becoming available and it's about time.

Sorry for my little rant there !!!

I think that you sound like one he'll of a gutsy guy who is doing his dam best, what more can you ask for !!!! Your entitled to have rants,express your opinion etc but please don't beat yourself up !!! Your only human.

You sound to me like a good bloke with a good mntal attitude towards life, good morals, values etc and a very solid loving family.

This forum seems to me to be a good place to vent off, and judging by peoples comments, a very supportive.

By the way I love your very English statement about having a nice cup of tea !!!! Lol !!! I love my tea, people call me the teapot. !!! But alas at the mo, can't drink as much of it as I'd like !!!!

I hope that I haven't offended you as you don't know me, but my reply basically is keep your chin up me old mukka !!! As we say !!! But don't feel bad when you can't !!!! Have a nice cup of tea!!!! smilewinkgrin

Stef17
Veteran Member


Date Joined Feb 2003
Total Posts : 1811
   Posted 9/2/2010 6:40 AM (GMT -7)   
Hey dawg - we've all been there. It's not easy and when you feel wiped out every single day it's hard not to get frustrated. Sometimes we lose perspective. Especially with the high standards we've been taught and all that we know we are responsible for doing in this life. That being said, give yourself some credit - you're in your 30's and you actually got approved for disability!!! That doesn't happen - unless - you're really, truly, that sick. And you are. So don't be so hard on yourself. You're doing all you can do. The Lord has provided a way for you to bring in some income despite not being able to work and He has blessed you with an understanding wife. It's ok to be frustrated and you can vent to us. We get it. As far as your situation with your neighbors, I would move. I've told you that before. It is noble to think that you could spare someone from living in your situation, but that's not entirely your responsibility. Your family is your first responsiblity and if you would be better off in a different neighborhood, then I would move. But... since I know you won't, then good for you for standing up for yourself. Don't get yourself in too much trouble! I think a protection order isn't a bad idea if you can do it. And get a blessing. That'll help you put some things in perspective. Keep your chin up.

CrohnieToo
Veteran Member


Date Joined May 2003
Total Posts : 9448
   Posted 9/2/2010 8:51 AM (GMT -7)   
Hey, typing it out is often easier than talking it out. Heck, I've even resorted to writing some SCORCHING letters to a business or person who has torqued my jaws and just kept writing and re-writing it, editing it, adding to it, subtracting from it until I was so bored w/the issue I just threw the "letter" away w/o sending it. Sure did make me feel a whole lot better to get it off my chest tho!!!! *wicked grin*
My computer says I need to upgrade my brain to be compatible with its new software.

MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 9/2/2010 9:10 AM (GMT -7)   
so sorry
Forum Co-moderator - Crohn's Disease/Thyroid Disorders: All comments have the caveat contact your local health care provider.
I will find a way or make one. –Phillip Sidney 1554-1586
All that I am and all that I shall ever be, I owe to my Angel Mother.
The Bucket List- Have you found joy in your life? Has your life brought joy to others?
Make sure your suffering has meaning…
New Topic Post Reply Printable Version
Forum Information
Currently it is Wednesday, December 07, 2016 5:29 PM (GMT -7)
There are a total of 2,734,357 posts in 301,205 threads.
View Active Threads


Who's Online
This forum has 151325 registered members. Please welcome our newest member, artgal234.
378 Guest(s), 8 Registered Member(s) are currently online.  Details
don826, Celeste15, Artist Mark, Wanda1225, Huddie, ChickNorris, Fairwind, artgal234


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer