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ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 9/1/2010 2:42 AM (GMT -7)   
Sorry. Late again. Horrid symptoms this morning.

So far this afternoon, with the assistance of Immodium and painkillers, I have:

* showered and dressed
* managed (and don't ask me how) to change my sheets
* """"""""""""""""""""""""""""""""""""""""" get some groceries
* gone to appointment


I really need to try to tackle the obscene pile of dishes that have mounted in the kitchen while I was unable to stand for long... and am starting to work on that now, while the painkillers are still in effect.


Choc, Becky, how are you both?


Ivy.
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~

ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 9/1/2010 2:44 AM (GMT -7)   
ps. Oh yeah, and over the last few days I have worked on getting the legs respectable again, and have prepared my books for reselling. Little else to report, though.
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~

Becky77
Veteran Member


Date Joined Dec 2005
Total Posts : 1768
   Posted 9/1/2010 3:22 AM (GMT -7)   
I managed yesterday to go to the library and get a check and deposit it for my insurance (I'm so sick of asking Dad for more money. It seems every time I turn around an extra bill is in the mail :( At this rate Dad will never be able to retire...) Also dropped rx off at Walmart and picked up a few groceries. I'll soon see how much B12 shots cost me..I'm hoping it's cheap!

I'm "on call" today. Friend's pipes are messed up and toilets are leaking into downstairs of the house, and also washer isn't working...they can't be home today if plumber is able to come, so I will go meet him and let him in the house. Hopefully he can fix it and I'll try to help out by running the washer and doing some dishes for them. This is the same friend who has the 3 month old and had to take care of her parents sick dog (who has been put to sleep now :( ) They just can't catch a break. She's so overwhelmed and I feel bad that she doesn't have any time to catch up. Oh, and because of pipes, I'll probably have to re-steam clean carpets...good for me because it means I'll make money, bad for her because she's paying plumber AND me.

Also will try to deposit a check in Mom's account that she puts money into for me. I love my Mom SO much...she sneaks money to me (without telling Dad) by giving me her extra account card and I can use it for gas and things food stamp card doesn't cover...like toilet paper!

Ivy, you need a good day. Sorry you've had a rough few days. Try to do a little at a time so you don't overdo it! And rest...you probably need it. Don't push yourself too much. Also, doesn't it feel good to have legs all cleaned up? I always feel good after shaving! Nice smooth legs, I always put good smelling lotion on....aaaaah!
Becky

32 yr old female-dx with Crohn's in '97 after emergency resection and appendectomy, 2nd resection '05, Bilateral pulmonary emboli 10/09
Currently on Humira, Omeprazole, Effexor, Seroquel, Calcium, Vit D
Coumadin stopped 3/15/10!!!!

ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 9/1/2010 3:33 AM (GMT -7)   
Venting with you: aren't you sick and tired of not being able to be fully independent, despite being in your 30s, and despite your very best efforts? It can be so hard to feel like a grown-up with this horrible illness, between the bottom issues and the money issues and the extra need to rely on others when we're very ill... Bah. I sympathise, Becky, I really do.

Your poor friend. This really isn't her month either, is it?

I agree with you about the legs - stubble is horrible :-).

Becky, I have pain building up so I'm going to head to bed. I hope your day on call goes as well as it can.

'night.

Ivy.

ps. I think we ALL need some good days. We all seem to be doing it tough just now :-(
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~

NiceCupOfTea
Veteran Member


Date Joined Jan 2010
Total Posts : 8581
   Posted 9/1/2010 5:27 AM (GMT -7)   
I'm sorry it's so bad for you, Ivy.

I feel sick with myself right at the moment. My disease isn't that bad. I'm not crippled or chained to a toilet or so fatigued I can barely stand. I really am just a dosser who - for the vast majority of my disease - could have worked. If I wasn't such a useless misfit.

chocholic
Veteran Member


Date Joined Apr 2006
Total Posts : 634
   Posted 9/1/2010 5:47 AM (GMT -7)   
NCOT - dont call yourself a useless misfit! or else i will track you down and kick you as hard as i can (which may or may not result in a bruise since i'm a total weakling!)

Not too much on today, still down but have certain things to do to get on with my benefit claim. I checked my bank account today and 192 pounds were paid to me off the benefit office. Yay, so i finally paid my mobile bill (SO overdue!) and ordered a DVD boxset for my surgery.

* change cat litter - done
* get ready for nurse appt
* go to nurse appt
* get ready for gp appt
* go to gp appt
* fill in abit more of the HUGE scary questionaire for the benefit claim
* write list of questions for surgeon appt tomorrow
* keep eye on kittens as both have dicky tummies today
Dx - Crohn's (2006), Depression (2010)
Currently - Humira fornightly, iron infusion weekly, B12 3 monthly, prenatal vits+minerals, 15mg prednisolone, calcium supplement, mirtazapine
Tried - aza, pentasa, questran, infliximab
No crohns' surgeries to date, Episcleritis for 3 weeks x 2, pains in hands, wrists, hips, lower back, knees and ankles

Allergic to Infliximab
Was at uni, but have paused the course to try to figure out my health!

NiceCupOfTea
Veteran Member


Date Joined Jan 2010
Total Posts : 8581
   Posted 9/1/2010 6:28 AM (GMT -7)   
I am a useless misfit and there is nothing I can tell myself to make me believe otherwise. I can't use Crohn's as an excuse. Not when so many others with Crohn's work their arses off just to make a living (like my brother for a start, but also many people on here) or are genuinely hampered by their disease. I'm occasionally hampered but not enough to stop me from holding down a job. I just don't have the motivation or the will to drag myself into a job for day after day, and that's my character failing. I was useless from the day I was born, and if you knew the story of my life you'd understand why.

Anyway, tlcs... :/

*Drive into Aylesbury to do a couple of things - return a PS2 game, bit of food shopping
*Feed fish (do this before driving into Aylesbury)

That's it for now... Tomorrow am going to take my nephews to Chessington Zoo, presuming nothing is cancelled or changed. I don't really want to do this, but I promised I would and the older lad has been really looking forward to it.

Becky77
Veteran Member


Date Joined Dec 2005
Total Posts : 1768
   Posted 9/1/2010 7:32 AM (GMT -7)   
Though I CAN work, I can't find a job. I feel completely useless. At least if the disease is the reason you're not working, you have an excuse....me...I have no excuse. I'm 32 and have my own house, but now my parents are paying ALL my bills. It's humiliating. I went to school for 2 years to learn xray, worked for 7 years at a hospital, then lost my job (I think they were looking for a reason to get rid of me because I went through a rough patch and missed days of work and they couldn't penalize me for crohn's related absences). I feel at times that I'm going backwards. I look around at my close friends and they're getting married, moving into bigger houses, having babies, working, making money, contributing, etc, and I'm at home going crazy.

I feel like I should have tried harder to be at work. Of course hindsight is 20/20, so looking back I see I should have worked every day I possibly could get there, but there's nothing I can do now but continue to look for work.

ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 9/1/2010 4:42 PM (GMT -7)   
Becky, you were talking (joking?) before about maybe moving to Canada. Would you consider moving to Aus? We have a skills shortage here, and your skills are needed and in short supply. Good health-care system, too...

I know there has been some research published on how difficult teens with chronic illness find it hard to feel grown up while they're still so dependent on others for their needs. I think more needs to be researched / written / acknowledged about the problems experienced by people our age, too, because these issues don't go away and, in some ways, only compound with time.

I wish I could magic up a job for you, Becky.

Why I think NCOT is a total super-star:

* she can drive
* she gets out of the house :-o
* she takes two little boys for days out, even though she's sick (wow!!!)
* she is being a really cool aunt and I'll bet her nephews love and (more importantly) like her heaps
* she is wise and compassionate and has lots of life experiences and great insights that she's really generous in sharing with others
* she can WRITE

That's six for starters. I'm sure I'll be able to think up more when I'm more awake.

Ivy.
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~
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