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comedybob
Regular Member


Date Joined Jan 2010
Total Posts : 241
   Posted 9/2/2010 8:34 AM (GMT -7)   
my boy is into week 3 of LDN. he started at .5mg and will be up to 2 mg as of tonight. so far, only one odd dream.
on the plus side, he says he does feel better, hungrier, and has no stomach aches.(he had the occasional pang depending on what he ate). Last night he sat at the dinner table and picked at the salad until it was all gone. that's new.
i don't know if it's making a difference yet, but it doesn't seem to be bothering him.
bob b
13 year old son diagnosed at 9,
one month of pred at beginning
2 years of immuran ineffective
he has plateaued again at 67 lbs(up from 58 in January'10)
Started LDN on Aug 16th, hopeful

considering Remicade

vixen
Veteran Member


Date Joined Jan 2010
Total Posts : 794
   Posted 9/2/2010 11:15 AM (GMT -7)   
That's really positive news, fingers crossed that things continue well.

comedybob
Regular Member


Date Joined Jan 2010
Total Posts : 241
   Posted 9/2/2010 12:32 PM (GMT -7)   
I will let everyone know. It looks good for now, fingers crossed.

bob b
13 year old son diagnosed at 9,
one month of pred at beginning
2 years of immuran ineffective
he has plateaued again at 67 lbs(up from 58 in January'10)
Started LDN on Aug 16th, hopeful

considering Remicade

janicea
Regular Member


Date Joined Feb 2009
Total Posts : 350
   Posted 9/2/2010 1:44 PM (GMT -7)   

njmom
Veteran Member


Date Joined Apr 2006
Total Posts : 1884
   Posted 9/3/2010 2:22 PM (GMT -7)   
I'm so glad to hear this!  

comedybob
Regular Member


Date Joined Jan 2010
Total Posts : 241
   Posted 9/7/2010 6:02 AM (GMT -7)   
weight seems to be creeping up a bit. hovering around 68-69 lbs. not a big gain, but he's not even up to full dose yet.
bob b
13 year old son diagnosed at 9,
one month of pred at beginning
2 years of immuran ineffective
he has plateaued again at 67 lbs(up from 58 in January'10)
Started LDN on Aug 16th, hopeful

considering Remicade

Roni
Veteran Member


Date Joined May 2003
Total Posts : 2480
   Posted 9/7/2010 8:04 AM (GMT -7)   
awesome comedybob. I hope he gets better fast.

dinkydee
Regular Member


Date Joined May 2009
Total Posts : 201
   Posted 9/7/2010 8:48 AM (GMT -7)   
May I ask where you are located? My neice is 15, diagnosed when 13, her doctors haven't been interested in considering LDN. 

comedybob
Regular Member


Date Joined Jan 2010
Total Posts : 241
   Posted 9/7/2010 9:16 AM (GMT -7)   
we are located in Alberta, Canada. most of the Doctors here haven't even heard of much less considered LDN. the Dr. we take him to is trained in Environmental Medicine(another field not considered valid in Canada) and he is up on most experimental treatments.

bob b
13 year old son diagnosed at 9,
one month of pred at beginning
2 years of immuran ineffective
he has plateaued again at 67 lbs(up from 58 in January'10)
Started LDN on Aug 16th, hopeful

considering Remicade

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 9/7/2010 2:05 PM (GMT -7)   
I am glad its working for him so far:) We have had members who have done well with it, and others it didn't work for. I hope for your little guy's sake that it keeps working. Hugs!
Gail*Nanners* Co-Moderator for Crohns Disease 
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

dinkydee
Regular Member


Date Joined May 2009
Total Posts : 201
   Posted 9/7/2010 4:08 PM (GMT -7)   
My niece is Oklahoma, I'm in Maine. Do you know the specific link on yahoo.? I hope all goes well, keep me posted thanks...Oh could you tell me a little about his crohns disease history....symptoms, location etc. Thanks
Diagnosed with CD 2006.  Refused to take meds until recently started Colazal. 
 Currently on Prednisone 40mg. Tapering down, now on 20mg.
Colazal 3xday, Antioxidant strips
 Off of the Prednisone!!
I live by faith and not by sight....

spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 9/7/2010 9:39 PM (GMT -7)   
Actually, you don't even need a doctor on board. I buy the 50 mg pills, and make the LDN myself. Much cheaper too :-).

Scroll about 1/3 down the page:

http://www.webspawner.com/users/howtoobtainldn/index.html
35 years old, Crohn's disease for 15 of them
Resection of ileocecal valve on 09/22/09
Current Meds: LDN, Pentasa, Effexor XR
Supplements: 3 kinds of Fish Oil, Multi-Vitamin, Vitamin D, Calcium, CoQ10, Enzymes
SCD since 12/01/08 - eating Stage 3 foods
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