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Regular Member

Date Joined Oct 2008
Total Posts : 114
   Posted 9/2/2010 5:35 PM (GMT -6)   
I'm not really wanting to ask my doctor this because I don't really want to know the answer, but I'll ask here and see what your thoughts are.

How often do you, or should we as Crohnies, have a colonoscopy?

I've thought about this for a while and just keep "forgetting" (sometimes even unintentionally) to ask my doctor. Thanks folks!
Diagnosed with Crohn's in July 2005. 2 Bowel Resections in 2008.
Currently taking Pentasa 1000 mg 4X/Day, 6MP 100 mg/day, multivitamin, Lopressor 100 mg/day (Blood Pressure), Remicade IV every 8 weeks, Omeprazole CR 40 mg/day, Lomotil BID, Immodium BID, Cholestyramine 2 grams daily

Regular Member

Date Joined Aug 2010
Total Posts : 486
   Posted 9/2/2010 6:03 PM (GMT -6)   
Unintentionally <LOL> I think we would all like to 'forget' to have these ;P
My GI does them every two years if all is 'well' and otherwise whenever he needs to see whats going - which has been 3 this past year with another scheduled for next wednesday :(
He tells me 2 yearly is good because even if symptoms are OK the disease may still be running rampant so these colonscopys help determine effectiveness of meds, progress of disease plus a bonus cancer screening.
Be well :)

Regular Member

Date Joined Sep 2008
Total Posts : 457
   Posted 9/2/2010 6:38 PM (GMT -6)   
I go every 5 years because I always have issues afterward.
Dx'd with Crohns 1984
Polycystic kidney disease in 1996

Bowel Resection 2006, Now on Asacol, Imuran, Folic acid, B-12 injections and Enalapril.

Veteran Member

Date Joined Dec 2005
Total Posts : 1768
   Posted 9/2/2010 6:58 PM (GMT -6)   
Yearly, or every other year, because I've had Crohn's for 13 years and the incidence of colon cancer increases after 10 years. Before that I only had them every 5 years or when I showed symptoms of stricture and they would try to dilate the stricture.

32 yr old female-dx with Crohn's in '97 after emergency resection and appendectomy, 2nd resection '05, Bilateral pulmonary emboli 10/09
Currently on Humira, Omeprazole, Effexor, Seroquel, Calcium, Vit D
Coumadin stopped 3/15/10!!!!

Veteran Member

Date Joined Sep 2006
Total Posts : 2527
   Posted 9/2/2010 10:42 PM (GMT -6)   
It depends on how active my disease is. I now have Medicare being on disability and they only cover the cost one time every 2 years (not sure how flexable that is in time of flare etc) this will be my 1st scope using the medicare my last was oct 31 of 2008 and I am having bleeding so I go in 3 weeks.
Dx with Crohn's 1987, symptoms as early as 1984.
Temp iliostomy February 2007, reversed June 2007, Ovarian cysts, migraines, allergies (incl food allergies) , oral allergy syndrome (diff than true food allergies), Asthma, Gall Bladder removed 1999, Inguenal hernia 1987

potty pooper
Regular Member

Date Joined Dec 2006
Total Posts : 375
   Posted 9/3/2010 6:07 AM (GMT -6)   
My dr recommends at least every two years because of increased cancer risk in people with IBD.

Veteran Member

Date Joined Jan 2010
Total Posts : 8424
   Posted 9/3/2010 7:34 AM (GMT -6)   
I've had 4 colonoscopies in 10 years, so that's one every 2.5 years. They've not been quite that evenly spaced out, however. I had one in 2000 (this was when I was diagnosed). I can't remember when the 2nd one was, but 2005 seems like a reasonable guess. Then I had one done in 2007 and one done this year.

How often you should have a colonoscopy isn't set in stone. It depends on the location of your disease, the severity of it, your bowel cancer risk, etc. But for most folks probably once every 2-3 years is a safe bet. Less if your disease is mild or in remission.
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