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ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 9/2/2010 5:02 PM (GMT -7)   
My main tlc for today is a cup of tea with a friend: my first social thing in MONTHS.

* shower and dress
* tlc for hands
* do some more tidying
* some / all dishes
* write card
* post card
* talk to family
* make / straighten bed
* rest as needed
* some movement / stretching


That's it for me: anything else is a bonus.

Have a good Friday, everyone.

Ivy.
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~

Becky77
Veteran Member


Date Joined Dec 2005
Total Posts : 1768
   Posted 9/2/2010 6:06 PM (GMT -7)   
Got the vacuuming and grass done today. Also "dusted" bedroom by vacuuming with attachment.

For Friday:
Move some mulch and fill in empty bed
Bag limbs cut from tree (they've been there for too long, I'm tired of seeing them!)
Go to Dominos and fill out application!!!!

Thanks for the congrats Ivy! It won't be a lot of money, but it's something!
I hope you enjoy your tea with the friend! Also, are you feeling a bit better since you're heading out for tea? Does stretching help your aches?

Choc-hope your arm is feeling better today!

ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 9/2/2010 7:30 PM (GMT -7)   
Ha. Last time I tried vacuuming by bedroom with an attachment, I sucked up my favourite lipstick. I'm not going to try that again!!! :-).

tbh, I'd really rather not go today, and just spend the afternoon in bed, which is where I've been all morning. But it really bothers me how little I've been doing sociallly this year, and the friend is one of the world's special people, and i'd hate to lose touch with her, so in this case the friendship is worth the expenditure of today's spoons. But oh! I'm tired and fragile.

Good luck filling in that application! I'm keeping my fingers and eyes crossed for you :-).
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~

chocholic
Veteran Member


Date Joined Apr 2006
Total Posts : 634
   Posted 9/3/2010 1:20 AM (GMT -7)   
Monkiray - best of luck filling out the application!!
Ivy - go and have some fun, even though you will be tired afterwards. You'll enjoy it.

I ended up putting another bandage on my arm, it was just so sore rubbing against my boobies. Not fun!! This is where i wish i could just deflate them abit!

Friday TLC

* get dressed - done
* sort plant out and put upstairs
* try to keep warm as its freezing today
* cuddle the kittens - done some but need way more
* try to do some dishes as they are building up

Really my surgery is only about 2 months away. I have to choose my surgery, otherwise nothing would be organised. Like food, or people to take care of me straight away, you know stuff like that. Plus i can stock up on really nice PJ's to help me feel better after the surgery. I'm alot more settled about it now. I know there is a date and something is going to happen. Before it was like nothing was ever going to change.
Dx - Crohn's (2006), Depression (2010)
Currently - Humira fornightly, iron infusion weekly, B12 3 monthly, prenatal vits+minerals, 15mg prednisolone, calcium supplement, mirtazapine
Tried - aza, pentasa, questran, infliximab
No crohns' surgeries to date, Episcleritis for 3 weeks x 2, pains in hands, wrists, hips, lower back, knees and ankles

Allergic to Infliximab
Was at uni, but have paused the course to try to figure out my health!

ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 9/3/2010 2:32 AM (GMT -7)   
Breasts are annoying, aren't they? I know they're supposed to be attractive, but I agree: it'd be nice to be able to deflate them so they could stop getting in the road and rubbing on things. I hope you are feeling more comfortable now.

I'm glad you're feeling more settled about the surgery. It helps to know that something's being done, doesn't it?

How are things at home and with family, Choc? Have you seen your psych person yet?

* shower and dress - yes
* tlc for hands - yes
* do some more tidying - ha. Not yet.
* some / all dishes - ditto. Eek.
* write card - no
* post card - no
* talk to family - yes
* make / straighten bed - yes
* rest as needed - yes. In bed for most of the morning.
* some movement / stretching - yes. Tried to walk up the main street. Found it really hard going, too, which is pretty startling given it's not a long street.

I have zilch motivation tonight, but maybe I can take a leaf out of Choc's book and just do a few dishes...

Where are you, NCOT? How are you?

Ivy.
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~

chocholic
Veteran Member


Date Joined Apr 2006
Total Posts : 634
   Posted 9/3/2010 3:03 AM (GMT -7)   
i'm seeing him next week on thursday. Family problems are settling slowly but mum still doesnt actually see my point. I asked her not tos ay things like ' you should be grateful to have your food paid for' cos it made me feel incredably not wanted. She just said that wasnt how it was intended. I dont really see how else it could be intended. Her fella is coming abck tonight to finish fixing the boiler so hopefully there will be heat and hot water tomorrow, although i wont be able to have a hot bath till he leaves.

I'm REALLY cold, so am in the living room with a heater on, and jumper. still cold though.

Not sure i'll be getting too much done today.

* cuddle kittens - yes, they came and cuddled up to me, which was lovely as i then had two hot water bottles!!
Dx - Crohn's (2006), Depression (2010)
Currently - Humira fornightly, iron infusion weekly, B12 3 monthly, prenatal vits+minerals, 15mg prednisolone, calcium supplement, mirtazapine
Tried - aza, pentasa, questran, infliximab
No crohns' surgeries to date, Episcleritis for 3 weeks x 2, pains in hands, wrists, hips, lower back, knees and ankles

Allergic to Infliximab
Was at uni, but have paused the course to try to figure out my health!

ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 9/3/2010 3:16 AM (GMT -7)   
I thought that her saying "you should be grateful that fella and I are bending over backwards to make you feel included" was a bit iffy, myself. You're her daughter. You're already her family. You ARE & should be included, by virtue of being a family member, if you ask me. Older forum members might have a different perspective, though.

Are you spinning a bit of your new allowance her way in board? That might help the parental resentment (if that's what it is) a bit.

How cold is it there? Do you know what the temp is?

I've done most of the dishes. Keep coming back here, though, as it's where the heater is and the rest of the house is chilly tongue . I'd share the heater if you were here, Choc.

Ivy.
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~

ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 9/3/2010 3:26 AM (GMT -7)   

chocholic
Veteran Member


Date Joined Apr 2006
Total Posts : 634
   Posted 9/3/2010 5:42 AM (GMT -7)   
Yeah i help out buying food mostly. Bought some groceries yesterday plus i'm saving up £200 to have our gorgeous lab x great dane euthanised. He's 16 bless him.

Not sure what the temp is, but its warmed up now. Thank god!!!

Very much not impressed, i took the bandage off my arm about an hour ago and spotted a bister under the plaster the nurse put on. Off came the plaster, rinsed it off and one call later to NHS direct, a different plaster on the blister and a new gauze pad on the implanon would and a bandage on top.
Seems i am now allergic to a certain plaster. Joyous!! Just got to try to work out what plaster i'm allergic to.

* sort out plant and take it upstairs - done
Dx - Crohn's (2006), Depression (2010)
Currently - Humira fornightly, iron infusion weekly, B12 3 monthly, prenatal vits+minerals, 15mg prednisolone, calcium supplement, mirtazapine
Tried - aza, pentasa, questran, infliximab
No crohns' surgeries to date, Episcleritis for 3 weeks x 2, pains in hands, wrists, hips, lower back, knees and ankles

Allergic to Infliximab
Was at uni, but have paused the course to try to figure out my health!

NiceCupOfTea
Veteran Member


Date Joined Jan 2010
Total Posts : 8556
   Posted 9/3/2010 6:10 AM (GMT -7)   
@Ivy - I hope you enjoy the cup of tea with your friend :p I understand the feeling of not wanting to go 100%. I've always found talking oddly exhausting; at least on the internet you can just log off if you get tired or your mind goes blank, but face-to-face you can't really let the facade of sociability slip. However, that said, I have nearly always felt better afterwards for making the effort to see somebody.

@monkiray - Good luck with your application. Hope you get the job.

@choc - Good luck with your psych person. Not too sure what's going on there with you, but weirdly enough I also have an appointment with a psychiastrist on that day! God knows what I'll say :-/

Anyway, today's TLCs:

- feed fish
- walk down to surgery to pick up 6MP

That's it for now. I'm still feeling rather tired from yesterday, when I took my nephews to Chessington Zoo. I also did the driving, which involved a long motorway trip. Being a fairly new driver with only a little experience of motorways, this was tiring in its own right. But we had a really fun day all the same; went on all the scary rollercoaster rides with the older lad >_>. I was terrified for my stomach, but in the event it held up impressively well. I wasn't sea sick from the rides (believe me, I'm prone to sea sickness), but I do put that mainly down to the long queues: had to queue up for so long for each ride my stomach fully recovered during the wait <_<. It caught up with me later on; my stomach hurt all evening but the fact that I wasn't ill during the day was the main part.

You might be wondering where the animals were in this "zoo", and if so, we didn't really get to see that part of it. We visited the children's zoo and an aquarium called Sealife World, or something like that. The younger boy was a delight to be with, showing a touching eagerness at the sight of each and every animal and fish. The older boy just wanted to hurry us along to get to the next ride ¬_¬

*sees time* All right, lunch time. I'm actually knackered and it's only 2pm :-/

Becky77
Veteran Member


Date Joined Dec 2005
Total Posts : 1768
   Posted 9/3/2010 10:27 AM (GMT -7)   
The application and paperwork are a formality if anything. I know I have a job with him, I just don't know how many hours I'll be able to get and how much I'll make. I'll probably go to orientation next Wednesday, then work (hopefully) soon after.

I completely understand the not feeling like doing things with friends, though I force myself to do things even if my heart's not really in it. I don't want to get to where I don't see friends at all, and I do end up enjoying myself when I do go out. Sometimes the things we don't feel like doing are the things that are best for us!

NCOT-Sounds like you and the boys had a blast! I'm sure they'll remember it for a long time, and appreciate you for taking them. How old are they? My nephews are 7 and 9 and so much fun!

Choc-Too many people I know are having to put their pets to sleep. Sorry to hear that you'll be losing a pet as well. My parents will have to soon also. Their older dog is 17 and is partially blind, partially deaf, and incontinent.
Is your arm feeling better now that the plaster is changed? Oh, and I did have my boobs "deflated"....hehe....reduced actually. It was the best thing I've done for myself, and I got insurance to pay for it!

I'm going to clean a bit and relax. My hand is hurting today (probably from doing yardwork yesterday) and I'm going to baby it for a while.

vixen
Veteran Member


Date Joined Jan 2010
Total Posts : 794
   Posted 9/3/2010 11:56 AM (GMT -7)   
Just wanted to say well done to everyone for the steps made.
NiceCupof tea, especially feel for you driving along a motorway as a fairly new driver-I have been driving for years and still get a knotted stomach at the prospect(have to move dd back to uni shortly up the A1 and already dreading it!!) Also re Chessington, we took ds, dd to Alton Towers a few weeks back(believe it owned by same company as Chessington) I had written a letter to them re queuing and son's condition but not getting disability allowance etc. They replied(after we had been :D ) basically saying if he had a consultants letter of diagnosis and photographic ID they would give him(and upto 4 others) a disabilty wristband which would mean that he didn't have to queue. If you go again, worth remembering. Just wish they had replied sooner!!

As for me, have felt really low today, almost to the point of tears. I don't know what's up I guess it is just a little bit of everything, dog ill, dd going away again, dh still away,ds having probs now he off the pentasa to the point have re-started it again, all the bills have come at once and everything is breaking down too. I guess I should stop feeling sorry for myself as I do have my health after all and so I should be grateful for that. It is all trivial matters compared to what all you face on a daily basis. If I could give you all a medal I would!!

mdf34
Veteran Member


Date Joined Feb 2010
Total Posts : 925
   Posted 9/3/2010 12:31 PM (GMT -7)   
I think there will just be a plain old bit of taking it easy today.
Washed both vehicles wed.
Took the one in to get an oil change thurs and went to the book store.
 
So yeah, since this is the last day of my weekend..........take it easy sounds good.
Diagnosed (FINALLY) UC Sept 09/Diagnosis amended 5-3-10 to Crohn's
Taking Pentasa 500mg/8x/day
Entocort 3X/day
Bentyl as needed
1000 mg Vitamin C
Prilosec 1X/day
Flonase
Caltrate-D 1000mg/day

NiceCupOfTea
Veteran Member


Date Joined Jan 2010
Total Posts : 8556
   Posted 9/3/2010 6:12 PM (GMT -7)   
Another evening lost to general lassitude :-/ ... I've recovered partially but darn: it's 1am so a bit of a waste of time now :-/ ... Also suffering quite a bit with pain at the moment. Why does it all-but-disappear for a while, come back, disappear, come back again, and so on? >_<

@monkiray - Ah okay. That's good that the job is a definite. Which reminds me: I'm seeking voluntary work. Just 1 day a week to begin with, to see how I cope with that. It might reduce my sense of sheer and utter uselessness a little bit. And if it does, it will be worth it.

My nephews are 9 and 4 :p ... That's quite a big age gap but they do play a lot together. They've got quite different temperaments, but I like/love them both equally <_<.

@choc - I'm sorry about your dog. At least he reached a brilliant age, especially for a big dog like a Great Dane (even if he's only part one). It's still horrible when the dog is no longer around, though... :-/

@vixen - It was the M25 as well. For 11 junctions ;p But actually it wasn't as bad as I feared. I had done a practice run a few days earlier, just to make sure I could handle it. And I did; somewhat luckily, it 'clicked' into place almost immediately. But I had been driving for a few months beforehand on the A41, plus I had a motorway lesson with my ex-instructor, so I was about as prepared as I could be. To be honest, I find town centre driving harder, especially if there's lots of roundabouts with endless streams of traffic. I used to have a terrible fear of roundabouts as a learner and even now I will still occasionally find a busy roundabout nerve-wracking.

Cheers for telling me about the disability wristbands! It's certainly something to consider for next time (when our meagre finances have got over the battering of the visit just gone). I would feel a teensy bit guilty considering I rarely have urgency with extreme prejudice. But I feel like today and last night would have compensated for that by now :-/

And finally a *hug* for feeling so low :/
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