Thank you for thinking of me....Mine is from my hips to my toes. I get charlie horses, joint pain, twitching, shooting pain, and overall soreness. Not all at one time, but migrating back and forth between legs and never above my hips. They just don't know. I've been everywhere, tested for most everything. But its weird they never did an MRI or CT scan, just an Xray and EMGs. I will be fine one minute and then fall to the ground the next, screaming in pain. Its the weirdest thing ever. I think I'm gonna end up in a straight jacket soon if they don't figure this out. Bc I don't want to live like this anymore. I am not a depressed person, but enough is enough, and this aint livin. Just gotta keep the strength to keep pressing the drs. I use to be positive about this, but after a year and half it doesn't look like it will be resolved. I've tried neurontin, lyrica, cymbalta, everything that treats generalized pain, and it doesn't even touch it. The only thing that does is hard narcotics, which makes me look like an addict. I would rather die than be a drug addict. All I want is to be normal.... I'll deal with the crohns, but now I cant even drive for fear that I might not be able to hit the breaks in the middle of an attack. THe good thing is it is mostly at night, so I can work all day, but then go straight to sleep for fear of the attacks.
Current meds: Remicade
Tried: Prednisone, sulfasalzine, lialda, antibiotics, imuran
29 yr old female w/ crohn's colitis and SEVERE leg pain