scar tissue question

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dragonfly137927
Veteran Member


Date Joined Sep 2006
Total Posts : 2527
   Posted 9/4/2010 2:05 PM (GMT -7)   
hi all,
 
I have been wondering if my recent pain could also be attributed to scar tissue from my surgeries.  I know with all the ones I had (the 4 from 07-08) each time they had to go back in due to complications and had to remove more scar tissue each time.  Is there any non-invasive way to rid you of scar tissue like a ballon like they use for other medical issues to stretch things?  ..or is there just the under the knife way to rid one of the scar tissue?
 

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 9/4/2010 5:30 PM (GMT -7)   
Most doctors will not do surgery to remove scar tissue, because having more surgery will only create more scar tissue. I do know that I get alot of pain in my right side, and I know its from scar tissue/adhesions. I just take my pain meds when needed.
Gail*Nanners* Co-Moderator for Crohns Disease 
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

dragonfly137927
Veteran Member


Date Joined Sep 2006
Total Posts : 2527
   Posted 9/4/2010 7:44 PM (GMT -7)   
That is my current treatment I was just hjoping they had a balloon treatment as they do for some other things such as blocked arteries or my uncle his esophagus shrinks to the point where he chokes so they do an upper endoscopy and place a balloon to open it up was wondering if there was some sort of proceedure like that for us crohnies for built up scar tissue
Dx with Crohn's 1987, symptoms as early as 1984.
Temp iliostomy February 2007, reversed June 2007, Ovarian cysts, migraines, allergies (incl food allergies) , oral allergy syndrome (diff than true food allergies), Asthma, Gall Bladder removed 1999, Inguenal hernia 1987
 
 
 

janicea
Regular Member


Date Joined Feb 2009
Total Posts : 350
   Posted 9/4/2010 9:23 PM (GMT -7)   
I have a great adhesion surgeon. He found after a failed adhesion surgery the year before that the previous surgeon had missed that a part of my small bowel was trapped in a "bag" of adhesive tissue. he released it and I could eat. it made a big difference. he spent extra time going over my ENTIRE intestines and small bowel and colon (laproscopically) to make sure there weren't any others. I've learned the hard way, you just need the right person. The guy is a saint, like nanners said, most guys won't do it, but he does, I had to travel to get to him and I'd do it again in a heartbeat. As far as internal scarring - i'm okay that way since low dose naltrexone straightened me out. if you want the name of the doc, let me know. he's in pennsylvania.

dragonfly137927
Veteran Member


Date Joined Sep 2006
Total Posts : 2527
   Posted 9/4/2010 9:59 PM (GMT -7)   
Pennsylvania is a bit far to travel I had a wonderful Colorectal surgeon when I was in Rhode Island but a little over a year ago I moved to Oregon and everything is so far away I think the closest Colorectal to here is in Northern Cali
Dx with Crohn's 1987, symptoms as early as 1984.
Temp iliostomy February 2007, reversed June 2007, Ovarian cysts, migraines, allergies (incl food allergies) , oral allergy syndrome (diff than true food allergies), Asthma, Gall Bladder removed 1999, Inguenal hernia 1987
 
 
 

Becky77
Veteran Member


Date Joined Dec 2005
Total Posts : 1768
   Posted 9/4/2010 10:14 PM (GMT -7)   
The only time they will do surgery is when scar tissue is causing obstruction...at least that's what my surgeon says. Right now I'm getting partial obstructions from scar tissue. This past time, it took over 18 hours for barium to reach my large intestines, but since it eventually went through, I didn't have surgery. Probably next time it happens I'll have to have surgery.

artist guy
Veteran Member


Date Joined Jan 2010
Total Posts : 1373
   Posted 9/5/2010 7:56 AM (GMT -7)   
I went thru what I thought was scar tissue problems, when I was living in canada, I had what I thought was scar tissue removal, big open surgery, was actually crohns in the resected area, because I have the same pain now as I did back then, and my pain now is inflammed cd in my small bowel, so I'm beginning to think evan back then 1989 it was just my cd flareing to the point of obstuction and surgery, it gave me remission for 5-6 years

happy grandma
Regular Member


Date Joined Jul 2009
Total Posts : 38
   Posted 9/5/2010 10:14 AM (GMT -7)   
There is a good colo rectal surgeon in Seattle WA

tooth
Regular Member


Date Joined Jun 2010
Total Posts : 337
   Posted 9/5/2010 11:10 AM (GMT -7)   
@janicea - who's the surgeon you know of in pa? i live here and am probably going to have surgery sooner rather then later and would love to know of a good surgeon for when the time comes!
Diagnosed 2002 at 18. Remission for about 7 years. Getting back into the swing of things at 26.

100mg Imuran, 750mg Balsalazide 3x day, Flagyl (death pills. yuck)

Flaring...

Had to abandon SCD...for now.

mastersmom
Regular Member


Date Joined Dec 2009
Total Posts : 93
   Posted 9/10/2010 1:16 PM (GMT -7)   
I too would like the name of the doctor in PA that is an adhesion specialist.

AKTeach
Regular Member


Date Joined Sep 2005
Total Posts : 83
   Posted 9/10/2010 2:10 PM (GMT -7)   
I live in Oregon and have gone to a colo-rectal surgeon at OHSU in Portland.  He is located with the digestive health department there.  There may be several other surgeons in the practice also.  My GI specialist is also in the same department.  I have to travel from one end of the state to the other to see them : )
Hope that helps!!
Anne
 

honestwoman50
Veteran Member


Date Joined May 2009
Total Posts : 833
   Posted 9/17/2010 6:03 PM (GMT -7)   
Anne, Are you seeing Dr Etzel by any chance?

He is is the Digestive Health too

Let me know ok
Leslie
Leslie King
 
  1984 Tubligation  1992 Diagnosed with Thyroid tumor    
1993 Gallbladder Removed  1997 Hysterectomy  1998 Carpol Tunnel 
 1999 Spinal Cord Surgery for a Anacroid Syst
2001 Lower Lumbar Fusion L4-5  
2003 Sigmoid Colon Resection
 2006 Right Knee Replacement 2005 Breast Reduction
 2008 RE-did the Lower Lumbar Fusion/ lamanoctomy
2010 DX: colonic Inertia/ Pelvic Floor Disorder
2010 Total Colectomy ABD W/O proctectomy; w/Ileosto
 
  

AKTeach
Regular Member


Date Joined Sep 2005
Total Posts : 83
   Posted 9/18/2010 9:04 AM (GMT -7)   
Hi Leslie!!
 
No, I see Dr. Kim Lu a colo-rectal surgeon there at OHSU.  I have been happy with his help in other areas, so I plan to discuss surgery possibility with him, I trust his opinion.  I also hope to see my GI doc at the same time, Dr. Collins, and get her opinion as well.  She has been my Crohn's doc for a number of years now and has helped me a lot!!
Thanks for inquiry!
Anne
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