Cimzia/Leg pain

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sickofitall
Regular Member


Date Joined May 2009
Total Posts : 250
   Posted 9/5/2010 11:35 AM (GMT -7)   
Just wanted to let ya'll know in case you didn't see the end of my ER Nightmare story, that I had severe unexplainable leg pain which progressively was getting to the point of disability for 18 months.  (was in a wheel chair at times)  I have been on Remicade for 1 1/2 yrs, and leg pain just continued to worse and worse.  I tested negative for lupus, RA, DI lupus, you name it.  Since taking the Cimzia on Friday, there has been DRASTIC improvement.  I can walk normally again without the severe jolts of pain in my legs.  This is the first medicine that had a positive affect on the legs in years.  This is making me think that the leg pain has to be directly related to the crohns.  I am so happy something is finally working.  ITS AMAZING.  Also, I was refferred to a diagnositic center in Houston, and a pain clinic here in new orleans.  I will go to both if the pain continues or gets worse.  Anyway, just wanted to let you guys know, bc some of you have leg pain.  For once in the first 18 months, I feel optimistic.  smilewinkgrin
Current meds:  Remicade
Tried:  Prednisone, sulfasalzine, lialda, antibiotics, imuran
29 yr old female w/ crohn's colitis and SEVERE leg pain
 
 

sickofitall
Regular Member


Date Joined May 2009
Total Posts : 250
   Posted 9/5/2010 11:35 AM (GMT -7)   
ohhh, better change my signature huh?  YAY!
Current meds:  Remicade
Tried:  Prednisone, sulfasalzine, lialda, antibiotics, imuran
29 yr old female w/ crohn's colitis and SEVERE leg pain
 
 

sr5599
Veteran Member


Date Joined Aug 2007
Total Posts : 1202
   Posted 9/5/2010 5:05 PM (GMT -7)   
This is wonderful news! You think it's related to the Crohn's as opposed to the Remicade? No matter, I sure hope it continues to get better! I'll keep good thoughts for you!
1 fistula with two tracts, crohn's colitis, limited to large intestine
Compounded budesonide 3mg/daily, Cimzia. Dx Osteoporosis 10/08 started Forteo 1/27/09

dixie jo
Regular Member


Date Joined Aug 2010
Total Posts : 30
   Posted 9/6/2010 7:47 PM (GMT -7)   
I have had two remicade treatment and my hips and my right leg are killing me,I feel like a old lady when I sit down for awhile its hard to get up and get moving again, I thought that it was just me.I,m glad that you are feeling better.

sickofitall
Regular Member


Date Joined May 2009
Total Posts : 250
   Posted 9/7/2010 1:39 PM (GMT -7)   
Dixie Jo, I want to warn you bc my drs ignored the pains for so long. And it was far more dibilitating than my crohns. I've seen several drs and ended up with I don't know by every one. If its a new pain that started with Remicade, it could be the meds or your crohns. I'm still not sure which caused what pain. But all I know it has lessened with the Cimzia. And prior to the crohns I never had a leg pain in my life. THe only anatomical symptom that you could see with your eyes was severe atrophy (deterioration of the muscles) of the thigh muscles and muscle spasms. Probably from not using them for so long. Good luck and keep ur drs informed.
Current meds: Cimzia since 09/03/2010
Tried: Remicade, prednisone, sulfasalzine, lialda, antibiotics, imuran

29 yr old female w/ crohn's colitis and SEVERE leg pain
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