Hope and... I feel like I should apologize

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Sir Oinksalot
Regular Member


Date Joined Sep 2010
Total Posts : 34
   Posted 9/5/2010 9:55 PM (GMT -7)   
I've kinda jumped on these forums without telling you anything of what Ive been through. I apologize for that

I guess I just wanted to say there is reason for hope, that there is no reason to think that things will never get better.

There is one person in this world who has recovered from crohn's, and I must stress that recovery is completely different to remission. The disease has not gone dormant, it has just gone and wont be coming back. How do I know this? I feel it, the same way you dont get over a cold/flu and think that the cold/flu has just gone into remission, you can just feel it, that it is gone.

I was diagnosed with JRA at 10, Psoriasis at 12, Crohn's at 21 and Ankylosing Spondilitis at 26.

All were on the severe side of the scale in how they attacked me.

The last 4 years I was mostly bedridden. This year I found a way and turned the corner and every symptom I ever had has been leaving me and my body is feeling indescribably good.

As it relates to crohn's, the last time I had bleeding was 5 years ago, I spent the last 5 years in remission but never feeling well until this year, the last time I had pain was 4 months ago, the last time I had what a Doctor would call a normal bowel movement was this morning.

The other 3 diseases are taking a little longer to heal, but then thats to be expected with how much damage they had done.

For the whole of this recovery (well for the last 3 years to be precise) I have not taken any medications (before this year I was living in hell with my symptoms but the meds and treatments had very little effect and I didnt want to blank myself with painkillers - basically I bet it all, I either find a way to recover or else nothing, no half measures, nothing to make living with the disease easier, I was only interested in getting rid of the disease completely).

I am still on no meds, no diets, no nothing. I can eat whatever I want and nothing has an adverse effect, I sleep well and I go to work. Ive done many things in the last few months that were always the worst things for me to do with crohn's as well as the rest, Ive eaten all the foods that would set it off, I have put my body under huge amounts of stress and yet I continue to feel good, this is all stuff Ive done many times before in my life and always had it hurt me in the past.

I am quite excited because it is what I always wanted: something I only had to do once, no repeat, no maintenance and once done to never have to think about looking after these diseases again, to be able to use and abuse my body without having to worry or suffer.

Since March this year every day has shown forward progress to getting better without any action required by me, there hasnt been a single backstep in all this time.

As I write this now, my only remaining symptoms, that are improving daily, is the Psoriasis on my scalp and shoulders, the RA in my shoulder that was broken some years ago and just one pinched nerve in my lower back from the AS. Compared to how I was for the last 10 years, it is so little to be laughable, but then thats a matter of perspective that makes me see it that way. It feels like what remains is about 1% of what I used to feel.

I have now become a guinea pig again for my Doctors for this very reason as they attempt to understand how what I did has worked, when nothing else has been able to have this magnitude of an effect.

Maybe you find reason to hope, or not, thats up to you.

But there is one person in the world who has managed to get himself free of these diseases.

stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 9/6/2010 7:42 AM (GMT -7)   
Good Morning,
 
My husband has had Crohn's Disease for 34 years and has had 4 major surgeries due to obstructions.  To the very best of my knowledge, the CCFA and some of the best Drs available,  although considerable progress has been made in IBD research, investigators do not yet know what causes this disease.
 
There is no single test that can establish the diagnosis of Crohn's disease with certainty. To determine the diagnosis, physician's evaluate a combination of information from the patient's history and physical exam. Perhaps you were misdiagnosed ?  JMHO this morning.
 
Kitt

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 9/6/2010 7:51 AM (GMT -7)   
Sorry Mr. Oinksalot, but you are just in remisssion, you are not cured. I once thought I knew it all too, and stopped taking my meds. I enjoyed a nearly 20 year remission and ate anything I wanted and had no symptoms of the disease. Well let me tell you, I didn't know everything like I thought I did. My 20 year remission ended with me having a emergency resection due to a 12 inch stricture at my ileum/cecum area. While I was busy getting on with my life not thinking about having Crohns, the Crohns was still in there doing its damage without me even knowing it. This disease will continue to do damage on a microscopic level if you are not on meds. I will never be without meds again, and you will find many others have learned the lesson the hard way I did too. Yeah it may be quiet for awhile, but it NEVER goes away forever. So I am glad to hear you are in "remission", but I can 100% guarantee, you are NOT cured. JMHO
Gail*Nanners* Co-Moderator for Crohns Disease 
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

jpnutritionfirst
Regular Member


Date Joined Apr 2009
Total Posts : 383
   Posted 9/6/2010 8:22 AM (GMT -7)   
Great to hear your story. What did you do exactly?
Crohn's diagnosed 6/08
Organic SCD since 4/09
Remicade from 6/09 to 4/10
Low-dose naltrexone since 7/5/10
Boswellia + Natren's Healthy Trinity probiotic + Cinnamon + Wild Oregano Oil + vitamin D

Sir Oinksalot
Regular Member


Date Joined Sep 2010
Total Posts : 34
   Posted 9/6/2010 8:25 AM (GMT -7)   
Nanners, no offense, but things change, the disease may have existed for thousands of years, but the knowledge to get rid of it hasn't.

I havent been alive for 35 years, I dont see any relevance to time served with a disease lending itself to knowing more about it. I dont know it all, which is why Ive taken what Ive done to Doctors to figure out, in my mind anyway i want Doctors doing this because the med industry is the best equipped to reach everyone who needs it.

I agree for 35 years and still counting your Doctors dont know how to cure the disease (I'm working on that part), my Doctors have only found out in the last month how I cured this disease.

Maybe one day it will happen... maybe it already has :) maybe at this time there is a cure and what you're waiting on is the knowledge to be integrated into the medical industry, how long that takes... I have no idea.

Thing is this is what has happened to me, I cant talk here and pretend otherwise.

For the diagnosis to be wrong, and you would have to extend that to RA, Psoriasis and AS, then 7 Rheumatologists, 2 Gastroenterologists, 1 Dermatologist and 3 GP's have all been wrong after having done every test to confirm what treatments to go forward with.

Sorry Nanners but I have had remission, I know what that feels like regarding all 4 diseases I was diagnosed with, there were times when I felt normal, this right now feels like something I have never before felt in my life.

But Im not here to argue "listen to me, I have all the answers", Im just here to talk because no one I know understood what it was like living with those diseases, though no one else yet can relate to what Im going through now. That I can deal with on my own.

But thats where Im coming from, I cant pretend otherwise.

As a logical argument, to look at the fact that the cause may be unknown, it is illogical to assume that there isn't one and nothing can be done to resolve it forever.

I know everyone is going to doubt me, until the day they visit their Doc and the Doc can say "dadadada" and have you walking away thinking... I have no idea what you'll be thinking to be honest.

Even though I did this to myself all I felt on that first day was "something's different, but I cant put my finger on it". It was just a feeling I had, for the next 2 months I bounced between disbelief and doubt, not able to process what was happening. It wasn't until the third month, after a long laundry list of symptoms had resolved that I started to admit to myself that little old me had nailed it, then I bounced between feeling completely overwhelmed by that and uncertainty over how my life would be different, no one has ever known me without the disease, not even me.

I feel more alive now, really really alive, than I ever have in my life.

If I can choose only 1 reason, for going to the effort to harass my Doctors (they were resistant, until they laid eyes on me) and put myself through all the crap they want to put me through to see this help others? Well then I choose: So I can have someone to talk to who can relate to the whole darn experience :P

Ah maybe one day.

Sir Oinksalot
Regular Member


Date Joined Sep 2010
Total Posts : 34
   Posted 9/6/2010 8:46 AM (GMT -7)   
This is what I did on March 17th 2010.

I placed an electromagnet, that resonated at 7.83hz, on my belly button and went to sleep with it on.

(Over on the RA forum I have talked about why I did that: http://www.healingwell.com/community/default.aspx?f=10&m=1892018)

From that point on I did nothing. I put the electromagnet away and I continued my lifestyle just the way it was. No special diet, exercise, work and I did no health treatments of any kind, no medications, vitamins or physical therapies.

The result:

After the first night my body felt different somehow. I was still in a lot of pain, just as I had been for the previous few years but as the days went by I noticed my current symptoms disappearing. Once they had disappeared I felt something else start hurting, then easing, then feeling good. This happened a number of times for the first few weeks until I realized that each part of my body that would begin to hurt, ease then feel good was something I had had arthritis in at some point in my life. As the weeks went by it became apparent that my body was moving back through my disease in reverse and as it woke parts of my body up that were in remission, it would hurt and then get better and then move onto the next thing.

In essence I experienced my disease in reverse and all the pain that went along with that. I had no control over this, my body just did it and I had to grit my teeth and ride it out. The nice thing was that it was very quick. Symptoms that had plagued my for years in the past came back and were healed in days or weeks. I must say that the pain was the same but having it paired with a feeling of it healing and getting better made it bearable versus the pain in the past that just kept getting worse with no end in sight.

I didn't change my lifestyle and every day I felt my health improve. It was unstoppable, nothing I did made it stop, nothing I did made it take a step backwards. Since that night on March 17th every day has been a forward step.

One part that spun me out completely was my ankle, my ankle first got hit by RA when I was 10, after being put under and having my entire ankle flooded with steroids my ankle never hurt again. A couple months ago my ankle started hurting, it lasted 2 days then was gone. Living with that ankle in remission for 20 years feels nothing like what my ankle feels like now, I cant find any other way to say it other than it feels alive.

Since an hour or so ago, that pinched nerve has resolved itself and my shoulder feels halfway better.

Theres just no way I can put this in the remission pigeon hole, 6 months of slowly having my symptoms come and go in reverse, even the ones I had as a child, no this is not remission but something else.

vixen
Veteran Member


Date Joined Jan 2010
Total Posts : 794
   Posted 9/6/2010 8:50 AM (GMT -7)   
Hi, have been over and read your piece on the RA board and I actually don't know what to say!! It is not that I disbelieve you but am equally finding it unbelievable(that make sense?!)
Obviously there are so many theories out there about causes and treatments and that is something, dare I say, pretty bizzare but I guess many things can appear that way until 'proven'. Sometimes all it takes is one person to go off on a tangent and strike it lucky!
Would be interested in seeing where/how this goes

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 9/6/2010 8:59 AM (GMT -7)   
Sorry but some electro magnet is not a cure for Crohns. But if thats what you believe, more power to you. And what my 35 years of having this disease HAS taught me is that there are so many variables with Crohns, they are going to have to find more than one thing to cure of all of Crohns.  I am hopeful one day that it will happen, but its not happened yet. JMHO
Gail*Nanners* Co-Moderator for Crohns Disease 
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Sir Oinksalot
Regular Member


Date Joined Sep 2010
Total Posts : 34
   Posted 9/6/2010 9:30 AM (GMT -7)   
In retrospect I shouldnt have checked my email before going to bed, oh well.

Doubt is fine, if it was important to me that everyone in the world believes me, well that would just be stupid.

A Doctor believes me and is writing my case up as the first step which then follows onto study/research, whatever it is the med industry does with its time before its given to doctors as an option for treatment.

When I was suffering and meds would stop working and therapies would stop working I used to read forums sometimes, maybe I would find something new to try, something I wasnt aware of, sometimes I wouldnt. I never used to write to the forums, I would just read.

If someone just reads this and it helps them to know more is possible, I know Ive had some very dark times, then that is enough for me.

If you want to ask questions, im cool with that, if you want to tear it to pieces and dismiss it as too simple (why the fascination with complexity ill never know) then thats cool too.

I only ever needed one person on board, and I have that person already in the form of my Doctor, I leave it to her to do whats needed past this point.

As things go further, ill post updates, for no other reason than people here will undoubtedly find it more interesting than my family and friends, who are mostly supportive, but just dont get it.

NiceCupOfTea
Veteran Member


Date Joined Jan 2010
Total Posts : 8550
   Posted 9/6/2010 10:27 AM (GMT -7)   
Okay, I'm interested. Meds don't work for me, surgery ain't an option, and I have given hope on conventional medicine ever doing a thing for my Crohn's.

But building an electromagnet? I don't know anything about electronics...

MikeB
Veteran Member


Date Joined Mar 2006
Total Posts : 1169
   Posted 9/6/2010 10:45 AM (GMT -7)   
Back in the 1800s, and again briefly off and on in the 20th century, there were periods when people thought magnetism/electricity could treat or cure a wide range of ailments. It was all quackery then and it is all quackery now.

NiceCupOfTea
Veteran Member


Date Joined Jan 2010
Total Posts : 8550
   Posted 9/6/2010 11:32 AM (GMT -7)   
Neverthless when nothing else works, you might as well try quackery - as long as it doesn't harm you and/or bankrupt you.

Arguably diet is quackery too and yet it is almost accorded the status of traditional meds on this site. I'm not arguing against that; the more people who find something which works for them, the better. Yet diet has no more medical backing for IBD than magnetism does. (Note: I do make an exception for low residue diets which have the purpose of preventing an obstruction in folks with tendencies towards obstructing.)

Oh yeah. That reminds me: I was going to try enteral nutrition. I am still interested in that as my next step, so I haven't quite yet exhausted the possibilities of conventional medicine. But I practically have.

stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 9/6/2010 2:26 PM (GMT -7)   
The Ultimate Zapper has been on the market since  1996 .   Special Price $189.95
The testimony for this product claims "  What are the odds of recovering from paralysis with Multiple Sclerosis and near-death with Crohn's disease? Close to zero. The inventor of this zapper claims "it kills parasites and other pathogens attracted to metals that are trapped in organs and tissues. It also creates a powerful and regenerative Electroporation effect. After you read My Recovery Protocol you will know where you are going -- and how to get there."
 
I hate to see members spend good money on bad products.
 
 

jpnutritionfirst
Regular Member


Date Joined Apr 2009
Total Posts : 383
   Posted 9/6/2010 2:48 PM (GMT -7)   
Hey Sir Oinksalot, is your real name Ken Presner? Also, what's the name of the doctor who's writing up your case report? Where is this doctor located?

NiceCupOfTea
Veteran Member


Date Joined Jan 2010
Total Posts : 8550
   Posted 9/6/2010 3:50 PM (GMT -7)   
See, that's the thing about quackery. Once it involves spending money I lose instant interest.

Oh well, it was fun contemplating building an electromagnet anyway <_<

EMom
Veteran Member


Date Joined Aug 2007
Total Posts : 990
   Posted 9/6/2010 4:41 PM (GMT -7)   
Hi Mr. ...errr...Sir Oinksalot...great name! smilewinkgrin

I've always had an open mind about alternative therapies, so I hope you are really for real. I also believe our LORD has the power to heal, too, but that's for another forum...

I have a question, though. Is this the Beck Protocol or similar to it? I haven't yet read this entire thread or your post in the RA forum... but I once did a little reading about the Beck Protocol...
Mom to 18 year old son diagnosed in June, 2007.
Omega 3s, digestive enzymes, probiotics, vit. C, calcium, vit. D3, a good multivitamin and SCD legal yogurt
Started The Maker's Diet in Sept. '07. Incorporate Specific Carbohydrate Diet (SCD) recipes, too. Med-free.

Threads discussing diet:
http://www.healingwell.com/community/default.aspx?f=17&m=984588
http://www.healingwell.com/community/default.aspx?f=17&m=1533705
http://www.healingwell.com/community/default.aspx?f=17&p=1&m=1262312

MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 9/6/2010 5:15 PM (GMT -7)   
Unfortunately this seems like it has the makings of spam, but since SOA was talking about cleaning the gunk out of his belly button last week I at a bit of a loss.
Forum Co-moderator - Crohn's Disease/Thyroid Disorders: All comments have the caveat contact your local health care provider.
I will find a way or make one. –Phillip Sidney 1554-1586
All that I am and all that I shall ever be, I owe to my Angel Mother.
The Bucket List- Have you found joy in your life? Has your life brought joy to others?
Make sure your suffering has meaning…

CrazyHarry
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Date Joined Mar 2006
Total Posts : 1034
   Posted 9/6/2010 5:26 PM (GMT -7)   
to all and also no one in particular:

i am always skeptical of things and take good news with a grain of salt, especially depending on the source or when it is "too good to be true", but when you hear story after story (from professionals in the field mind you) about the government and/or the FDA spending a great deal of time and money to suppress technology, knowledge, and advancement, to the point of running people out of the country (hudda clark comes to mind) then i tend to think that it may not be all quackery like we are being told. livingston and gerson were WAY ahead of their times in treating cancer. it was only after their deaths that modern science caught up to them and began proving what they were doing was legit and worked - worked better than chemo and radiation treatments. but it will still be suppressed cos there is so much money to be made in the system we have set up. you cannot put drug companies out of business just like big banks are too big too fail. the government will not allow it.

so i cannot dismiss magnetism and the work by royal rife and hulda clark and robert beck out of hand. just cos mainstream does not understand it does not make it incorrect. new technology is always first hailed as heresy. then after many years it arises again to challenge the status quo. only many years later, can it be taken as true and it becomes the new status quo. history shows us man has a hard time embracing new technology and knowledge. and as for magnetism, i have experimented myself with biological wave generators that are based on the research of rife, clark, and beck and i have to say, this stuff does work. (i guess i have now lost my shred of merit on this board). like everything, some work, some are junk. but the science is very very intriguing, enough to where imho it is worth trying, especially if you are at your wits end.

so as with drugs and any other method, what works for some may not work for others. we all want the "magic bullet", the panacea. to illustrate my point, some may try diet and become well and do so fast. for others it may take many many months to see improvement and still others may not see any benefit. then you may also have some that never truly stuck to the program and thus never saw positive results so they feel compelled to lambaste it every chance they get. we all fall in to many different camps, with none of them being wrong. i know what worked for me. if you want to know, ask and i will be more than happy to share and encourage you to follow my path. just as you know what worked for you, i know you will encourage others to follow your path as the last thing any one us want to see is our mistakes and pain repeated by others.

as this disease has so far been proven to have a genetic link, and i have found one in my family, i am hard pressed to believe one can truly be cured. but there is no reason why one cannot be in remission for the rest of their life or for a very very long time or use a specific treatment that when flare ups do occur, they are mild and are gotten under control quickly.

miracles do happen. as soon as you let yourself forget that, you truly have given up hope and have begun down the road to being a bitter person. i dont know about you, but i dont find the company of bitter people to be very pleasant....

that is my 35 cents (i dislike people that only give two).

Roni
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Date Joined May 2003
Total Posts : 2480
   Posted 9/6/2010 5:33 PM (GMT -7)   
NCOT, I don't think diet is quackery if it's purpose is to provide nutrition, healing, and anti-inflammation abilities. Some foods are harder to digest and can aggravate our symptoms and inflammation. We shouldn't eat them when we're in a flare.
I say it's quackery not to eat according to symptoms and disease progression.

As far as I'm concerned, anyone who is in true remission with no disease progression, and says they know something that worked for them, I'm all ears.

Emom, I'm with you, I heard of a lady who was miraculously healed from CD in 1991. Do a google to find out. She now has a healing ministry. I am waiting for my miracle.
How is your son doing, by the way?

CrazyHarry, I love reading all your posts. You have surely not lost any merit here.

Now, Sir Oinksalot, who do you know you're disease is in remission? Have you had a scope or SBFT? Tell us more about this electromagnet thingy.

Post Edited (Roni) : 9/6/2010 6:36:37 PM (GMT-6)


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 9/6/2010 5:43 PM (GMT -7)   
Roni, his info is on the RA board, for we do not allow adverts or duplicate postings of the same info.
Forum Co-moderator - Crohn's Disease/Thyroid Disorders: All comments have the caveat contact your local health care provider.
I will find a way or make one. –Phillip Sidney 1554-1586
All that I am and all that I shall ever be, I owe to my Angel Mother.
The Bucket List- Have you found joy in your life? Has your life brought joy to others?
Make sure your suffering has meaning…

Roni
Veteran Member


Date Joined May 2003
Total Posts : 2480
   Posted 9/6/2010 6:27 PM (GMT -7)   
Thanks mmmnavy.

Sir Oinksalot, your theory is extremely interesting.

Now I have a strange question for all:

When having a resection has anyone had their belly button completely and totally removed and did they feel better?

There must be someone with CD who had their belly button removed. Did they ever get sick again???

Sir Oinksalot
Regular Member


Date Joined Sep 2010
Total Posts : 34
   Posted 9/6/2010 7:14 PM (GMT -7)   
ooooer the point seems to have been missed. The magnet is of no consequence.

If what I think happened is right, the electromagnet is irrelevant. I could have achieved the same results with a scalpel, but I had to search my body and only after searching all over did I find the source of the disease to be in the belly button. Without knowing where I couldnt have done it with a scalpel, Im just not that into self mutilation. If what I think happened is right, then I imagine the doctors will be taking care of this with a scalpel and dis-infectant and then treating your body to recover as quickly and painlessly as possible.

I cant do it that way, Im not a doctor.

I dont want just a few people to do it with a magnet. In a way Im selfish, I want doctors to do it because I have too many people come to me in real life tell me what they are suffering with and I want to be able to just say "go see your doc and ask about your belly button".

For the last 3 months Ive been having this conversation with people over and over, everyone I talk to seems to go through a similar process as whats happened here, it gets tiring.

I have nothing to do with selling anything, I am never going to make another EM resonator let alone try and sell one to people. I have no interest in that.

With my health restored I can make money on my own, the thought of taking money from people in that desperate place sickens me, Ive been in that desperate place and I have spent a lot of money on things just hoping the quakkery would work. I do have some bitterness towards the alt health industry because of that, too many claims/too little result/too much money.

To answer a question it is not the same as the Bob Beck Protocol. I did try that and it did help a little bit, I just took his idea of EMF pulsing in a different direction. Namely making a resonance field to make microbes move, instead of using hugely powerful pulses to kill microbes. The way I figure it, my body can handle the microbes as long as there is an end to how many keep coming in, after all I am not made of infinite resources so I cant tackle an infinite number of microbes and expect to still feel fine. So I cut off the source of their reinforcements.

I only used EMF resonance to find the source of what I now think of as the infection. Without knowing where it comes from that magnet was just a tool to search and find the source of the disease.

That was all, If I had known, well I couldve used a scalpel, a blowtorch, a powerdrill. I would seriously advise you to NEVER buy one of those zapper magnetic pulsers, not because theyre ineffective, but because they are not necessary.

What I think is necessary is getting rid of the source in the belly button, then maybe some kind of anti-biotic to clear whats already in your body, good food, some rest and some time to heal.

Ive never cared what form a cure took, as long as it was ethical, I couldnt care less if it needed a stupid magnet or a severely toxic drug that destroys my immune system, as long as it worked.

For the record my name is Mike, Im from Perth, Western Australia. I wont be putting my Doctors name on here, simply because I would need her permission to do so.

NiceCupOfTea
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Date Joined Jan 2010
Total Posts : 8550
   Posted 9/6/2010 7:17 PM (GMT -7)   
Roni - By quackery, I meant unproven. Diet has not been proven to have any affect on Crohn's, unlike, say, the role of gluten in Coeliac disease, which has been researched and a mechanism of action found.

I do not jump from that to saying that diet is useless. Far from it. I genuinely believe that modified diets work for some people, just as drugs which have been through double-blind, placebo-controlled studies do not work for some people. It does seem that, when it comes to Crohn's, there are as many different customised diets as there are sufferers. I have tended to avoid all of that, partly because experience has taught me that everything feels pretty crappy going through my intestines and that I don't seem to have any foods which soothe and comfort my irate digestive system. And partly because diets such as the SCD are too expensive, too restrictive and too time-consuming for me, at this moment in time. Haven't ruled them out forever.

NiceCupOfTea
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Date Joined Jan 2010
Total Posts : 8550
   Posted 9/6/2010 7:21 PM (GMT -7)   
Okay, Sir Oinkalot's post wasn't there before I posted...

Just quickly: you're telling us about a cure that almost nobody will be able to put into practice. Unless they just happen to be able to build an electromagnet of course. It's all very interesting but I can't see much point.

Sir Oinksalot
Regular Member


Date Joined Sep 2010
Total Posts : 34
   Posted 9/6/2010 7:27 PM (GMT -7)   
Ok the remission part.

Ill speak just about crohn's regarding this. In the last 10 years since being diagnosed with crohn's there were things that would set off a flare without fail. My crohn's was primarily in my bowel, I would have a lot of bleeding and was constantly anemic since key ingredients for making blood are only absorbed in the bowel. The things that set of a flare without fail were milk, cheese, icecream, cakes, pavlova was an absolute killer, shellfish, curries and spicy food in general, chilli, soft drinks, alcohol, a long list of preservatives... the list would go on and on.

Ive had all that go into remission before, without meds, I went down the Maker's Diet road as well, and I had remission without probiotics as well. I know what remission feels like. I know you are going to think that remission is when it feels as good as it possibly gets, well it doesnt. What I have now is better.

My crohn's was in remission for the last few years, after doing my belly button, maybe a couple months later my crohn's flared. Got the pain, cramping, nausea, runny stool, but there was one intriguing difference: there was no blood. The flare lasted 2 days and then all symptoms changed from pain to feeling good.

Im not experiencing an absence of pain, Im experiencing what it is to have your body feel good.

Im not having a camera up my bottom again, if the Doc needs it for her research Ill consider it, but I cant afford to pay for it. I didnt need a camera to tell me there was something wrong 10 years ago, I dont need a camera now to tell me something is so right.
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