Surgery Update

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Pmkrier
Regular Member


Date Joined Apr 2010
Total Posts : 69
   Posted 9/6/2010 5:50 PM (GMT -7)   
I had surgery 2 1/2 weeks ago. I don't feel any different. Still feel like crap. Is this normal? Losing hope...

Aimee =)
Veteran Member


Date Joined Jun 2004
Total Posts : 1020
   Posted 9/6/2010 6:34 PM (GMT -7)   
What kind of surgery did you have?

My resection solved my pain and eating issues immediately (well, after the pain of the surgery subsided!). Now, my disease relapsed, or whatever you want to call it, just 34 days later but it still hadn't affected my eating habits or caused pain yet.

I'm so sorry you're not better. What does your GI say?

lamb61
Veteran Member


Date Joined Jan 2005
Total Posts : 1718
   Posted 9/7/2010 4:35 AM (GMT -7)   
I had surgery in Jan. and it took me a few weeks to get back on my feet. As for CD symptoms I did had alot of D post surgery, my GI ended up putting me on a bile salt binder because I've lost so much of my ileum. Works somedays -- not others. I was literally living on Imodium when I first went back to work. Give it some time and patience and hopefully you'll see some improvement soon.

Pmkrier
Regular Member


Date Joined Apr 2010
Total Posts : 69
   Posted 9/7/2010 9:58 PM (GMT -7)   
I had a resection at the terminal ilieum. Seems like I have the same symptoms I did coming in and they got all the bad stuff out and said i was crohns free... well as much as you can be at least...
Crohn's Disease. Diagnosed in 1997 at the age of 10.
Currently on: Monthly B-12 injections, 6MP, Calcium, Multi-Vitamin, Vitamin D, Prilosec, Humira. Folic Acid, Entocort
Surgery scheduled: August 19 2010 - small bowel resection in TI

Ides
Forum Moderator


Date Joined Nov 2003
Total Posts : 7077
   Posted 9/8/2010 12:36 PM (GMT -7)   
It takes the intestines a while to settle into a pattern of "normalcy" following surgery. It can take as long as six weeks. At that point, if you are still having pre-surgery symptoms, I would talk to the GI. Lamb61 is correct that if a lot of the ileum or the valve is removed, a person can end up getting bile-salt diarrhea.
Moderator Crohn's disease and Irritable Bowel Forums

CD, Ankylosing Spondylitis, small fiber peripheral neuropathy, avascular necrosis, peripheral artery disease, pulmonary hypertension, degenerative disc disease, asthma, severe allergy and a host of other medical problems.

appy.lovee
Regular Member


Date Joined May 2010
Total Posts : 88
   Posted 9/9/2010 6:43 AM (GMT -7)   
after my resection surgery I was hospitalized for 2 1/2 weeks and then it took me 2 more weeks at home before I felt "back to normal" or well what my normal is now. I still have D every day but for the most part am pain free. Just stay at home & try to recoop. Everyone heals at a different rate.
26 years old.
Diagnosed 11/06, suffered for 9 years undiagnosed.
large family history of Crohns. resection surgury 3/07.
currently on 1000 mgs Pentasa 4xd
also have horrible anxiety & constant sinus infections.
 -- imagination is stronger than knowledge -- myth is more potent than history -- dreams are more powerful than facts -- hope always triumphs over experience -- laughter is the cure for grief -- love is stronger than death --

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 9/9/2010 7:52 AM (GMT -7)   
You will continue to feel rough as the others said for up to 6 weeks. You have to remember they were in there moving things all around, taking them out of your body, cutting etc. Even if its done via lap, it still considered major surgery. I always have really bad explosive diarhea after my resections, and its always taking me 6-8 weeks for my body to adjust to the changes. Be sure you get on maintenance meds though, I didn't after my first resection and ended up having to have another only 3 years later. Good luck!
Gail*Nanners* Co-Moderator for Crohns Disease 
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

yohimbe
Regular Member


Date Joined Aug 2010
Total Posts : 109
   Posted 9/9/2010 9:33 AM (GMT -7)   
Realize that a resection cuts the bowel and "stitches together" so the intestine seems solid. But the nerve endings have been cut and they need to reestablish the connections. Think of it this way: if you take a chain saw to a wall and cut the wires behind while you were at it, the wall can be patched up and repainted but the wires are still loose !

It took me two months to recover from one resection: the big mistake I did was to lie in bed feeling sorry for myself, bloated like a frog. Instead you should remain upright and MOVE THE LEGS AND WALK AROUND, anything to remain active.

With the new antiTNF drugs, if you stay on it, the adhesions that form after resection tend to grow less and heal quicker. So Humira or Remicade will keep the inflammation lower.

On months 3-5 I did not feel bad but not completely better, that resection lasted 15 years and felt much better.

Pmkrier
Regular Member


Date Joined Apr 2010
Total Posts : 69
   Posted 9/9/2010 7:49 PM (GMT -7)   
Thanks for all your input everyone. You are right, it takes awhile to recover and I just need to realize this.

I had a follow up today and the nurse practitioner gave me some type of cholesterol pills to help me stop going to the bathroom the second I wake up. I also got some probiotics in pill form to help with the gas at night. It was horrible again last night. I couldn't sleep very well, my stomach wouldn't settle down. She thought I might had c.diff.... I begged to differ. Let's hope these things help me out a bit. As far as recovery I still can't go back to clinicals my weight restriction is still in affect :(
Crohn's Disease. Diagnosed in 1997 at the age of 10.
Currently on: Monthly B-12 injections, 6MP, Calcium, Multi-Vitamin, Vitamin D, Prilosec, Humira. Folic Acid, Entocort
Surgery scheduled: August 19 2010 - small bowel resection in TI
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