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ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 9/6/2010 8:56 PM (GMT -7)   
* shower and dress - yes
* wear makeup - yes
* dustbust rolleyes
* make / straighten bed
* some / all tidying
* some / all dishes
* prep for appointment - yes
* go to appointment
* some movement / exercise / stretching
* spirituality stuff
* more craft / mending / sewing
* read


Bonus:

* post office
* post letters
* dump stuff @ op shop
* dump recyclables at depot
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~

Post Edited (ivy6) : 9/7/2010 5:24:52 PM (GMT-6)


vixen
Veteran Member


Date Joined Jan 2010
Total Posts : 794
   Posted 9/7/2010 1:31 AM (GMT -7)   
Job for today(note there is only one at the minute) Move and stack this mornings delivery of fire wood for the winter. Should only take me 3-4 hours(just moved the first few barrow fulls but needed a breather ;)

chocholic
Veteran Member


Date Joined Apr 2006
Total Posts : 634
   Posted 9/7/2010 1:52 AM (GMT -7)   
still got headache so taking it easy today. Got the back door open so the kittens are very happy to be wizzing round. It seems pretty warm today, although it did rain overnight.
Dx - Crohn's (2006), Depression (2010)
Currently - Humira fornightly, iron infusion weekly, B12 3 monthly, prenatal vits+minerals, 15mg prednisolone, calcium supplement, mirtazapine
Tried - aza, pentasa, questran, infliximab
No crohns' surgeries to date, Episcleritis for 3 weeks x 2, pains in hands, wrists, hips, lower back, knees and ankles

Allergic to Infliximab
Was at uni, but have paused the course to try to figure out my health!

NiceCupOfTea
Veteran Member


Date Joined Jan 2010
Total Posts : 8581
   Posted 9/7/2010 12:20 PM (GMT -7)   
Isn't today Tuesday? :-/

It's a bit late now, but I basically did what I set out to do. Drive into Hemel Hempstead, tackle the scary 'Magic' roundabout (and I didn't even get beeped! >_>), find the town centre car park, park, and do a bit of clothes shopping. Bought 3 pairs of jeans and the one single, solitary nice fleece top that I managed to find in my size. Three pairs of jeans probably sounds excessive, but they're literally all I wear (apart from shorts in summer) and I don't think I have bought a new pair for at least 2 or 3 years. Need to get a couple more tops, a new pair of shoes, possibly a pair of wellies, then I'm done with my winter clothes shopping.

I owe huge thanks to my mum for helping me out. (Including financially...) I hate clothes shopping so if my mum didn't come with me, I'd probably end up eventually going about in rags. Weirdly enough, I actually am fussy about clothes at the same time, though. Very fussy.

Also, I'm looking into volunteering one day a week. It's a toss up between my local hospital or the Ashridge estate (a National Trust estate with miles of woodland). I'm quite interested in all things medical, so the hospital appeals for obvious reasons, but my social phobia recoils at the prospect of chatting to patients. I also like the countryside, but I'm worried conservation work might be too physical for me. Meh, I'll decide. I couldn't have done either a few months ago, though - not without a car to get there :p

flowery
Regular Member


Date Joined Jul 2008
Total Posts : 440
   Posted 9/7/2010 1:51 PM (GMT -7)   
mon/tues tlc...well, it's tuesday so here goes
Had an o.k. weekend.I'd have to rate it a 4-5 for pain. Yesterday morning and this morning were rough. Been waking up with alot of pelvic pain. It doesn't seem to lighten up until lunch. I don't know if the pelvic pain is due to arthritus, scarring from surgerys, crohns or other issues that I don't want to know! sigh!
Decided to volunteer at an assisted living facility next door to me. Met with coordinator there at 9 this morning. It was rough getting there. I was hurting, hope I didn't show it on my face. Visit went well. Had a walk through and set up a few times. I told her about the unpredictability of my disease and that I would have some bad days. Seems the outer world doesn't understand auto-immune diseases. People think it can be contracted she seemed confused at the whole "I have Crohns" thing. anywho, hopefully that will help with me seeing the world a little more.

Bath and Dress
Pray
Go to Assisted Living to meet Coordinator.
Work on taking skins off Tomatoes for Salsa
Make dinner

Have a great day everybody!
Crohns, Diabetes type 2, Fibro, (Depression and Anxiety..who wouldn't?) Back surgery on herniated L-4 L-5 and S-1. Total of 13 surgerys!


Imran 200 mlg, Asacol, Colestid, Bentyl, Lamotil, Paxil, Amitriptlyne, Nexium, Probiodicts, Vit D, Folic Acid, Lots of Potassium, Fish Oil, up to 6 Immodium a day. Oh, and one Giant Pill holder!

chocholic
Veteran Member


Date Joined Apr 2006
Total Posts : 634
   Posted 9/7/2010 2:43 PM (GMT -7)   
My day has gone ok, took it easy and got rid of my headache by mid-morning. I have been abit emotional today, not sure why. I was watching tv and Holby city was on. It had a crohn's patient on, he was on TPN and was due to strictureplasty. He died on the table. I dont know why this has affected me so much, cos normally i dont get worked up over it at all. It just really made me think of my own mortality. I never really thought this disease would kill me untill debilitated passed.
I dont think of it all the time, but it suddenly seems so real and so very possible. It scares the hell out of me.
Dx - Crohn's (2006), Depression (2010)
Currently - Humira fornightly, iron infusion weekly, B12 3 monthly, prenatal vits+minerals, 15mg prednisolone, calcium supplement, mirtazapine
Tried - aza, pentasa, questran, infliximab
Episcleritis for 3 weeks x 2, pains in hands, wrists, hips, lower back, knees and ankles

Allergic to Infliximab
BOOKED FOR open SUGERY ON 9TH NOVEMBER

NiceCupOfTea
Veteran Member


Date Joined Jan 2010
Total Posts : 8581
   Posted 9/7/2010 3:02 PM (GMT -7)   
^I saw that episode of Holby City!

I don't care what the Crohn's does to me. I'm only keeping on going because I'm alive and that's what's expected of the alive. And I'm not ill enough to lie in bed and sleep my way through the days.

ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 9/7/2010 3:25 PM (GMT -7)   
NCOT, I can relate to that. It's pretty sad that we can feel so worn out in our 30s, but hey... I suppose that's chronic illness for you.

Choc, debilitated had a number of issues to contend with. fwiw, I think you're a lot safer under the NHS than he was in the US. You seem to have the co-ordinated care that (imho) he lacked, and I think that lack of oversight was at least partially responsible for what happened to him.

NCOT, is it possible that a whole day of volunteering might be a bit much to start with? Why not try an hour or two a week (or fortnight) and build up from there? I find that I need to practice social interaction: if I've been ill and housebound for a while, it can be very stressful even going down the street; being with people all day is just exhausting, and I need to "train" my brain and emotions to be able to cope with it.

Flowery, I've heard that people can get pelvic pain because their internal muscles seize up, just as unhappy back muscles cause bad backs. Apparently this can be helped with an anal massage :-o :-o but I don't know if there are many therapists who would be willing to do this!!! Maybe you could think about your internal muscles, though, and try to feel if they're clenching?

And yes, it was meant to be a Tuesday post. Sorry. :-).


Ivy.
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~

Becky77
Veteran Member


Date Joined Dec 2005
Total Posts : 1768
   Posted 9/7/2010 3:42 PM (GMT -7)   
Was up for 24 hours + then slept last night from 8pm till about noon today. When I got home, I dumped everything in my kitchen, so I managed to clean it all up today.

I went last night and filled out an application at Dominos and will start next week. It's horrible to say this, but I'll be making so little money an hour it's depressing. Really, I'll make 1/4 of what I was making an hour as an xray tech...but it's money, and I haven't worked in over a year, so I'm happy. It means I'll have to borrow less from my dad each month, and I'll get out of the house more.

When did debilitated pass? I completely missed that...now I feel bad.

Choc, I do think about mortality, but I think more in the sense that life is precious and anything could happen without warning. The blood clots in my lungs, though it didn't scare me when it happened and I was in the hospital because I was SO drugged, made me appreciate life more. It also made me appreciate being able to breathe without pain, because it hurt really bad just to breathe.

Flowery, glad to see you here again! I get pelvic pain sometimes too, but usually just when I need to "go". I know I have a lot of scar tissue, so that's what I attribute it to.

Ivy, how have you been feeling?

ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 9/7/2010 3:50 PM (GMT -7)   
Still struggling a bit, thanks Becky. Not as bad as I was last week, though.

Why the long waking hours, Becky?

btw, I've heard that employers prefer candidates not to have long periods of unemployment on their resumees, so maybe the low pay might be (temporarily) worth it, just to prove to a future employer that you're diligent and keen. I repeat what I said in an earlier post about Aus, though: we need your skills here! Would you think about moving here for a while?

I got a lot of the ironing done yesterday while watching the news. Also did a bit of window-shopping and browsing, and ended up buying myself a really nice scarf to jazz up my wardrobe for the season. I REALLY need to buy myself some warm-season clothes, because I've been living off op-shop rejects for ages now. There seem to be some nice things in stock this season, so I'm hoping to be able to find some clothes that are comfortable and actually fit my body shape for a change.

Ivy.
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~

Becky77
Veteran Member


Date Joined Dec 2005
Total Posts : 1768
   Posted 9/7/2010 3:53 PM (GMT -7)   
Though I'd love to move there, I don't think I could live that far away from family. I talk to my parents and sister every day, so it would be too much emotionally for me. I wish I could though...
Becky

32 yr old female-dx with Crohn's in '97 after emergency resection and appendectomy, 2nd resection '05, Bilateral pulmonary emboli 10/09
Currently on Humira, Omeprazole, Effexor, Seroquel, Calcium, Vit D
Coumadin stopped 3/15/10!!!!

ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 9/7/2010 4:13 PM (GMT -7)   
LOL. You can't blame me for trying. The more nice people here, the better :-).

How lovely that you have dear family to keep you close to home. I'm so happy for you.
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~

NiceCupOfTea
Veteran Member


Date Joined Jan 2010
Total Posts : 8581
   Posted 9/7/2010 4:16 PM (GMT -7)   
I don't wish to scare choc, but I do not feel safe under the NHS. I am quite bitter about some things (whether justly so, probably not, but you can't help how you feel) and personally I am just about ready to drop out of the system. The only medical person I would like to keep in touch with is my current GP. No he can't do anything, but nor can anybody else, and I'd take the doctor who can't do anything but at least cares over the doctor who can't do anything and doesn't care.

@Choc - Try not to let that Holby City episode get to you. Holby City is a soap, so any patient which has a speaking part always has to have something dramatically wrong with them; they wouldn't have bothered having the Crohn's guy walk up to the roof with Rick and make him see the light if he was just a normal guy. Instead they gave him one of the worst cases of Crohn's imaginable and then made him die in an operation which, in real life, he'd have probably survived.

If it reassures you at all, then mortality rates for Crohn's sufferers are about the same as that for non Crohn's sufferers; on average they die a year earlier or something. Which isn't bad when the average age of death is 79.

NiceCupOfTea
Veteran Member


Date Joined Jan 2010
Total Posts : 8581
   Posted 9/7/2010 4:17 PM (GMT -7)   
Wow, I missed an entire conversation. And forgot to reply to ivy's comments about volunteering. Not bad going :-/

ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 9/7/2010 4:24 PM (GMT -7)   
No, you didn't. I only added them about five minutes ago :-).
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~

NiceCupOfTea
Veteran Member


Date Joined Jan 2010
Total Posts : 8581
   Posted 9/7/2010 4:31 PM (GMT -7)   
Oh well, that makes it okay then :p

Becky77
Veteran Member


Date Joined Dec 2005
Total Posts : 1768
   Posted 9/7/2010 4:40 PM (GMT -7)   
Ok, I just went back and read the entire post about debilitated/Kevin. I'm so sad now. To think someone so young would be taken so soon....I'm beyond words right now.

Sometimes I just don't understand why some people have to go through so much, suffer through so many things, and others don't have health issues...doesn't make sense.
Becky

32 yr old female-dx with Crohn's in '97 after emergency resection and appendectomy, 2nd resection '05, Bilateral pulmonary emboli 10/09
Currently on Humira, Omeprazole, Effexor, Seroquel, Calcium, Vit D
Coumadin stopped 3/15/10!!!!

ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 9/7/2010 4:45 PM (GMT -7)   
I know! Not to mention why some people have multiple debilitating illnesses, and others have none.

I often think it'd be nice if every person were stricken with one thing, just to even out the load of suffering in this world. And it'd get rid of the problem of unsympathetic "normals" too.

It was very, very, sad about Kevin. 22 was too young to die, especially as he'd been sick and hadn't had the chance to have a fun young adulthood :-(.
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~
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