Overweight with Crohns

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mlatida
Regular Member


Date Joined Aug 2010
Total Posts : 129
   Posted 9/7/2010 9:56 PM (GMT -7)   
I use to have an eating disorder when I was younger, although I was never skinny. I gained a lot of weight when I was in a bad relationship, but I decided to kick the nasty habits after the relationship ended and focus on a good self-image. I started running and was really proud of myself for losing 60 pounds in 4 months... Then I found out it was because I have Crohn's disease. Since diagnosis, I've put on weight again because I haven't been able to exercise with all of the Crohn's symptoms. Now I'm in a flare, and I've gained even more weight with the steroids. Once I'm over this flare, I'd like to get on a realistic exercise schedule. I miss running, but it hurts my abdomen to bounce up and down. I have an elliptical, but I end up running to the bathroom more than I run on the machine. It's frustrating that I can't be on a workout schedule because of my symptoms, and then I end up just giving up on trying. Anyone else have a weight problem? Do you have any suggestions to lose weight in a safe way?

mdf34
Veteran Member


Date Joined Feb 2010
Total Posts : 925
   Posted 9/8/2010 12:24 AM (GMT -7)   
I have been overweight a long time.  Started controlling my weight by portioning.............worked my way into full time DD, crave more sugar, eating less out of fear and losing weight.  But I am on ento not pred.  The fear of eating has worked wonders in weight loss smilewinkgrin .  I wish I had an idea for you, but smaller portions more often throughout the day helped A LOT.
Diagnosed (FINALLY) UC Sept 09/Diagnosis amended 5-3-10 to Crohn's
Taking Pentasa 500mg/8x/day
Entocort 3X/day
Bentyl as needed
1000 mg Vitamin C
Prilosec 1X/day
Flonase
Caltrate-D 1000mg/day

kazbern
Veteran Member


Date Joined May 2010
Total Posts : 8375
   Posted 9/8/2010 8:17 AM (GMT -7)   
the best weight loss tool I ever learned about was drinking water. At least 8 glasses a day!

I haven't been able to exercise regularly for 3 years now, primarily due to the sacroilietis I got from this disease. I still have a yoga class once a week and I walk a lot. I've never been overweight and I never will be, but I have had to struggle at some points in my life to bring my weight back to a more desirable number - like losing 10-15 lb. It's hard to do! I'm impressed at anyone who can report a weight loss of 60 lb, that's incredible.
*******************
48 yrs old, IBD diagnosis in spring '01. Proctitis, gastritis, ileitis.
Currently taking Pentasa (6g/day), Sulfazine (1.5 g/day), Prevacid, vit. D (20K iu), flax seed oil (2 tsp/day), mesalamine enema as needed.

MAG102886
Veteran Member


Date Joined Jul 2008
Total Posts : 674
   Posted 9/8/2010 10:33 AM (GMT -7)   
I've ALWAYS been overweight, it wasn't until a flare about 2 years ago when I went sans food for almost a month that I actually reached a 'healthy' weight.  I said then that I was going to stay at that weight and attempt to eat right and stay active.  I was put on prednisone and gained 75lbs in a matter of 6 months....I haven't lost ANY of the weight, and I've been off the pred for over a year.
 
I was going to the gym 3-4 days a week, running 5ks and everything else...the weight won't come off.  I do not eat healthy as this disease pretty much prohibits me from doing so, but I do burn 600-1000 calories everytime I go to the gym.  I stay the same weight regardless.

fongers06
Regular Member


Date Joined Jul 2008
Total Posts : 82
   Posted 9/8/2010 10:48 AM (GMT -7)   
I feel your pain and wish I had a magical answer.  I joke all the time that the one side effect of this darn disease I wished I had gotten was the weight loss.  For about the last three weeks I have been doing really bad and between the very little that I do eat and the amount of times I am in the bathroom, I would guess I am at a negative calorie intake, but still can't seem to lose any weight.  I have been to an endocronologist and even he told me that he couldn't even begin to explain how I could be not losing weight with what I eat and everything that I have going on.  Try not to be hard on yourself.  I too had an eating disorder and I struggle every day with what I am going through.  I had a post similar to this probably about a year ago and one person had the nerve to tell me that I must not be very sick if I was gaining weight.  I was so frustrated and hurt.  Hang in there.  It seems like with this disease we don't have a whole lot of control over our own bodies.  The only thing I have been able to do lately is to walk outside.  I try to walk about 3 times a week and I usually get in about 2.5 miles.  I have to make sure I don't eat much before I go so I can avoid the bathroom issues.  If nothing else, for me it is time to get away from my kids and the hubby and just listen to some music and relax. I wish you luck and hopefully knowing that you are not alone will give you some comfort.
Diagnosed with Crohns in May 08
Resection in November 08
Currently on Humira, Entocort, Zoloft, Ritilan SR, B12 injections, Cytomel, Calcium and Vitamin D
Married, mother of 4 that works part time

Mormor Vicky
Veteran Member


Date Joined Mar 2007
Total Posts : 684
   Posted 9/8/2010 1:39 PM (GMT -7)   
I too am one that seems to gain weight when I am at my sickest and not from steroids. My doctor told me it's because I'm not as active but I don't think so. I don't notice much difference in my calorie intake or my exercise level. I was at my heaviest right before I had to have emergency surgery.

I have a theory. I have had a bad reaction to 6-mp. Had bone marrow suppression. I also have been diagnosed with steroid-induced diabetes. It seems I don't metobolize meds well. Maybe I don't metabolize calories either. I have no answer why but it's my theory. I don't tend to lose weight unless I eat less then 800 calories a day. I'll gain when I eat as little as 1200.
Started having issues with the Big "D" at age 19.  Doctor said Lactose Intolerance
Daugher diagnosed when she was 12 and I was 33.
My doctor said I had IBS.
 
8-2006    Emergency resection for fistula to bladder at the age of 47.
"Oh, it is Crohn's"     Dah!!!!
 
11-2006   Reaction to 6mp - isolation with bone marrow suppression and found out I had steriod induced diabetes.  Yeah!!!
4000mg of Pentasa only for Crohn's
Cymbalta, Metformin, Lipitor, Lisinopril
 
Update.  6-10-2010  Started remicade today.

Aimee =)
Veteran Member


Date Joined Jun 2004
Total Posts : 1020
   Posted 9/8/2010 2:08 PM (GMT -7)   
I struggle, too, and like a pp I sometimes wish I had the weight loss "side effect" of this disease. Part of my issue is plain ol' genetics.

The only time i've successfully lost weight was during a couple of flares where I stopped eating completely. I looked SO good, course I was running on coffee alone for energy since I wasn't eating, but shopping was fun.

As soon as the disease got under control, the weight piled back on.

I've noticed that since my surgery I've gained a LOT of weight. I was pretty stable in my weight until that resection. I'm not sure why that is? It's discouraging, esp since I've been able to eat more veggies/salads and am trying harder.

Becky77
Veteran Member


Date Joined Dec 2005
Total Posts : 1768
   Posted 9/8/2010 2:41 PM (GMT -7)   
tsitodawg, thanks for your post. I tend to give up sometimes even trying, and I think I may start how you did. Just add little things until it makes a difference.

I am like many of you. The only time I was underweight was before I was diagnosed, when I had been sick for 8 months and ate very little. After having surgery, I quickly gained weight and was at a normal weight for some time. I don't know if it's age or the second surgery, but now my body holds on to every pound it has. My last GI appointment went poorly, since she said I need to lose weight. I'm on a low residue diet, which has me eating a lot of carbs. She says to work out more and try to lose a pound a week...easy for her to say since she can probably eat whatever she wants, and is naturally thin.
Becky

32 yr old female-dx with Crohn's in '97 after emergency resection and appendectomy, 2nd resection '05, Bilateral pulmonary emboli 10/09
Currently on Humira, Omeprazole, Effexor, Seroquel, Calcium, Vit D
Coumadin stopped 3/15/10!!!!

MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 9/8/2010 4:48 PM (GMT -7)   
<<<<<<<<<never underweight even when marathon training

a very well build tank, who is now just below 300 lbs, seriously I go for a mile walk and bleed so darn much a soak thru a pad
Forum Co-moderator - Crohn's Disease/Thyroid Disorders: All comments have the caveat contact your local health care provider.
I will find a way or make one. –Phillip Sidney 1554-1586
All that I am and all that I shall ever be, I owe to my Angel Mother.
The Bucket List- Have you found joy in your life? Has your life brought joy to others?
Make sure your suffering has meaning…

Becoming undone
Veteran Member


Date Joined Jul 2007
Total Posts : 927
   Posted 9/8/2010 7:06 PM (GMT -7)   
Even when running more than 6 miles a day, working out during lunch and then for an hour after work, I was still considered "overweight/obese" then by some dr's and tables ...I could only get down to 130lbs(which is by no means fat, but it can give you a complex)...but I was lean and muscular...and my heart rate was super low, at around 25bpm...Oh, I had completed many marathons, countless halfs(which I used as training for the fulls)...anyhoo...

I understand the complex that can be had...
I also know that there are some people that can "burn" it off, and have a hard time with putting on weight (my husband for instance, he can eat a HUGE pizza, and still not gain an ounce...though as he's getting older, it may be that he gains an ounce, while everyone else is gaining pounds devil ), and some that eat less, and gain 10 pounds...

I also wonder sometimes, and Navy had brought up this hypothesis as well, that some people, depending on the location of the disease, the body thinks it is in a malnutritive state and holds on to any and all calories, fearing lack of nutrients (or holding on, because a lack in certain key nutrients, because of lack of absorption in a specific area, pushes the body to think it is starving, even when it is not)...I sincerely think this may be the case in some of us "heavier" chronnies....

As to the exercise...do what you can when you can...and start slow...Though I wish I had the body of Cote de Pablo...I do not...I have crohn's disease, she does not...so I have to make concessions that she does not have to make (and I hope never does...I do not wish this disease on anybody)...so maybe that mindset might help(just a thought)...when in flare mode...do what you can handle...wishing you luck...

mlatida
Regular Member


Date Joined Aug 2010
Total Posts : 129
   Posted 9/8/2010 8:01 PM (GMT -7)   
Thanks for the support! It's hard to not be in control of your own body for various reasons. Perhaps we are the unfortunately lot of people whose body's metabolism has shifted to super slow because of malnutrition due to Crohn's.
26 years old. Diagnosed with Crohn's disease March 2008. Battled a C. diff infection from Summer 2009-Spring 2010. Have been dealing with a severe flare for the past several weeks.

crohnskitten
Regular Member


Date Joined May 2010
Total Posts : 26
   Posted 9/8/2010 9:31 PM (GMT -7)   
I've struggled with my weight, while my brother with Crohn's struggles to keep it on. I've lost weight eating SCD, but also by being more aware of what I eat. I use a food tracker now. Before I wasn't aware how much I was eating, and how poor my eating choices were. If you're looking for an exercise that is easier on joints and stomach, I'd suggest swimming. Even on sore days, I could do a bit. A lap or two may not seem like a lot but adds up over time, as will your endurance. Its hard to want to exercise when the fatigue is so bad, I definitely feel that contributed to my weight gain.

MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 9/9/2010 8:39 AM (GMT -7)   
So I happen to have been crying about this very issue a couple of days ago, because a rather cute male doctor said well you must not have severe crohns because you are obese. So, I have been trying to figure out a way to put this in mental perspective, (and please bear in mind this is just a mental stretegy to keep myself from being super depressed and not meant to be harmful toward skinny crohnies) so the best that I have gotten with so far is that: I am so fierce, so tough, such a strong will to live that I got a disease that is suppose to make me skinny, and I am on meds that should make me skinny, and yet I doubled my body weight.
Forum Co-moderator - Crohn's Disease/Thyroid Disorders: All comments have the caveat contact your local health care provider.
I will find a way or make one. –Phillip Sidney 1554-1586
All that I am and all that I shall ever be, I owe to my Angel Mother.
The Bucket List- Have you found joy in your life? Has your life brought joy to others?
Make sure your suffering has meaning…

fongers06
Regular Member


Date Joined Jul 2008
Total Posts : 82
   Posted 9/9/2010 8:57 AM (GMT -7)   
MMMNAVY,

There is nothing worse than having someone tell you that - especially a doctor. I am so sorry. Try no to let it get you down. I am dealing with the same problems and as if we arent' hard enough on ourselves, to have someone else say that - someone that has no idea the hell we deal with every day can just crush you. Remember - there are some of out there that do get it and do understand!
Diagnosed with Crohns in May 08
Resection in November 08
Currently on Humira, Entocort, Zoloft, Ritilan SR, B12 injections, Cytomel, Calcium and Vitamin D
Married, mother of 4 that works part time

MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 9/9/2010 9:21 AM (GMT -7)   
Actually the hot guy who I had hoped to get a date with earlier blowing me off (he was six six and tall enough to make me feel feminine next to him), because I was fat made me feel worse, but now I have gotten it to the point it is funny again.
Forum Co-moderator - Crohn's Disease/Thyroid Disorders: All comments have the caveat contact your local health care provider.
I will find a way or make one. –Phillip Sidney 1554-1586
All that I am and all that I shall ever be, I owe to my Angel Mother.
The Bucket List- Have you found joy in your life? Has your life brought joy to others?
Make sure your suffering has meaning…

DaveF
Veteran Member


Date Joined Jan 2010
Total Posts : 1109
   Posted 9/9/2010 12:26 PM (GMT -7)   
DD was kicking me and my excersise dropped off. I started SCD about 4 months ago, maybe a bit longer, but keep selecting the lower calorie options. Low fat milk for yogurt, little or no honey, low fat protien, ... I dropped about 30 lbs or maybe a bit more but over the last month have stablized. I have been on and off meds including 3 diffeernt kinds of steriods in the last little while so I do not know what my "real" weight is. SCD is working for me so I will continue down that path. I am in the "normal BMI range" and would not mind to lose some more but if I do not that is ok too.
David
 

WantRelief
Regular Member


Date Joined Feb 2006
Total Posts : 261
   Posted 9/9/2010 6:06 PM (GMT -7)   
I was recently diagnosed with PCOS and Insulin Resistance. I have gained 50 pounds in the last two years, since having my bowel resection. I eat three meals per day and snack only occasionally. I go to the bathroom 6-10 times per day on average.  I can't figure out how I can not be eating all that much and it seems like when I do eat, I spend a lot of time in the bathroom. I literally can start eating a meal and before I am finished I need to make a trip to the bathroom.  My doctors couldn't figure out how I consistenly gain weight. Recently my OB did a fasting insulin level and found me to be insulin resistant. I believe that my body is holding on to every bit of glucose I consume and turning in straight into fat. I started on metformin last week to see if we can reverse this process and she seems to think it will help me with losing the extra weight. We'll see it this theory is right.  It doesn't seem fair that I can feel miserable from the disease and then also be fat on top of it. It would at least be nice to be thin in all of this mess!!

jeanneac
Veteran Member


Date Joined Feb 2009
Total Posts : 1812
   Posted 9/9/2010 7:00 PM (GMT -7)   
MMMNavy, while that doctor might have been "cute" on the outside, sounds like he was a real ****** for saying something like that to you.
WantRelief, how is your stomach doing with the metformin??? Is it making your diarrhea worse?
d 1/09 with colitis sigmoid colon with some diverticular disease as well
IBS, high BP, fibromyalgia, Mixed Connective Tissue Disease
claritin, diovan, progesterone, VSL#3 probiotic, Vit. D, colazal, omeprazole for reflux.
Blood test positive for Crohn's via prometheus ibd serology panel ASCA
Positive ANA.
Currently on flagyl and it is helping. Have apt with surgeon soon

babs1957
Regular Member


Date Joined Oct 2010
Total Posts : 61
   Posted 10/14/2010 8:55 AM (GMT -7)   
So I happen to have been crying about this very issue a couple of days ago, because a rather cute male doctor said well you must not have severe crohns because you are obese. So, I have been trying to figure out a way to put this in mental perspective, (and please bear in mind this is just a mental stretegy to keep myself from being super depressed and not meant to be harmful toward skinny crohnies) so the best that I have gotten with so far is that: I am so fierce, so tough, such a strong will to live that I got a disease that is suppose to make me skinny, and I am on meds that should make me skinny, and yet I doubled my body weight.
--------------------------------------------------------------------------------


Cute male doctor must have graduated last in his class, has no manners, and obviously is not a Crohn's expert. What a moronic statement. He obviously has issues about weight that have nothing to do with you. Consider the source.

Don't be sad, get even - report him to his superiors! Being overweight does not make you powerless.
Never trust a fart.

vixen
Veteran Member


Date Joined Jan 2010
Total Posts : 794
   Posted 10/14/2010 1:57 PM (GMT -7)   
OK, obviously crohn's sufferers have issues with weight or lack of, either down to the disease or the drugs. As a non sufferer I needed(wanted) to lose approx 38lb and I had two choices, excercise more or eat less lol :) As I was already walking with hound for an hour a day I didn't really want to do any more excercise so chose the eat less option and the easiest way I found of doing it was with portion control in that all my meals are served on a side plate as opposed to a dinner plate. It's simple and you honestly feel like you have eaten more and within a few days your body really does get used to that intake.
Doesn't stop me wanting to eat when I am bored or stressed though :D
 
Incidently, I lost the 38lb and if I can just go another 7lb I would be ecstatic

Post Edited (vixen) : 10/14/2010 3:02:08 PM (GMT-6)


kazbern
Veteran Member


Date Joined May 2010
Total Posts : 8375
   Posted 10/14/2010 2:59 PM (GMT -7)   
WantRelief, another approach to dealing with PCOS is to adopt a low carb diet ala Atkins. Many of my IVF friends did this and resumed normal ovulation after a few weeks. I hope the metformin isn't making you miserable.
*******************
48 yrs old, IBD diagnosis in spring '01. Proctitis, gastritis, ileitis.
Currently taking Pentasa (6g/day), Sulfazine (1.5 g/day), Prevacid, vit. D (20K iu), flax seed oil (2 tsp/day), mesalamine enema as needed.

SaraOnThisSite
Regular Member


Date Joined Feb 2006
Total Posts : 211
   Posted 10/14/2010 3:55 PM (GMT -7)   
Weight and Crohns is frustrating...as are mean doctors...I went to a specialist for my thyroid (I'm so tired right now, forgot what theyre called, haha) and I was heavier at the time. He asked how much I weighed and I guessed around 190 then he put me on the scale and I think I was 195 or so and he said something like "I guessed 194, I was closer." And he said it in such a mean tone! And it was my first (and last) time going to him.

I hate being overweight with crohns plus the constant losing and gaining weight, I feel like it messes up my body. I have a flare up, boom, lose 10 pounds, then feel better gain it all back, then flare, lose 15, then steroids, gain 30, etc. I was really sick the past few months, lost around 20, then I weighed myself after only a week of feeling better and eating normally and gained back 4-5 pounds already! And I didn't think I overate...Its like awesome, unless I'm barely eating and throwing up, I'm gaining. And I try not to focus on the weight and just focus with getting healthy but at the same time...I'm a girl! Of course I'm going to care about the weight too!

And, on another note, wii fit totally promotes unhealthy weight loss, haha. If I gain a pound or two it makes me give a reason why I gained weight (and no, there's no "I'm on prednisone right now" reason or "I just starting feeling better after a really bad flare and can finally eat again" reason, heh) but yet I'll lose 8 pounds in a week and it will be like "well, I was a little worried about you losing weight so quickly but congrats!! you've reached your goal!" and then fireworks will pop out. It does mess with your mind a little bit!

I find with crohns, its hard to lose weight because of the fatigue and tiredness i can't work out the way I used to, I also find it hard to do core exercises because my stomach area always feels sore. (I usually wear skirts for that reason because anything tight on my stomach area can hurt.) Also, when my stomach is hurting and its usually easier on my stomach to eat foods like white bread, pasta, rice, etc. But now that I'm feeling better I'm going to try to hopefully slowly start to work out again...Just like someone else said, you dont have to go crazy and run, I'm going to try to start slow and just walk or something, because i don't want to get myself sick again. (Like the day i felt better I went from being housebound lying around for months and they went out to lunch with a friend, ran tons of errands...and yea i overdid it!)

We can do it! (I hope! haha)
- 25 year old female, diagnosed in Aug '02 after being misdiagnosed with Lyme Disease for a year.
- Have been on Prednisone, Asacol, Entocort, Remicade, antibiotics (cipro, flagyl, avalox, etc), and Mercaptopurine (even the lowest dosage was messing up my liver, argh) in the past.
- Stopped Humira because it wasn't working, trying to figure out what to do next.
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