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L.A.
New Member


Date Joined Sep 2010
Total Posts : 1
   Posted 9/10/2010 5:23 AM (GMT -7)   
Hello All,
I am a 39 year old male, and I have had symptomatic (problematic) Crohn's Disease for about ten years now, but I was only diagnosed three years ago. I have had surgery for a small bowel obstruction in 2007, but a resection was not necessary because the tissue was still viable. This is when I received a definitive diagnosis. I've since had Remicade added to my regimen of meds, and have had pretty good success with it. I also had Imuran added at the same time. I lost my spleen in 2009 due to blood clots thought to be the result of dehydration from Crohn's. Apparently 80% of my spleen was scar tissue at the time of my Splenectomy. Besides the chronic pain from the disease in general, and scar tissue, joint pain and fatigue are my biggest problems of late. I have also developed Osteoporosis from Prednisone use. That's about it in a nutshell.
L.A.

ZenaWP
Veteran Member


Date Joined Aug 2007
Total Posts : 884
   Posted 9/10/2010 5:58 AM (GMT -7)   
Welcome L.A.!  We're glad to have you and you will get a lot of great advice and support from the people on this forum.  Sorry to hear about your complications such as your spleen and the osteo.

artist guy
Veteran Member


Date Joined Jan 2010
Total Posts : 1373
   Posted 9/10/2010 6:59 AM (GMT -7)   
I have same dehydration really bad, due to 4 surgeries and having that valve removed, Iam extremly malabsorbtion issues due to all of my surgeries, I go to the bathroom so much in the morning that it seems like all I do is try to recoup from my morning bm's, after one or two very loose bm's in the am, then I usually go 2-4 more times getting rid of bile and mucus. I'm on disability now and have applied for ssdi. but I'm 60 and have had cd for 40 years. I'm on rem and pain med's.I wish you well L.A.

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 9/10/2010 7:25 AM (GMT -7)   
Hey L.A. to the best Crohns forum out there. Only sorry that you have to be part of group. You will find alot of great support and love here, so we look forward to hearing more from you. Hugs!
Gail*Nanners* Co-Moderator for Crohns Disease 
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 9/10/2010 5:03 PM (GMT -7)   
Welcome, LA!

Do you have to take any extra precautions when you're on Rem, because you no longer have a spleen? I'm curious: I'm guessing it would make things even harder for you?

I'm looking forward to getting to know you better.

Ivy.
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~
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