Remicade Question.......

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Regular Member

Date Joined Aug 2010
Total Posts : 28
   Posted 9/10/2010 10:54 PM (GMT -6)   
I think im choosing to take the remi over the humira, and just wondered if anyone knew what exactly the "transfusion" consists of.  I went to my family doc to get the TB test, blood test, chest xray, etc, and had asked if she knew. she said it may be a blood transfusion, but didn't know for sure. i don't think that can be right. a blood transfusion every 8 weeks? no way.  that doesn't seem to be a legit way of eliminating the chronic inflammation. any insight would be greatly appreciated as i will prolly be starting this stuff in the next week or so, or whenever the test results come back. thx wink

Elite Member

Date Joined Sep 2005
Total Posts : 10404
   Posted 9/10/2010 11:03 PM (GMT -6)   

Veteran Member

Date Joined May 2009
Total Posts : 506
   Posted 9/10/2010 11:04 PM (GMT -6)   
It's actually an infusion of a mouse protein that reduces inflammation in the bowel.

Aimee =)
Veteran Member

Date Joined Jun 2004
Total Posts : 1020
   Posted 9/10/2010 11:42 PM (GMT -6)   
Ditto pp - it's a medication that is administered through an IV. Just like chemo patients receive medication through IV.

And actually from the information that I have been given, it's very similar to Humira and Cimzia in it's form as a TNF blocker but it uses a mouse protein instead of a human protein. And, of course, the other two are more "user friendly" in that you can administer the drug at home.

I hope Remicade works for you. I loved it when I was on it.

PS-I think you should fully understand the drug before you start it. If your family doc knows nothing about it, read over the Remicade website and talk with your GI before starting it. It's a powerful drug with some serious possible side effects that should be explained to you prior.

Forum Moderator

Date Joined Nov 2003
Total Posts : 7055
   Posted 9/10/2010 11:47 PM (GMT -6)   
To understand how Remicade works and get other useful information about the medication you are going to take, I think you might find it helpful to read this information:
My infusions lasted about 3 hours each time. There is a loading dose protocol that starts with the patient receiving the first dose, then 2 weeks later getting another dose. Then 4 weeks after the 2nd dose the patient gets a third dose. Then the infusions follow on the every 8 week pattern.
Moderator Crohn's disease and Irritable Bowel Forums

CD, Ankylosing Spondylitis, small fiber peripheral neuropathy, avascular necrosis, peripheral artery disease, pulmonary hypertension, degenerative disc disease, asthma, severe allergy and a host of other medical problems.

New Member

Date Joined Jul 2010
Total Posts : 8
   Posted 9/18/2010 8:46 AM (GMT -6)   
I had my first infusion of Remicade last Wednesday.  Everything went well.  It took me over a year to decide what treatment option to go with, but knew I wanted to get off of prednisone.  I am still on it right now, but only taking 10mg per day.  Hopefully after my next infusion, I can get off of it for good!  Anyway, there is a lot of bad stories about Remicade out there on the internet.  I finally found a presentation on line that talked  about the side effects and other associated risks.  It helped a lot.  Here is the link.  It talkes about each treatment, but focuses on the biologicals like Remicade.  The infusion was simple.  I went to the Day Hospital at 8am.  They game me some Tylenal and started the infusion around 830am.  I was completely done and out of the hospital at 1045am.  I was planning on returning to work, but the Tylenal and something else they game me made me extremely tired.  Hopes this helps!
Diagnosed with Crohn's in August 2009 at age 35.
Tried Pentasa and Prednisone. Just started Remicade.

New Member

Date Joined Aug 2010
Total Posts : 18
   Posted 9/23/2010 7:20 AM (GMT -6)   
Thanks for the presentation link! Great info. I'm considering Remicade as well and am in the research phase.
35-year old male, Chicago IL
Diagnosed with U.C. (Proctosigmoiditis) June 2003
June 2003 - July 2004 - All corticosteriods and 5-ASAs
July 2004 - March 2010 - REMISSION! (Thank you 250 mg of Imuran)
March 2010 - present - stubborn flare :( - 40mg of Prednisone, cort enima, Canasa & dialing in Imuran (125mg) & Allopurinol (100mg)

New Member

Date Joined Jul 2010
Total Posts : 8
   Posted 9/24/2010 7:36 AM (GMT -6)   
I have had no ill side effects as of yet, except for a mild cold that I caught.  I had not had a cold for about 2 yrs.  I get my second infusion next Thursday.
Diagnosed with Crohn's in August 2009 at age 35.
Tried Pentasa and Prednisone. Just started Remicade.

dixie jo
Regular Member

Date Joined Aug 2010
Total Posts : 30
   Posted 9/25/2010 1:16 AM (GMT -6)   
I had my third treatment today it seems to be working , I just feel real tired for a couple of days after the treatments and my joints hurt in my hips and legs , but not going to the bathroom as much, i guess we have to pick our battles, I hope that you have some relief after your treatments.

Regular Member

Date Joined Jul 2010
Total Posts : 21
   Posted 9/25/2010 6:08 AM (GMT -6)   
That was a great link. Thanks! I'm in the research phase as well. Doc gave me the choice of Iumuran or Remicade. Not thrilled about either.
48 year old female - Dx with UC/Proctitis February 2010
Allergic to Mesalamine drugs
Meds: Predisone - (round 2) currently 15 mg
HC Rectal Suspension
Ferrious Sulfate, Nexium, Lipitor, Amlodipine Besylate

Multivitamin, Fish & Flax oil caps, Probiotic, Metamucil

New Member

Date Joined Sep 2010
Total Posts : 1
   Posted 9/27/2010 5:28 PM (GMT -6)   
Hi, I am a new member though I have been reading this forum for awhile. Just wanted to say that I am very happy that I switched to Remicade. It has been a big help with pain and diarrhea especially.  I get very tired for a day or more after each infusion but that is the only side effect so far, though I worry about it.     But, yes, always be sure that you get all of the information from your doctor (I think that there was some confusion in an earlier post between transfusions and infusions)
I have a question about anybody going out of the country for treatments.  Mine are very expensive (I have 70/30 insurance). The cost is $12,000 per infusion so it was costing me $3,600. So I am presently using a clinic in Mexico. So far (6 months) I am happy and saving money. Does anybody else have "out of the country" experiences to share?  I know that not all insurance policies will cover this.
Thank you,
New Topic Post Reply Printable Version
Forum Information
Currently it is Monday, October 24, 2016 6:49 PM (GMT -6)
There are a total of 2,711,333 posts in 298,978 threads.
View Active Threads

Who's Online
This forum has 153551 registered members. Please welcome our newest member, kirtomirka.
350 Guest(s), 16 Registered Member(s) are currently online.  Details
PeteZa, imagardener2, Lymepilot, rwieawer, DaveOhio, Scaredy Cat, Girlie, smlafleur, Serfr, bdbbauden, Dazza, rcroller, Antonia I., InTheShop, straydog, wayland

Follow on Facebook  Follow on Twitter  Follow on Pinterest

©1996-2016 LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer