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Gabbrielle
New Member


Date Joined Sep 2010
Total Posts : 6
   Posted 9/10/2010 10:23 PM (GMT -7)   
Hi everyone!
 
I am a 25-year old college student and a wife.
 
I was diagnosed with Crohn's disease when I was 17. I have been on numerous medications- Colazal, Entocort, prednisone, cipro, flagyl, Imuran, 6MP, Remicade, Humira, and other types of drugs, including different steroids, painkillers, antibiotics, and even psychotropics (for the Crohn's).
 
Most of the medications either stopped working or caused me to have violent reactions. The ones that caused reactions were Remicade, prednisone, and Imuran. I also currently have a picc line and have been on TPN. So far, I've been lucky enough to avoid surgery.
 
I have tried different types of diets and natural/alternative therapies- they didn't help me much.
 
I am about to go on Cimzia. I'm a bit nervous about it since the Remicade has made me so ill. I had a delayed infusion reaction which involved severe muscle pain, excruciating joint pain, fevers, and body aches. My husband found a post on a forum like this one- possibly even this one- where a member complained about similar problems. He mentioned that his doctor had him take acetaminophen, benadryl, and methylprednisolone. I took the Tylenol and Benadryl until I was able to reach my doctor- and what do you know, she recommended that I take acetaminophen, Benadryl, and methylprednisolone!
 
It's hard to be chronically ill. I'm so grateful that forums like this exist. Having the support and advice of other people who know what you're going through just seems awesome-sauce. All too often, it's been other patients who have had great living tips, advice, and knowledge that the doctors either dn't know about or forgot to tell you.
 
So I'm glad that you're here, and I'm especially glad to be here! :-)
 

Becky77
Veteran Member


Date Joined Dec 2005
Total Posts : 1768
   Posted 9/10/2010 11:51 PM (GMT -7)   
Glad you found HW. It is comforting and nice to have people who understand you.

There are people here on Cimzia. You could search and read their posts about how it's going for them. I'm sure others had problems with other meds as well, and you might see if they had the same problems with cimzia as with remicade.

Good luck to you, and welcome!
Becky

32 yr old female-dx with Crohn's in '97 after emergency resection and appendectomy, 2nd resection '05, Bilateral pulmonary emboli 10/09
Currently on Humira, Omeprazole, Effexor, Seroquel, Calcium, Vit D
Coumadin stopped 3/15/10!!!!

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 9/11/2010 8:04 AM (GMT -7)   
I would give the Cimzia a chance and see how it works for you. Others who couldn't use Remi or Humira have been able to use the Cimzia. Also, if you fail this med, I don't think that surgery is necessarily a bad thing. Many have found that after their surgery they felt so much better with getting all the bad areas out. Some folks are so afraid of surgery, and they put themselves thru so much misery before finally giving in and wondering why they waited so long. Good luck!
Gail*Nanners* Co-Moderator for Crohns Disease 
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

nursysteph
New Member


Date Joined Sep 2010
Total Posts : 8
   Posted 9/15/2010 9:32 PM (GMT -7)   
hi!! i agree with nanners about the surgery, i dont have crohns but my partner does (i joined this forum to see if i could get anybodys stories about pregnancy and imuran) he had surgery the day after he was diagnosed, he had a scope and said that he was to unwell to risk the medications and that they were worried that if he perforated he wouldn't make it to an operating theatre before he passed away. so they cut out pretty much all of his large intestine, he did have to have a colostomy bag for a few months while he put on 10kg before they would consider reconstructing. that was 4 years ago and since then he has had no other flare ups and is on 100mg of imuran daily, while surgery might not be for everybody i would hate to think what might have happened had he not had it :)
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