prednisone and awake

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blueberrydecaf
Regular Member


Date Joined Jan 2010
Total Posts : 257
   Posted 9/11/2010 5:04 AM (GMT -7)   
for almost two weeks now I have been WIDE awake between 4:30am and 5am...I am thinking it is the prednisone. It's driving me crazy. Still constipated too (haven't gone in 3 days again now). Also, when I wake up early my heart races a bit and I don't like the feeling - but it seems to settle back down fairly quickly so it should be okay. When will I sleep normally again?! Down to 25mg as of yesterday...

Lori M
Regular Member


Date Joined Aug 2010
Total Posts : 65
   Posted 9/11/2010 7:02 AM (GMT -7)   
That's been a pattern with me as well. Works out okay though because I have to be up by 6:00 to take all my meds and get ready for work. I hate not being able to sleep in on weekends though.
46 years old. Diagnosed with Crohn's August 3, 2010

Well the first round of drugs didn't work. Back up to 40 mg of pred, 150 mg of Aza and 3600 mg Asacol per day. Hoping this is the combo that works!

Started prednisone on 8/4/10 for 4 weeks (40 mg 1st week, 30 mg 2nd week, 20 mg 3rd week and 10 mg final week) Asacol 1200 mg 3 times a day

Lots O D3, Calcium, Probiotic, Folic Acid

jrg478
New Member


Date Joined Sep 2010
Total Posts : 6
   Posted 9/11/2010 7:16 AM (GMT -7)   
I have that problem and i just take xanax and it helps right away prednisone give you anxiety

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 9/11/2010 7:55 AM (GMT -7)   
I always take my Prednisone as early in the morning as possible. So when you are waking up at 4:30 am take your Pred then. That usually helps me to avoid the insomnia that Pred can sometime cause. Good luck!
Gail*Nanners* Co-Moderator for Crohns Disease 
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Roni
Veteran Member


Date Joined May 2003
Total Posts : 2480
   Posted 9/11/2010 8:35 AM (GMT -7)   
My doc prescribed Rhovane to help with insomnia. Also, I hear melatonin helps.
I'm down to 20 mg. of pred. I actually did not have an obstruction yesterday for the first time in about three weeks!
We'll see how things go today.

So blueberry, are you obstructed or constipated? I forget... do you have a stricture too?

blueberrydecaf
Regular Member


Date Joined Jan 2010
Total Posts : 257
   Posted 9/11/2010 9:12 AM (GMT -7)   
just constipated - and happy to report that I am no longer! The lactulose I took yesterday totally helped (actually it helped a little too much so far)! I am staying low residue though because I know I have narrowing/strictures and I don't want to push things too much until I see my specialist in a couple of weeks.
Do you live with an obstruction on a daily basis?! That does not sound like fun at all...

Good idea Nanners to take the prednisone if I am awake anyway...will give that a try tomorrow morning.
diagnosed 2003
vit D, calcium, iron when my tummy can handle it
stopped Pentasa
prednisone 30mg

tulipg17
Regular Member


Date Joined Jun 2010
Total Posts : 113
   Posted 9/11/2010 1:49 PM (GMT -7)   
When I take prednisone I take terrible insomnia and heart racing too. Try asking your Dr for ambian CR to help until you finish up your prednisone.

mlatida
Regular Member


Date Joined Aug 2010
Total Posts : 129
   Posted 9/11/2010 9:39 PM (GMT -7)   
I have a chronic constipation problem, and the doctors have me on a regimen of Miralax. The constipation can cause serious problems if you don't address it. Right now, I have an elongated colon, which causes more constipation because the extra loops block food.

It is very common for prednisone to cause insomnia and anxiety. You are not alone. There are plenty of meds to address the side effects of the prednisone. Just be strong and fight for your quality of life!!!
26 years old. Diagnosed with Crohn's disease March 2008. Battled a C. diff infection from Summer 2009-Spring 2010. Have been dealing with a severe flare for the past several weeks.

artist guy
Veteran Member


Date Joined Jan 2010
Total Posts : 1373
   Posted 9/12/2010 9:31 AM (GMT -7)   
pred caused me the worst constip. when I had to go I couldnt' get rid of evrything, didn't feel like I emptied out my bowels, which caused major problems for me, I would feel a gas bubble coming and great I can get rid of this gas and it would just rumble around and not let me get rid of it, the worst for me, I was on heavy sleep med's, and serax for anxiety, that stuff would not wear off, wierd drug, I lasted 4 months on it and took myself off, slowly, my gi agreed. I use vicodin now for flares and slow down bowels if I go more than 5 times in am. plus rem

FunGuy
Veteran Member


Date Joined Oct 2009
Total Posts : 1070
   Posted 9/12/2010 9:49 AM (GMT -7)   
I always took my prednisone in the mornings to minimize the insomnia problem. Once you taper you should improve. I personally avoid sleeping pills.

rlsnights
Regular Member


Date Joined Apr 2006
Total Posts : 449
   Posted 9/12/2010 4:38 PM (GMT -7)   
about the suggestion to try melatonin:

Based on recent publications and reports from others who have been seen at Johns Hopkins and other top autoimmune research centers, these docs are strongly recommending that people with autoimmune disorders *avoid* taking melatonin.

It turns out that melatonin is an important player in the function of the immune system and appears to be partly responsible for stimulating the immune system
son now 14 1/2, dx CD age 10; current meds: MTX and omeprazole; previous tmts: pred, 6-MP, Humira, entocort, GMCS, exclusive enteral feeds, pentasa, mesalamine enemas, cipro, flagyl, many topical treatments for perianal disease

Roni
Veteran Member


Date Joined May 2003
Total Posts : 2480
   Posted 9/12/2010 7:02 PM (GMT -7)   
I go through periods where I have obstructions daily for weeks at a time, then they subside. This is third or fourth time in 5 years that I've had obstructions that last for days and days and days. I'm sooooo done with obstructions, so my GI is sending me to see a surgeon. I will ask them to do a partial hysterectomy at the same time because I also have heavy periods.

I hope for a miracle before surgery.

blueberrydecaf
Regular Member


Date Joined Jan 2010
Total Posts : 257
   Posted 9/12/2010 9:13 PM (GMT -7)   
don't know if you are totally decided on the hysterectomy (of course, a totally personal choice and I am sure you have your reasons) - but I have had very very heavy periods with brutal cramps and bad anemia for a long time. A couple of months ago I got a mirena IUD - it only has 5% of hormone of the pill and can stay in for 5 years. Most women who get it have at 90% reduction in the amount they bleed. I have had some spotting, but heavy periods are totally gone! Knock on wood...
So far it has eliminated my need for ibuprofen and I am hoping will save the iron in my blood which in turn will help my crohns. Just thought I'd pass along the info...
I, too, hope you get your miracle before surgery!
diagnosed 2003
vit D, calcium, iron when my tummy can handle it
stopped Pentasa
prednisone 30mg

Roni
Veteran Member


Date Joined May 2003
Total Posts : 2480
   Posted 9/13/2010 6:25 AM (GMT -7)   
My GYN wants me to get Mirena. How was the insertion? Did you have it inserted within 7 days of your period?

blueberrydecaf
Regular Member


Date Joined Jan 2010
Total Posts : 257
   Posted 9/13/2010 6:37 AM (GMT -7)   
From what I remember I think I had it inserted about a week before my period was due (you can have it inserted during any point in your cycle - but there may be better times than others - it may be better to do it right at the beginning of your cycle so your lining doesn't have a chance to build up so much). The insertion was okay - the thing is you have to take pain meds before the insertion, and I'm not going to lie - it is not the most fun - but it is over really quickly! The whole procedure takes about 5min - when it is inserted it feels like a strong menstrual cramp. I had some cramping for a few days afterwards, and then my first period after insertion was a bit painful and heavy, but since then I have only had spotting off and on - a huge difference. My GYN said it can take 3-6 months to settle in and I am only on my second month, so I am hoping the spotting slows (although really it is hardly any so it is not that bad). I go back to the GYN in October to make suer all is well. I also have large fibroids and still it seems to be working. So far it is WAY, WAY better than heavy cramping periods, and it was worth the discomfort of insertion for sure!
diagnosed 2003
vit D, calcium, iron when my tummy can handle it
stopped Pentasa
prednisone 30mg
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