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blacky
Regular Member


Date Joined Mar 2003
Total Posts : 376
   Posted 9/11/2010 10:30 AM (GMT -7)   
what is with this joint pain? Any thoughts? I am waiting to hear on my Celiac test. I don't know what is up. I sure am tired of having something new turn up every time I turn around, feeling very down today.

tes82
Regular Member


Date Joined Jul 2010
Total Posts : 23
   Posted 9/11/2010 11:21 AM (GMT -7)   
I was told its because you have inflammation in your body so its easier for other parts to become inflamed, causing joint pain. A heating pad helps me. Good Luck!

dragonfly137927
Veteran Member


Date Joined Sep 2006
Total Posts : 2527
   Posted 9/11/2010 12:25 PM (GMT -7)   
Joint pain was actually my 1st symptom I ever had and my joints tend to flare before I have abd flares. The Humira has been the best Med I have taken for preventing the joint pain. There are still times I have joint pain and those times I use Lidoderm patches on the aching joints.
Dx with Crohn's 1987, symptoms as early as 1984.
Temp iliostomy February 2007, reversed June 2007, Ovarian cysts, migraines, allergies (incl food allergies) , oral allergy syndrome (diff than true food allergies), Asthma, Gall Bladder removed 1999, Inguenal hernia 1987
 
 
 

sickofitall
Regular Member


Date Joined May 2009
Total Posts : 250
   Posted 9/11/2010 2:09 PM (GMT -7)   
I must tell you, this symptom started for me in the very early stages of being diagnosed with crohns.  Since there are medicines that we use to treat crohns actually cause joint pain, it is very difficult to decifer between why the joint pain is there.  Initially I blamed prednisone, then remicade.  Now that I am on Cimzia i have noticed a reduction in joint pain, which has been the only thing that has helped in the last 18 mos.  And now I feel the first dose wearing off, my stomach pain is back as well as the joint pain.  So it may have been triggered by a side effect of a med or was bound to happen anyway, the only thing you can do is try to figure it out through tests and different meds.   Also to note I have been tested for everything else and the only thing that shows up is crohns, but my joint pain is far worse than my stomach pains.  Its just weird, I know.  Best of luck, stef
Current meds: Cimzia since 09/03/2010
Tried: Remicade, prednisone, sulfasalzine, lialda, antibiotics, imuran

29 yr old female w/ crohn's colitis and SEVERE leg pain

blacky
Regular Member


Date Joined Mar 2003
Total Posts : 376
   Posted 9/11/2010 2:17 PM (GMT -7)   
thanks, I am on Humira right now. My hands today are just aching so badly and when I woke up this morning, I felt like I was hit by a train. Almost every joint hurt.
Blacky

Mom of 3 girls, 4 bowels resections, currently anemic, having iron infusions weekly
Questran, Humira bi-weekly

kazbern
Veteran Member


Date Joined May 2010
Total Posts : 8375
   Posted 9/11/2010 3:41 PM (GMT -7)   
Blacky, my hands were killing me, too. I started getting redness on my wrist and pinky also, and that finally pushed my GI into action. My bowel disease seems pretty mild, but my hands were making me crazy.

My GI put me on Entocort on top of my Pentasa for about 3 months. The hand pain went away. Then he tapered me off the Entocort and titered me up on sulfasalazine, which was originally a drug for rheumatoid arthritis. There was one week there when I was off the entocort and building up the sulfasalazine that my hands were hurting, but then it went away. My hands have been about 95% pain free for a year, and it is really great.

One thing I noticed was that my hand pain tracked perfectly with my menstrual cycle. When my estrogen dropped my joint pain increased. heh.

So I don't have hand pain anymore, but I do have knee and sacroiliac pain. Still working on a remedy for that; I am considering biologics or some other med choices, but my GI objects because my bowel disease does not appear serious to him.

For the times I've had all-over joint pain like you're describing, 30 days of pred was the best and quickest cure.
*******************
48 yrs old, IBD diagnosis in spring '01. Proctitis, gastritis, ileitis.
Currently taking Pentasa (6g/day), Sulfazine (1.5 g/day), Prevacid, vit. D (20K iu), flax seed oil (2 tsp/day), mesalamine enema as needed.

staci100
Regular Member


Date Joined Mar 2006
Total Posts : 111
   Posted 9/14/2010 8:49 PM (GMT -7)   
I just started on 10mg of prednisone for my joints. We tried this in hopes that it would also help with my gut for now. I am not absorbing the whole 10mg though. I can just tell...
36 y/o Female
Diagnosed with CD 1993

Currently taking Lialda 2 2x a day, B-12 injections, Folic Acid, Probiotic, Fish Oil, LDN, Vitamin D, Vistaril

Past meds: Humira, Immuran, Robinul, Flagyl, Cipro, Prednisone, Bentyl,

shanbr
Regular Member


Date Joined Dec 2009
Total Posts : 103
   Posted 9/17/2010 11:57 PM (GMT -7)   
Joint pain was my first symptom, then i started swelling with water retention everywhere, then my organs started swelling from lungs, to gallbladder.

You can get inflammation spreading almost anywhere with crohn's disease. With rheumatoid your are supposed to mirror your joint pain, both knees, both wrists etc. I am like a dot to dot, go from right shoulder to right elbow, left wrist, right 2 fingers, both knees, left foot 3 toess lol.
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