OT Needing some good vibes sent out.

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Zanne
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   Posted 9/11/2010 1:43 PM (GMT -7)   
about a week and a half ago my husband tore his calf muscle playing softball. It was getting better for a few days, but then not so much. When he said he was going to call the doctor, I knew he was in a lot of pain. He NEVER goes to the doctor. We finally got the news late yesterday that he has 2 blood clots in his leg. He was immediately started on blood thinner by injection and orally. The doctor almost admitted him to the hospital, but said he could come home if he would do the injections himself.

Of course, I am researching the medications and blood clots. I am getting all kinds of statistics that are scaring the crap out of both of us. Luckily we have a very dark sense of humor but it is still very tense and a bit frightening. We have been together for over 30 years and the thought of losing him is just more than I can take. It doesn't help that he has a very hard time following doctors orders and avoiding things that could cause him harm, like bumps and bruises. He wants to go out bike riding with our daughter, and I am freaking out that he could fall and hit his head. Pulmonary Embolism is the third leading killer in the US according to one report I read. The medication he's on makes him more likely to bleed if he hits his head, which he does all the time. I just feel like we are living with a time bomb.

Any good thoughts people can send my way would be much appreciated.

NiceCupOfTea
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   Posted 9/11/2010 3:14 PM (GMT -7)   
Will it get better or will it always be like this?

I hope it's the former. Best wishes to you both; hope that everything turns out okay.

ivy6
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Date Joined Sep 2005
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   Posted 9/11/2010 3:22 PM (GMT -7)   
Good thoughts are heading your way.

~~~~~~~~~~~~~~~~~~~~~~
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~

dunny2
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   Posted 9/11/2010 4:52 PM (GMT -7)   
Thinking of you Zanne and your husband. ((( hugs)))

Ides
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   Posted 9/11/2010 5:59 PM (GMT -7)   
I understand the hitting the head all the time type. That's me! My daughter has told me to wear her bicycle helmut when I am gardening because I hit my head so often - LOL! I asked for a hard hat for Christmas. Seriously though - he has to be careful.

If the doctor thought of admitting him, then he should be doing the same things he would in the hospital which is NOT bike riding! I hope those clots dissolve quickly. I'm thinking of you both and sending lots of good vibes your way...
Moderator Crohn's disease and Irritable Bowel Forums

CD, Ankylosing Spondylitis, small fiber peripheral neuropathy, avascular necrosis, peripheral artery disease, pulmonary hypertension, degenerative disc disease, asthma, severe allergy and a host of other medical problems.

MMMNAVY
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Date Joined Jul 2006
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   Posted 9/11/2010 6:39 PM (GMT -7)   
no do not go riding with child yet...think how that child would feel if something did happen
Forum Co-moderator - Crohn's Disease/Thyroid Disorders: All comments have the caveat contact your local health care provider.
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All that I am and all that I shall ever be, I owe to my Angel Mother.
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Make sure your suffering has meaning…

Becky77
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Date Joined Dec 2005
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   Posted 9/11/2010 7:40 PM (GMT -7)   
If it makes you feel any better, I had PE's and so did a friend of mine, and we're both fine now. Being on blood thinners you have to be really careful. I still did a lot while I was on them, but you realize really quickly how they affect you. Little cuts gush blood, and will scare you enough to not do a lot of stuff.

He should be on bedrest for a while, to make sure the clot doesn't move...or so I would think. If you don't think he'll take care of himself, maybe you should have his doctor admit him.

Good luck to you both. I know it's stressful. Oh, and you should search, there is a forum I found for blood clots that was very helpful...don't remember what the name was, but you should be able to find it easily if you're searching.

vixen
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Date Joined Jan 2010
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   Posted 9/12/2010 1:54 AM (GMT -7)   
At least with a diagnosis he can now be correctly treated with the thinners and they will do their job. I know it must be a scary time for you all. (((((((Hugs))))))) to you all.

Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 9/12/2010 6:42 AM (GMT -7)   
Thank you all. He is slowly realizing that he needs to adjust to this, but very slowly. It was a one in a million freakish thing, to tear your calf and develop 2 blood clots. There are a few things adding to the confusion, of course we were told about this late on a Friday afternoon, so by the time we realized we had more questions, the doctor was gone for the weekend. Also, I don't think that his doctor or staff has really seen this in the office before. It is something that happens, or is diagnosed in the ER/hospital more often. In that respect, he would have been much better off if they had admitted him to the hospital because then he would be seeing the specialist on call and getting more information than just from the internet. The information out there is really scary. He's calling it my "Fun Facts". Things like 30% of people die within 30 days of diagnosis, just plain unacceptable to us. But information that comes from reliable sources like AHA Journals and CDC.

So far, the treatment seems to be working so hopefully things will be good.

Please keep all the positive thoughts and prayers coming.

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 9/12/2010 7:16 AM (GMT -7)   
Oh goodness Zanne, how frightening this must be for you. You can as always count on my prayers my friend. Make sure he isn't do any risky bike riding or anything until you can get back with his doctor and find out what he is allowed to do. Big hugs!
Gail*Nanners* Co-Moderator for Crohns Disease 
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Becky77
Veteran Member


Date Joined Dec 2005
Total Posts : 1768
   Posted 9/12/2010 8:07 AM (GMT -7)   
STOP READING ONLINE about CLOTS!!!! It'll only scare you more. Right now you just need to take it easy, and try to keep him from doing as much as possible. I really do think the first 3 days after a clot is found, you're supposed to be on strict bedrest, but that might just be with PE's.

As time goes on, things will be less scary. Clots happen far more than people think, and since he's on blood thinners, he can't develop another one. His body just has to take the time to dissolve the ones that are there now.

Hopefully the clots go away quickly and he can resume "normal life" in 6 months (the standard amount of time they keep patients on blood thinners).

Is his leg still hurting at all? Just curious.

Zanne
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Date Joined Apr 2005
Total Posts : 3763
   Posted 9/12/2010 10:55 AM (GMT -7)   
Yes his leg is still hurting, but its hard to tell whether its from the tore muscle or the clots. The swelling has gone down some, at least most mornings, but it comes back every night.

He goes for blood work tomorrow and then talks to the doctor again in the afternoon, so hopefully we will know more by tomorrow night.

Thank you all.

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 9/13/2010 7:04 AM (GMT -7)   
Zanne do keep us posted on what the doc says? Keeping you both in my prayers. Hugs!
Gail*Nanners* Co-Moderator for Crohns Disease 
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Becky77
Veteran Member


Date Joined Dec 2005
Total Posts : 1768
   Posted 9/14/2010 5:37 AM (GMT -7)   
How did the appointment go? Hopefully some questions have been answered and you're more at ease. :)
Becky

32 yr old female-dx with Crohn's in '97 after emergency resection and appendectomy, 2nd resection '05, Bilateral pulmonary emboli 10/09
Currently on Humira, Omeprazole, Effexor, Seroquel, Calcium, Vit D
Coumadin stopped 3/15/10!!!!

Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 9/14/2010 8:06 AM (GMT -7)   
Unfortunately my husbands clotting numbers are not where they need to be yet, so he has to continue doing the injections until Wednesday and then re-do the blood work. Neither of us has a lot of confidence that his doctor really knows too much about this condition, but the doctor is consulting with a vascular surgeon. My husband wants to give his doctor a chance, I'm not so willing. Since he is a grown adult, I have to wait. I just want to sit down with the vascular surgeon and have a chat! There is too much conflicting information floating around, some of it coming from our doctor. I want to talk to the expert.

But what do I know, I've just been dealing with medical issues for most of my life. We may hear from our doctor today, but maybe not. Its the waiting that will surely kill me!

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 9/14/2010 8:36 AM (GMT -7)   
Zanne is there anyway at all that you could contact a vasucular surgeon yourselves instead of playing this waiting game? Big hugs to you my friend!!
Gail*Nanners* Co-Moderator for Crohns Disease 
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Sniper
Veteran Member


Date Joined Feb 2004
Total Posts : 6518
   Posted 9/14/2010 10:22 AM (GMT -7)   
Sending good thoughts to you and your husband for all to be well. A word of advice about blood thinners also. When your on them you bruise easily so dont get excited if a little bump makes a big blue spot on him. Yeah, I know, easy for me to say....
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.

Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 9/14/2010 10:27 AM (GMT -7)   
I want to call the vascular surgeon, but hubby won't until after he talks to his doctor again on Wednesday. I went so far as to look up which doctor I think is being consulted as where the office is, the training ... Just so I would now all the info when the time comes. Not too hard when our doctor says he's talking to a woman vascular surgeon and the hospital only has one woman vascular surgeon on staff, but still.

My husband is going about this like he would a business problem trying not to step on toes, I want to go about it like a life and death problem. Obvious what worlds we spend most of our time in.

Becky77
Veteran Member


Date Joined Dec 2005
Total Posts : 1768
   Posted 9/14/2010 5:24 PM (GMT -7)   
What kind of doctor is he seeing? I saw a pulmonologist and they monitored my PT. I have a friend who saw a hematologist.

The first few weeks of blood thinners is the most stressful because it's hard sometimes to get someone in the therapeutic range. A friend of mine was up and down the entire time she was on coumadin. I remember being very frustrated when I started coumadin. It's confusing and strange. It does get easier though. Hang in there!
Becky

32 yr old female-dx with Crohn's in '97 after emergency resection and appendectomy, 2nd resection '05, Bilateral pulmonary emboli 10/09
Currently on Humira, Omeprazole, Effexor, Seroquel, Calcium, Vit D
Coumadin stopped 3/15/10!!!!

sr5599
Veteran Member


Date Joined Aug 2007
Total Posts : 1202
   Posted 9/14/2010 6:01 PM (GMT -7)   
Zanne - is the clot in the lower leg or upper leg? My dad had one in his lower leg so I learned about the risks and scary stuff then. His doctor said that clots in the lower legs are less likely to cause problems than clots in the upper leg. (This is just what he told me, I'm not educated beyond that on this...) It is very scary, but since they caught it (Whew! Thank goodness...) you can sit back and rest with him and wait for that clot to dissolve. I agree that being in a resting state is smart. He can ride later! ;-) Do they think that the clot formed from the muscle tear?

I'm sending good healing thoughts your way. Keep us informed... You and your husband will be in my thoughts and prayers! hugs!
1 fistula with two tracts, crohn's colitis, limited to large intestine
Compounded budesonide 3mg/daily, Cimzia. Dx Osteoporosis 10/08 started Forteo 1/27/09
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